In 2019, the Psychometrics Special Interest Group (SIG) developed a collection of papers that was published in the Journal of Patient-Reported Outcomes (JPRO). The set of papers originated from SIG members discussing different approaches to analyzing the measurement...
Claire Snyder, PhD; Michael Brundage, MD MSc; and Norah Crossnohere, PhDPROTEUS Leadership Patients, clinicians, health system administrators, regulators, and policy makers value information regarding the impact of disease and treatment from the perspective of...
Rebecca Mercieca-Bebber, PhDNHMRC Clinical Trials CentreThe University of Sydney Clinical trials are increasingly being listed on trial registries, allowing patients and stakeholders to search for relevant trials to participate in, and to keep informed of research...
Jens Lehmann, MScMedical University Innsbruck For ISOQOL 2021, our team from the Medical University of Innsbruck shared our research on a web-based patient portal, which we developed for patients with hematological malignancies – cancers affecting the blood, bone...
Sarah E. Hughes, PhDCentre for Patient Reported Outcome Research (CPROR), University of Birmingham Karen MatthewsPublic Contributor, LongCovidSOS on behalf of the Therapies for Log COVID (TLC) Study Team “Having a questionnaire that takes into account the relapsing...
Melanie Hawkins, PhDSwinburne University of Technology I am grateful to the 2021 ISOQOL conference committee and reviewers for recognising the usefulness of my work by presenting me with the ISOQOL 2021 New Investigator Oral Award. Data from patient-reported outcome...
