Presidents

Donald L. Patrick, PhD MSPH
Term: 1993 – 1994

Robert Kaplan, PhD
Term: 1994 – 1996

Monika Bullinger, PhD
Term: 1996 – 1998

Sharon Wood-Dauphinee, PhD
Term: 1998 – 2000

Ivan Barofsky, PhD
Term: 2000 – 2001

David Osoba, MD
Term: 2001 – 2002

Mirjam A. G.  Sprangers, PhD
Term: 2002 – 2003

Albert W. Wu, MD MPH
Term: 2003 – 2004

David Feeny, PhD
Term: 2004 – 2005

Peter Fayers, PhD
Term: 2005 – 2006

Madeleine T. King, PhD
Term: 2006 – 2007

Donna L. Lamping, PhD
Term: 2007 – 2008

Neil K. Aaronson, PhD
Term: 2008 – 2009

Diane L. Fairclough, DrPH
Term: 2009 – 2010

Carol M. Moinpour, PhD
Term: 2010 – 2011

Bryce B. Reeve, PhD
Term: 2011 – 2013

Galina Velikova, MD PhD FRCP
Term: 2013 – 2015

Claire Snyder, PhD
Term: 2015 – 2017

Jose (Chema) Valderas, MD MPH PhD
Term: 2017 – 2019

Lori Frank, PhD
Term: 2019 – 2021

JPRO

David Feeny, PhD
Term: 2016 – 2021

Dennis Revicki, PhD
Term: 2016 – 2020

QLR

Maurice J. Staquet, MD MS
Term: 1993 – 1999

Neil K. Aaronson, PhD
Term: 1999 – 2005

Ron D. Hays, PhD
Term: 2005 – 2009

Dennis Revicki, PhD
Term: 2009 – 2015

Carolyn E. Schwartz, ScD
Term: 2009 – 2017

Frans Jeroen Oort, PhD
Term: 2015 – 2019

Description: The ACPP serves as a resource to the President, Executive Committee and Board of Directors, providing institutional memory and input based on their experience.

Members: All living past presidents of ISOQOL who are members in good standing are automatically members of the council.

Chairs: Two past presidents serve as Co-Chairs for a two-year term with staggering term dates. Each past president serving as Co-Chair has the option to renew his/her term for one additional term.

Claire Snyder, PhD
Johns Hopkins School of Medicine
Maryland, United States
Term: 2020 – 2022 (First Term)

Mirjam A.G. Sprangers, PhD
Amsterdam University Medical Centers
Netherlands
Term: 2021 – 2023 (First Term)

Description: The AC Committee manages the scientific content of the ISOQOL Annual Conference. They develop the theme, invite plenary speakers, and solicit presentations to develop a diverse scientific program. This committee is charged to ensure the highest quality educational program and promote participation.

Members: This committee consists of two Co-Chairs, one Local Representative, one Symposium Chair and a Board Liaison. The Local representatives and Symposium Chair are appointed by the Co-Chairs with approval of the Board Liaison.

Chairs: Program Chairs are appointed by the Executive Committee a minimum of 1.5 years in advance.

Kathrin I. Fischer, MsC PhD
Roche Products Ltd
United Kingdom
Term: 2022 Co-Chair

Lene Kongsgaard Nielsen, PhD MD
Quality of Life Research Center, Odense University Hospital
Denmark
Term: 2022 Co-Chair

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Description: This committee is comprised of Executive Committee members. The Audit Committee reviews the year-end audit report and tax filing. The Secretary-Treasurer then presents the year-end audit report to the Board of Directors.

Members: This committee consists of the ISOQOL President and either the President-Elect or the Past President.

Chair: The ISOQOL Treasurer serves as the Committee Chair.

Christopher B. Forrest, MD PhD
The Children’s Hospital of Philadelphia
Pennsylvania, United States
Term: 2021 – 2024

Description: The Collaboration Committee works to forge mutually beneficial collaborations with external organizations to advance the field and position of ISOQOL as the leader in integrating HRQL research. They also evaluate, define and pursue collaborative opportunities

Members: This committee relies on member volunteers. All members are asked to serve a two-year term.

Past Chair:

Sandra Nolte, PhD
Charité – Universitätsmedizin Berlin
Medical Clinic
Department of Psychosomatic Medicine
Germany
Term: 2018 – 2022

Chair:

Antoine Regnault, PhD
Modus Outcomes
France
Term: 2020 – 2023

Chair-Elect:

Bellinda L. King-Kallimanis, PhD
LUNGevity
Florida, United States
Term: 2021 – 2024

Description: The Communications Committee works to increase awareness, recognition and support of ISOQOL to various stakeholders/audiences through the development and maintenance of a communication plan and outreach strategies.

Members: This committee relies on member volunteers. All members are asked to serve a two-year term.

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Description: The Education Committee advances the scientific study of health related quality of life and other patient-centered outcomes by reviewing submitted/proposed projects to develop the ISOQOL education program. The Committee will oversee all educational content for ISOQOL.

Members: This committee relies on member volunteers and is composed of four subcommittees. All members are asked to serve a two-year term.

Past Chair:

Kathrin I. Fischer, MSc PhD
Roche Products Ltd
United Kingdom
Term: 2019 – 2022

Chair:

Josephine Norquist, MS
Merck Sharp & Dohme Corp.
Pennsylvania, United States
Term: 2020 – 2023

Chair-Elect:

Elizabeth (Betsy) Tschosik, PhD
Genentech
Illinois, United States
Term: 2021 – 2024

Educational Courses Subcommittee Co-Chairs:

Somali M. Burgess, PhD
Evidera
Maryland, United States
Term: 2019 – 2022

Sara Perez
Complutense University of Madrid
Spain
Term: 2021 – 2023

Measuring What Matters Symposium Topic Selection Subcommittee Co-Chairs:

Catherine J. Bottomley, MPharm PhD
Vitaccess
United Kingdom
Term: 2020 – 2022

Christina K. Zigler, PhD
Duke University School of Medicine
North Carolina, United States
Term: 2021 – 2023

Webinar Subcommittee Co-Chairs:

Madeline Pe, PhD
European Organisation for Research Treatment and Cancer
Belgium
Term: 2020 – 2022

Katarzyna Wac, PhD
University of Geneva, QoL Technologies Lab
Denmark
Term: 2021 – 2023

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Description: The Measuring What Matters Committee develops a 1.5-day symposium targeting industry partners, clinicians, patients and government agencies. The program addresses important considerations to these stakeholders when developing a patient-reported outcome measurement strategy to “measure what matters.”

Chairs: This committee has two co-chairs both with a one year term.

Rob Arbuckle
Adelphi Values
United Kingdom
Term: 2021 – 2022

Nalin Payakachat, BPharm MS PhD
Eli Lilly and Company
Arkansas, United States
Term: 2021 – 2022

Description: The Membership Committee works to expand, recruit and maintain membership in general and in underrepresented groups and/or regions.

Members: This committee relies on member volunteers. All members are asked to serve a two-year term.

Chairs: This committee has three Co-Chairs with staggering term dates beginning after the committee’s first two years.

Richard L. Skolasky, ScD
Johns Hopkins University
Maryland, United States
Term: 2018 – 2022

Canhua Xiao, PhD RN FAAN
Emory University
Georgia, United States
Term: 2018 – 2023

Tom Willgoss, PhD MSc BA
Roche
United Kingdom
Term: 2021 – 2024

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Description: The Nominations Committee plays an active role in identifying potential Director-at-Large candidates, as well as the officer positions of President Elect and Secretary-Treasurer to the Board of Directors. The committee presents the slate of candidates to the ISOQOL Board of Directors for approval. Once approved, the slate of candidates is sent to membership for vote and confirmation. The committee also reviews and recommends candidates for Honorary Membership status to the Board of Directors.

Members: Members are composed of one member from each Board Council and are recommended by the Executive Committee. All members serve a two-year term, with staggering term dates.

Chair: The chair position is filled by either the President Elect or the Past President.

Lori Frank, PhD
RAND Corporation
Virginia, United States
Term: 2021 – 2022

Description: The Standards & Best Practices Committee advances the scientific study of HRQL and other PCOs by leading projects to develop standards and best practices, as well as create tools to promote implementation of recommendations. The committee also serves as the custodian of ISOQOL standards and best practices documents, including updates as needed.

Members: Members are composed of one representative from the Advisory Council of Past Presidents and volunteers. Members are asked to serve a two-year term, with staggering term dates.

Past Chair:

Montserrat Ferrer, MD PhD
Hospital del Mar Medical Research Institute
Spain
Term: 2021 – 2022

Chair:

Jessica Roydhouse, PhD
University of Tasmania
Tasmania, Australia
Term: 2020 – 2022

Chair-Elect:

Elizabeth J. Unni, PhD
Touro College of Pharmacy​
New York, United States
Term: 2021 – 2023

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Description: The Task Force recently completed a large-scale review (>2000 articles reviewed in full-text) that described the state of the field in terms of proxy-reported measures and the use of proxies in health studies. The next primary objective will be to review clinical outcome assessment (COA) definitions and practices regarding proxy-reported measures, and develop emerging best practices for proxy-reported measures. This formal review will inform subsequent Task Force work.

Co-Chairs:

Jessica Roydhouse, PhD
Menzies Institute for Medical Research
University of Tasmania
Tasmania, Australia

Dr. Roydhouse has expertise in proxy reports of patient outcomes in cancer. She is the current Chair-Elect of the ISOQOL Standards and Best Practices Committee and an Associate Editor for the Journal of Patient-Reported Outcomes.

Brittany Lapin, PhD MPH
Assistant Professor of Biostatistics
Cleveland Clinic Lerner Research Institute
Ohio, United States

Dr. Lapin has expertise in proxy reporting with a focus on stroke. She is an Associate Editor for Quality of Life Research.

Description: The goal of this award is to recognize outstanding contributions to the advancement of the HRQL research field in one or more of the following areas:

• Education of professionals, patients or lay individuals about the value of HRQL
• Promotion or execution of HRQL research and/or other scholarly activities
• Facilitating or furthering policy initiatives that impact HRQL

How to apply

Members: Awardees are reviewed by the President, selected by the Executive Committee and endorsed by the Board of Directors.

Description: The goal of this award is to recognize young professionals who have shown exceptional leadership skills and potential by playing a key role in the successful completion of a specific ISOQOL activity, task or project.

How to apply

Members: This judging panel consists of two ACPP members, two Board members nominated by the Executive Committee and the most recent award recipient. Each member, excluding the previous award recipient, will serve two years with staggering term dates.

Description: The Travel Scholarship Program was developed to increase the opportunity for patient research partners, members in the early stages of their careers and for members from developing countries to attend the Annual Conference by providing funds to help defray travel costs. There are currently three types of travel scholarships available:

• Patient Research Partner
• Developing Country
• Student and New Investigator

How to apply

Help ISOQOL give more scholarships

Members: This judging panel consists two regular ISOQOL members, one special ISOQOL member, one Patient Engagement SIG member and one New Investigator SIG member. All representatives serve a two year term with approximately half of the panel terming off the panel each year.

Description: The Outstanding Poster Finalists are designated to the top six poster submissions from the Annual Conference that received the highest scores during the peer review process. All abstracts submitted as posters are automatically considered for this designation. During the Annual Conference, the judging panel scores the six presentations and names a winner for the Outstanding Poster Award.

How to apply

Members: This judging panel consists of two past AC Committee chairs, two upcoming AC Committee chairs and one Education Committee Chair.

Description: Each year, ISOQOL recognizes the best overall oral and poster presentations at the Annual Conference made by full-time students and new investigators in the early stages of their career in HRQOL research. Abstracts submitted to the Annual Conference by students and new investigators are considered for these awards.

How to apply

Members: This judging panel consists of two Education Committee members, the New Investigator SIG chair and an Education Council Liaison from the Board.