Why Join ISOQOL?
Find Your Community
ISOQOL members cultivate global connections and form lifelong bonds with fellow professionals from a diverse group of industries, sectors and fields who seek to advance the science of HRQL.
Develop Your Career
Students, new investigators, retirees, and established or late-career professionals all have a place at ISOQOL. Members have special access to:
- Online and in person networking, collaboration, publication and speaking opportunities
- Professional mentor/mentee programs
- The most recent job openings related to HRQL research
- Participate in society governance
Learn and Educate
While many of ISOQOL’s education initiatives are open to anyone with an interest in the theory, methods, standards and best practices, or application of HRQL research, members receive discounted rates. By participating in Special Interest Groups (SIGs) and Committees, members are also able to directly influence the education opportunities available.
New health care trends and technologies are emerging rapidly with HRQL research playing an increasingly important role in health care decisions and policy. ISOQOL keeps members informed of the latest news through publications, online communications and in person events.
- Discounted registration for education and networking events, including the Annual Conference, Measuring What Matters Symposium, webinars and education courses
- Submission discount for ISOQOL’s official open access journal, Journal of Patient-Reported Outcomes (JPRO)
- An online subscription and discounted print subscription to the Quality of Life Research journal (QLR)
- Discounted access to the Patient-Reported Outcome and Quality of Life Instruments Database (PROQOLID)
- Leadership and volunteer opportunities
- Networking and collaboration opportunities through SIGs
- Exclusive access to the ISOQOL Member Directory
- Eligibility for awards and travel scholarships
Who Can Join ISOQOL?
Individuals at any career stage may join ISOQOL. Membership to ISOQOL is open and no application is required – all who want to join, can join.
Members represent the following fields:
- Academia: Anyone employed by or participating at a university or teaching facility.
- Clinical Practice: Anyone engaged in medical training or employed by a hospital, clinic, etc. This includes clinicians and health care personnel.
- Regulatory Agency: Anyone employed by a government or regulatory agency/organization.
- Business/Consultancy /Insurance Company: Anyone employed by a business entity that provides services in HRQL fields.
- Pharmaceutical/Biotech/Medical Device Company: Anyone employed by a manufacturing entity or biotech entity in HRQL fields.
- Patient Research Partners: Anyone who is a patient, represents a group of patients, or is affiliated with a patient advocacy group.
- Other: Examples include but are not limited to society and association staff
ISOQOL membership dues vary depending on the individual member’s background and career stage. We strive to ensure that membership is affordable for everyone.
Membership is available at the following annual rates:
Professionals in the field of HRQL and patient-centered outcomes (PCOs) qualify for this rate.
Regular membership offers full benefits and privileges including voting and the ability to hold leadership positions within the society.
Individuals who reside in an eligible developing nation or who have an annual income less than $15,000 (USD)/year qualify for this rate.
Special membership offers the same member benefits and privileges as regular membership, but at a discounted rate.
Patient Research Partner (PRP) Membership
$155.00 USD – Regular
$62.00 USD – Affiliate
Patient partners, professionals or individuals interested in supporting the purposes of ISOQOL and the field of HRQL and PCOs qualify for this rate.
Regular PRP membership offers the same member benefits and privileges as full membership.
Affiliate PRP membership offers limited membership benefits including membership to Committees, Task Forces and Special Interest Groups, but does not include the privilege of voting, or holding elected leadership positions, including holding a board seat.
Individuals who qualify for this membership type include anyone enrolled in:
- a full-time accredited training program in a relevant field
- a pre/postdoctoral program
- a resident program
- a fellowship program
Student/Trainee membership offers the same benefits and privileges as regular membership, but at a discounted rate.
Student/Trainee members must provide information about their education program, expected completion dates, and proof of status with their membership form or via their online profile.
Individuals who have retired and/or are no longer practicing in the field of HRQL and PCOs, but wish to continue contributing to the field and the society qualify for this rate.
Retired membership offers the same member benefits and privileges as regular membership, but at a discounted rate.
Volunteers gain valuable professional experience while also investing in the growth of ISOQOL and the field of HRQL research.
ISOQOL volunteers build their resumes, hone their leadership skills, and forge vital professional connections. In return, volunteers provide mentorship to early-career professionals, leadership to committees and strategic initiatives, expertise to scientific programs, and more.
Members from all professional backgrounds and career stages are invited to volunteer.
ISOQOL and our collaborative partners have both ongoing and time-limited volunteer opportunities. This page is continuously updated with new opportunities, so check back often. ISOQOL members also receive email alerts about volunteer opportunities.
Unless otherwise stated, you must be an ISOQOL member to volunteer for any of the opportunities below.
Peer review is an essential part of research publication. Although ISOQOL encourages all members to volunteer as a peer reviewer for either the Quality of Life Research Journal (QLR) or the Journal of Patient-Reported Outcomes (JPRO), you do not need to be an ISOQOL member to volunteer.
Associate Editors support and advise Editors-in-Chiefs by:
- Coordinating peer review
- Acting as a liaison between authors, reviewers and the Editorial Board
- Writing short editorials, news and research highlights
- Carrying out heavy technical editing of manuscripts
Associate Editor applicants are expected to have past experience as a peer reviewer. The appointment of applicants is subject to the approval of the ISOQOL Board of Directors.
Volunteers are expected to serve a three-year term. Associate Editors are eligible for stipends.
Call for Journal of Patient-Reported Outcomes Associate Editor
The Journal of Patient-Reported Outcomes (JPRO) is seeking to recruit a new Associate Editor to begin a three-year term in 2020.
We are seeking an Associate Editor with expertise in quantitative and qualitative methods and applications. We are also seeking expertise in the early development of patient experience measures, patient engagement measures, health related quality of life measures, and/or in cultural translations of these measures.
Preference will be given to those who have published some of that work in and served as a reviewer for the sister ISOQOL journal, Quality of Life Research or the JPRO. Associate Editors will be committed to working on the JPRO editorial board team to improve the quality of submitted papers and efficiency of manuscript processing and the impact of the journal.
Eligible persons will have published scientific works in the fields of patient-reported outcomes. Associate Editors need to be members-in-good standing of ISOQOL.
How to Apply
If interested, please send to the Co-Editors-in-Chief at your earliest convenience, but before 10 July 2020, your curriculum vitae and a cover letter stating your background in patient-reported experience measures, patient-engagement, and health related quality of life research, your experience as a reviewer and editor, your areas of expertise, and your reasons for seeking the role of Associate Editor for the journal.
David Feeny, PhD
Ron D. Hays, PhD
JPRO and QLR each have two Editor-in-Chiefs (EICs). EICs are responsible for the overall editorial policy, planning and coordination of the journal. The day-to-day responsibilities of an EIC include:
- Initial screening of manuscript submissions for relevance and quality
- Assignment of manuscripts to members of the Editorial Board (including him/herself) for further peer review
- Maintaining close contact with the editorial office at Springer, which coordinates the logistics of the editorial management process
- Advising the editorial board and the editorial management team on matters arising both of a general policy nature, and regarding specific manuscripts.
The responsibilities and tasks of the EICs are primarily scientific in nature. Responsibility for the business and financial management of the journal rests with the publisher, the ISOQOL board and the ISOQOL executive management team. The editorial management process is fully automated with excellent logistical support provided by Springer.
EIC applicants are expected to have past experience as an Associate Editor. The appointment of applicants is subject to the approval of the ISOQOL Board of Directors.
Volunteers are expected to serve a four-year term and can expect to spend a minimum of 10 hours per week on the journal. Editors-in-Chief receive stipends.
There are currently no open Editor-in-Chief positions. An official call for volunteers will be released to the membership when there is an opening.
Board of Directors
The nominations period for two opening Directors-at-Large positions and the President Elect position is now closed. An official call for volunteers will be released to the membership when there is an opening.
Board Duties and Responsibilities
All board members are expected to attend two face-to-face meetings; one just prior to the Annual Conference and a second mid–year meeting. Expenses to travel to the board meeting not coinciding with the Annual Conference are covered by ISOQOL. Two conference calls are also required, along with any agreed-upon project work.
President Elect Position
The President-Elect will serve a one-year term (2020-2021). The President-Elect will assume the Presidency at the 2021 Annual Conference and will serve a two-year term as President (2021-2022). Upon completion of the term as President, a one-year term as Past-President will be served (2022-2023). This position is a four (4) year commitment.
Duties for the President-Elect/Past President include:
- Serve on the Executive Committee and attend monthly calls.
- Serve in the absence of the president.
- Perform such duties as identified in the bylaws or assigned by the president.
- Serve as Chair of the Nominating Committee.
Duties for the President include:
- Serve as the chief elected officer over the organization.
- Attend weekly calls with Executive Director.
- Preside over all meetings or identify a designee.
- Interface with the executive director, board of directors, executive committee, and committees.
- Appoint ad hoc committees or task forces.
- Appoint committees in accordance with bylaws.
- Serve as the primary spokesperson for the Board of Directors and the Society.
Board members actively promote the mission of ISOQOL and manage and oversee ISOQOL’s Strategic Plan, business strategies, and all activities developed through the various working groups of ISOQOL. Each board member shall participate and lead in the activities of ISOQOL and serve as a council liaison.
Directors-at-Large shall serve a term of three (3) years and may not succeed themselves.
- Understand and promote the organization’s mission and bylaws, policies, goals and strategic plan to represent all ISOQOL members.
- Prepare for and attend the full board meetings for the purpose of ensuring good governance and strategic overview of ISOQOL.
- Support the President, Board of Directors, and Staff to strength programs and services and ensure legal and ethical integrity within the organization.
- Undertake various tasks determined by the Board including service as a board liaison to a committee, task force or program.
- Stay current on issues and trends impacting the organization and contribute to the discussion of documents provided at the board meetings.
- Serve as a council liaison to the committees, SIGs and/or task forces.
- Treat all information learned or shared at meetings as ISOQOL intellectual property.
- Take an active role in the annual scientific program by volunteering as a reviewer of abstracts, participant as a mentor in the mentor/mentee initiative and other areas where needed.
- Assist the ISOQOL office in activities to raise funds and resources for the Society’s activities.
Committees are charged with oversight of ongoing activities driven by the Strategic Plan and direction from the Board. ISOQOL members are encouraged to serve on a committee to lend their expertise and their voice to the society.
There are currently no open committee positions. An official call for volunteers will be released to the membership when there is an opening.
SIG chairs are charged with helping SIG members coordinate collaboration activities. They are also responsible for sharing projects with Board Liaisons to help determine when Board guidance is needed. For example, many SIG members collaborate on papers together. Your SIG chair and Board Liaison may recommend SIG papers meeting certain requirements to the Board for official ISOQOL endorsement.
SIG projects vary widely and so does the amount of commitment needed to particpate.
Calls for SIG chairs and SIG projects are coordinated by the SIGs themselves, therefore all calls for volunteers are issued via the Teamwork Message Boards.
ISOQOL is always open to new ideas! If you have an idea you think will be of benefit to ISOQOL members, then fill out this General Concept Proposal Form and email the completed form to email@example.com. As new concepts/initiatives are proposed, the ISOQOL Board of Directors will review the proposal to determine if the concept aligns with the ISOQOL Strategic Plan and budgets.
Abstract reviewers serve a vital role in the scientific program planning process by ensuring the quality of educational content presented at the ISOQOL Annual Conference. Volunteers review each proposal or abstract based on the provided reviewer criteria and provide both a rating and comments to assist the Scientific Program Committee with abstract selection. Serving as a reviewer is an excellent way to build your resume, share your expertise and support ISOQOL.
Volunteers are expected to serve as a reviewer during a three to four week period. Specific review periods are posted on the Annual Conference page.
Volunteers are assigned 5-15 abstracts to review and can choose to complete reviews quickly in one sitting or slowly throughout the review period.
The call for 2020 abstract reviewers is now closed.
ISOQOL supports our members by facilitating the matching of mentors and mentees and providing an opportunity for them to meet in person at the Annual Conference. Mentor-mentee matching helps new members navigate the society’s diverse network, supports the development of meaningful professional connections, and helps advance the HRQL field as a whole. Mentoring is an exciting volunteer opportunity, and a great way for seasoned professionals to give back and support the next generation of HRQL professionals.
Registration for the Annual Conference is required to participate as a mentor or mentee. Before the Annual Conference, the Mentor/Mentee Co-Chairs carefully match mentors to mentees. Normally, mentors and mentee will meet in-person at the Annuall Conference. With the move of the Annual Conference to a virtual format in 2020, mentors and mentee will meet via video conferencing before the conference starts. From that point, mentors and mentees decide together how to continue their professional relationship. Some mentors and mentees matched by ISOQOL continue to stay in touch for many years.
Mentors are individuals established in their field, and are typically longtime members of ISOQOL. They provide guidance to mentees with the overall objective of making a positive impact on their development as professionals. The typical ISOQOL mentor is someone who is passionate about sharing advice and knowledge. Mentors often help mentees define their professional goals and can then serve as an accountability partner to help the mentee meets those goals.
Mentees are individuals in training, recent graduates or new ISOQOL members. The typical ISOQOL mentee is someone who is passionate about learning, is seeking career advice and professional networking connections, and appreciates the time dedicated by the mentor.
Before the Annual Conference, ISOQOL office staff will connect each mentor/mentee pair to informally “e-meet” one another. Mentors and mentees are encouraged to connect several times by phone or email before meeting face-to-face at the conference.
At the Annual Conference, ISOQOL hosts a casual Mentor/Mentee Reception for participants to come together and connect face-to-face. Relationships are fostered at this event, where individuals share their work, career ambitions, and questions and answers. From there, mentors and mentees can stay in touch and continue to develop their mentorship long-term as desired.
Registration information for the 2020 Mentor/Mentee Program will be posted as it is available.
ISOQOL members have a strong influence on the Annual Conference scientific program. In addition to participating in general scientific sessions, ISOQOL members can also submit proposals for Symposia and Workshops. Visit the Annual Conference page for in-depth instructions on submitting proposals.
By submitting a workshop proposal, you are indicating you have a developed educational session that you (along with possible co-authors) intend to present. You will collaborate independently with these co-authors to develop the materials for the workshop and are available to attend the Annual Conference.
When submitting a symposium proposal, the proposed moderator must provide a synopsis of the overall session. In addition, each co-presenter must submit an abstract that ties to the symposium topic. The moderator will collaborate (independently from ISOQOL staff) with the co-presenters to develop the talks for the 90 minute session.
Workshop and symposium proposal submission for the 27th Annual Conference is now closed.
All ISOQOL webinars are planned and presented by ISOQOL member volunteers. Many are the collaborative efforts of one or more Special Interest Groups (SIGs).
If you have an idea for a webinar, please fill out and submit a Webinar Planning Form and send it to firstname.lastname@example.org. If you need help finding speakers or fine-tuning a topic, Teamwork is a great resource for seeking help from fellow members. Many SIGs use the message thread feature in Teamwork to develop webinars.
By submitting a proposal, you are also volunteering to act as the Moderator for the webinar. Moderator responsibilities include:
- Participating in a minimum of three planning calls over the course of 2-3 months
- Securing speakers
- Providing a short introduction at the beginning of the webinar
- Fielding questions at the end of the webinar.
- Working with ISOQOL staff on marketing and logistical details
Measuring What Matters Topic Proposals
ISOQOL members are the driving force behind ISOQOL’s annual Measuring What Matters (MWM) Symposium. A call for topic proposals is released to the membership every August.
By submitting a proposal, you are also volunteering to act as chair of the MWM Symposium Planning Committee if your topic is selected. Chair responsibilities include:
- 18 months of planning calls with ISOQOL staff:
- Monthly calls for the first six months
- Biweekly calls for the final 12 months
- Working with ISOQOL Staff, co-chairs are responsible for:
- Developing a program outline with topics
- Developing the curriculum
- Developing session learning objectives
- Sourcing speakers/presenters
- Leading teleconferences with symposium speakers
Proposal Submission is currently closed.
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.