C. Allyson Jones1,2 , Geneviève Jessiman-Perreault1 , Ania (Anna) Kania-Richmond1,3 , Amy Metcalfe 3,4 , David A. Hart1,5, Lauren A. Beaupre1,2 , on behalf of the Bone and Joint Health SCN 1 Bone and Joint Health Strategic Clinical Network, Alberta Health Services,...
Lillian SavicFACITtrans The purpose of this study was to translate and linguistically validate the EXAcerbations of Chronic pulmonary disease Tool (EXACT) instrument into Hausa, Igbo, Swahili, and Yoruba for use with patients in Kenya and Nigeria, as well as to...
Margaret-Ann TaitUniversity of Sydney In 2016, Australia passed legislation allowing cannabis use for medicinal purposes, and since then more than 800,000 patients have received medicinal cannabis prescriptions. As patient-reported outcomes researchers, we wanted to...
Christy Zigler, PhD MSEdDuke University School of Medicine This project really stared with the Foundation for Angelman syndrome Therapeutics (FAST), a patient advocacy organization. They came to Duke’s Center for Health Measurement in 2018 with a goal: to improve the...
Eline AlonsHU University of Applied Sciences The ability to communicate is a prerequisite for participating in daily life. Yet, communication does not always come naturally. Some children grow up with communication problems, such as difficulty speaking (e.g.,...
Rubina Shah, MSc MPH;1 Andrew Finlay, FRCP;1 and Sam Salek, PhD RPh FFPM FRPS2 1 Cardiff University, School of Medicine2 School of Life & Medical Sciences, University of Hertfordshire The impact of disease on the quality of life of patients’ partners and family...
