From the Annual Conference Co-Chairs

Scientific content of the 2022 Annual Conference
By Lene Kongsgaard Nielsen, MD PhD, and Kathrin Fischer, MSc PhD

We are very honored to be the scientific program committee co-chairs of the ISOQOL 29th Annual Conference.
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   Important Dates

9 November:
Live Webinar – Traversing the Last Mile for Regulatory Qualification of Sensor-derived Digital Endpoints [Read More]

17 November:
Turbo Charging the Development of Digital Health Technologies through Pre-competitive Collaboration and Internal Upskilling [Read More]

30 November:
Annual Conference registration & access to the digital poster hall closes [Read More]

   Science TALK

The PRO ethics guidelines: Ethical considerations for PRO clinical research to promote and protect participant and researcher welfare [Read More]

Well-being Trajectories of Cancer Patients Undergoing Radiation Therapy: One treatment Does Not Fit All [Read More]

Developing a measure to assess individual well-being [Read More]

As easy as 1, 2? Exploring a 2-step screening approach for depressive symptoms in liver transplant recipients [Read More]

Repercussions of COVID-19: Prioritization of surgeries during times with scarce resources [Read More]

IN SEARCH OF THE HOLY GRAIL OF GRAPHS: Is there a best way to visualize clinical trial PRO results to patients? Findings from a literature search [Read More]

A Scoping review of PROMs as prognostic factors in non-small cell lung cancer [Read More]

Mental and social health of children and adolescents in the Dutch general population before and during the COVID-19 pandemic [Read More]

A simple patient-reported score, an unexpected recovery indicator [Read More]

Health related quality of life in parents of adolescents one year into the COVID-19 pandemic: A two-year longitudinal study [Read More]

Shifting perspective: facilitating response shift  [Read More]

Development and Validation of the Patient-reported Outcome for Elderly HIV (EPRO-HIV) [Read More]

The Hypo-RESOLVE quality of life (QOL) instrument: A study protocol for the development of a new preference-based measure designed to capture the impact of hypoglycaemia on QOL [Read More]

Consistency Analysis of Perioperative Self-reported Pain Scores and Clinical Records in Patients with Lung Cancer [Read More]

Strategies used to engage children in health research, and the challenges to be faced [Read More]


Psychometric Methods for Intensive Longitudinal Data [Read More]

Attend the Industry SIG Symposium [Read More]

Welcome to the Statistics SIG! [Read More]

Regulatory and Health Technology Assessment Engagement (R&HE) SIG’s comments on FDA Draft Guidance 3 [Read More]

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The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.