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Endorsed Papers

To learn more about ISOQOL endorsements, visit Who We Are to read the Publication Authorship & Endorsement policy in the ISOQOL Policy Manual.


Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings

Prospective application of implementation science theories and frameworks to inform use of PROMs in routine clinical care within an integrated pain network

The utility of the implementation science framework “Integrated Promoting Action on Research Implementation in Health Services” (i-PARIHS) and the facilitator role for introducing patient-reported outcome measures (PROMs) in a medical oncology outpatient department

A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR)

Using implementation science to inform the integration of electronic patient-reported experience measures (ePREMs) into healthcare quality improvement: description of a theory-based application in primary care (Subscription)


Good practices for the translation, cultural adaptation, and linguistic validation of clinician-reported outcome, observer-reported outcome, and performance outcome measures


Comparison of Psychometric Approaches to Evaluating the PROMIS Depression Instrument (A collection of papers)

Trials with proxy-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR) (Subscription)


Reflection paper on copyright, patient-reported outcome instruments and their translations

Trials with patient-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR) (Subscription)

Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures

Towards the use of mixed methods inquiry as best practice in health outcomes research


Pooling of cross-cultural PRO data in multinational clinical trials: How much can poor measurement affect statistical power? (Subscription)


Methods for interpreting change over time in patient-reported outcome measures (Subscription)

ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research (Subscription)


The Use of Patient-reported Outcomes (PRO) Within Comparative Effectiveness Research


Online Networking

Event Networking




Multinational Center for Quality of Life Research (Russia) 

Turkish Society for Quality of Life Research (SAYKAD)

International Society for Quality of Life Research – Netherlands (ISOQOL-NL)

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.