Publications
Stay informed about the latest advancements with ISOQOL’s open-access journal, endorsed journal, and multiple guides, requests for information responses, and endorsed papers. ISOQOL also boasts a dictionary with multiple translations that standardizes more than 500 terms.
Journals
ISOQOL publishes the Journal of Patient-Reported Outcomes (JPRO), an international, open access, multi-disciplinary journal dedicated to advancing the science and practice of patient-reported outcomes (PROs).
Quality of Life Research is an ISOQOL-affiliated journal, owned by Springer. It is an international, multidisciplinary journal of original research, theoretical articles, and methodological reports related to the field of HRQL, in all the health sciences.
Journal of Patient-Reported Outcomes
Quality of Life Research
ISOQOL Dictionary for Quality of Life and Health Outcomes Measurement
The idea of creating a dictionary of terms used in our field arose from the Uruguay meeting in 2008. An encounter with a discouraged student who had just realized that, although seasoned members from our society distinguished between quality of life (QOL) and health related quality of life (HRQL), novices and researchers from other fields did not. The idea of a dictionary as a invaluable resource for people working in the field of HRQL and health outcomes was enthusiastically received by the Board of Directors. Today, the official ISOQOL Dictionary is available in English, Portuguese and Simplified Chinese, with other translations in-progress.
Other Publications
Guides
Request For Information Responses
SIG-, Volunteer-, and Collaboration-driven Papers
2021
2020
2019
Trials with proxy-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR) (Subscription)
2018
Reflection paper on copyright, patient-reported outcome instruments and their translations
Trials with patient-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR) (Subscription)
Towards the use of mixed methods inquiry as best practice in health outcomes research
2015
Pooling of cross-cultural PRO data in multinational clinical trials: How much can poor measurement affect statistical power? (Subscription)
2013
Methods for interpreting change over time in patient-reported outcome measures (Subscription)
2012
The Use of Patient-reported Outcomes (PRO) Within Comparative Effectiveness Research
ISOQOL Newsletter
News Update
ISOQOL’s bimonthly newsletter provides up-to-date information related to the organization, including events, journals, and more. All articles in the News Update are archived on the News page.
QualityTALK
This science-focused e-newsletter was published from March 2022 through April 2025. Browse the archived issues here.
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.