The pre-conference day, Sunday 18 October, presents a packed agenda with additional learning and networking opportunities.
Limited tickets remain for educational workshops and SIG symposia, so sign up today! Add an event ticket on to your overall conference registration, or register for single events at the non-conference attendee rate. View event ticket rates here.
Check out this year’s featured workshops and the SIG symposia below! View full descriptions and speaker information for the workshops here and the SIG symposia here.
Half-Day Workshops
Workshop 5: Approaches to equitable people-centred health measurement and analysis
Sunday 18 October | 9:00 am – 12:00 pm
Theories and practices of people-centred healthcare emphasize the importance of research on equity and individual differences as foundational to understanding mechanisms and outcomes in diverse populations. The goal of this workshop is to provide practical guidance on approaches to equitable, people-centred measurement and analysis of health and quality of life.
Workshop 7: Collecting, analyzing and reporting concept elicitation data using content analysis for concept elicitation (CACE) to select or develop clinical outcome assessment (COA) measures
Sunday 18 October | 1:00 pm – 4:00 pm
Attendees will obtain in-depth working knowledge about content analysis for concept elicitation (CACE) as a recent qualitative data analysis and reporting method to support the concepts assessed by clinical outcome assessment (COA) measures (e.g., patient-reported outcome measures [PROMs]). The workshop will consider different concept elicitation data collection methods in relation to FDA Patient-Focused Drug Development guidance and compare CACE to other analysis techniques.
Workshop 9: The practical implementation of Digital Health Technology in trials with pediatric patients living with Rare Diseases
Sunday 18 October | 1:00 pm – 4:00 pm
This workshop welcomes clinical researchers, HEOR scientists, trial operations leads, patient engagement professionals, and regulatory/HEOR stakeholders working with DHTs and Clinical Outcome Assessments (COAs) in rare diseases. Join us to learn practical skills to define, select, validate, and implement fit‑for‑purpose DHT endpoints in pediatric rare disease clinical research.
SIG Symposia
The 2026 Annual Conference will hold five concurrent symposia hosted by ISOQOL Special Interest Groups (SIGs) on the pre-conference day, Sunday 18 October. These symposia provide educational content related to the special interest and expertise of the groups hosting the session.
To ensure optimal crowd control for an enhanced attendee experience, a ticket is required for each SIG symposium. Purchase yours today during the registration process!*
View a full list of SIG symposia speakers at the conference website. This year, the following topics have been selected:
- SIG Symposium 1: How can we improve the use of patient experience data in health technology assessment?
Presented by the Regulatory and Health Technology Assessment Engagement SIG - SIG Symposium 2: Integrating Patient Preferences Into Clinical Practice
Presented by the Clinical Practice SIG & Health Preference Research SIG - SIG Symposium 3: Score Interpretation in Pediatric PROMs: Special Considerations for Measurement, Meaning, and Use
Presented by the Child Health SIG - SIG Symposium 4: Patient Engagement: Who, what, why, when, where and how.
Presented by the Patient Engagement SIG - SIG Symposium 5: Communicating Patient Experience Data for Impact: Strategies for Generating and Disseminating PED to Maximize Stakeholder Engagement
Presented by the Industry SIG
*If you have already registered for the Annual Conference, please use your unique amendment link within the registration confirmation email to return to your registration form and purchase a workshop or SIG Symposium ticket.
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.