2023 Measuring What Matters
Registration Now Open
18 July 2023 | Virtual Event
The theme of this year’s symposium is Measuring What Matters in Oncology: Translating research into clinical practice using clinical registries.
MWM 2023 Session 2 Spotlight: Examples of PROMs in Registries
This session features presentations from Dr. Roxanne Jensen, Dr. Kelly de Ligt, and Dr. Bellinda King-Kallimanis.
Symposia Topics Preview: 2023 Annual Conference
2023 Annual Conference Symposia Offer a Variety of Research Perspectives
What’s New at ISOQOL?
The ISOQOL News Update includes the latest announcements from the Society. All articles are archived in our News section. The Update features the following categories:
What We Do
What is Quality of Life?
Welcome to Quality of Life 101. Here we outline the basics of QOL research, including:
- The difference between QOL and HRQL
- The purpose of HRQL research
- Descriptions and examples of the three primary areas of HRQL research: theory, methods and application
Who We Are
International Society for Quality of Life Research
ISOQOL is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing HRQL. Learn about our purpose, global reach, history and leadership.
Volunteers gain valuable professional experience while collaborating with others.
QualityTALK is ISOQOL’s science-focused newsletter. Visit the News section to view archived issues.
ISOQOL hosts a number of events. Affiliate and partner events are also listed.
ISOQOL’s membership represents academic institutions, patients, clinical institutions and regulatory agencies, as well as consultancy, pharmaceutical, biotechnology and other business-related companies.
Representing over 40 countries, 50% of ISOQOL members reside in North America, 35% reside in Europe and the remaining 15% of members live around the globe.
Special Interest Groups
SIGs provide members with an outlet to connect (online and in-person) with others who share similar interests or live in the same regional network.
ISOQOL boasts a dictionary (multiple translations), a science-focused newsletter, and multiple guides. Additionally, ISOQOL owns a high-quality journal and endorses another owned by Springer.
ISOQOL Job Board
ISOQOL has a Job Board where you can upload a resume, search for quality of life-related employment opportunities in various sectors, get job alerts, and more. You can also use the ISOQOL Job Board to advertise job openings with ISOQOL members, the public and other job boards within the Healthcare Job Board Network. Click here to learn more about posting a job to the ISOQOL Job Board.
Journal of Patient-Reported Outcomes (JPRO)
Submit an article to ISOQOL’s open access journal!
ISOQOL members receive a 30% discount for the submission and processing of accepted articles. If you are from a low-income country, you may be eligible for a waiver. Click the button below to retrieve the ISOQOL member discount code to enter at submission, or visit the Journals page to learn more about JPRO!
ISOQOL Dictionary for Quality of Life and Health Outcomes Measurement
The idea of creating a dictionary of terms used in our field arose from the Uruguay meeting in 2008. An encounter with a discouraged student who had just realized that, although seasoned members from our society distinguished between quality of life (QOL) and health related quality of life (HRQL), novices and researchers from other fields did not. The idea of a dictionary as a invaluable resource for people working in the field of HRQL and health outcomes was enthusiastically received by the Board of Directors. Today, the official ISOQOL Dictionary is available in English and Portuguese, with other translations in-progress.
Questions? Comments? Concerns?
Reach out to us via the form below or visit our Contact Page for additional ways to contact us.
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.