A full-day education course, full-day workshops and half-day workshops will be held on the pre-conference day, Wednesday 19 October, and are now open for registration.

These events are great way to enhance your learning and networking experience at the conference. They are also a great option for those who are not able to attend the entire Annual Conference but still want to participate in important conversations about health related quality of life research.

The IPRO Education Course and workshops are ticketed events and require pre-registration. You may add your pre-conference event registration on to your overall conference registration, or register for single events at the non-conference attendee rate. View further information and ticket prices below.

Please note: because event times overlap, attendees are limited to either one full-day event ticket or one morning workshop ticket and one afternoon workshop ticket (half-day events).

Full-Day Education Course

Intro to Patient-Reported Outcomes (IPRO Course)

Choosing the right set of PROs can be challenging as there are many options, each with advantages and disadvantages. This one-day, intensive and interactive educational course offers a curriculum that will provide a basic level introduction to the why and how of using PROs in research. Attendees will be given the opportunity to apply their learning throughout the course.

Full-Day Workshops

Two full-day workshops will be held at the Annual Conference:

  • Workshop 1: Analysis of longitudinal Patient-Reported Outcome (PRO) measures in randomized controlled trials with missing data
  • Workshop 10: Patient-reported outcomes in clinical trials – what questions are we asking and how do we understand the results; how the estimand framework with sensitivity analyses can help: A 2-Part Series

Half-Day Workshops

Eight half-day workshops (four in the morning, and four in the afternoon) are available:

  • Workshop 2: The ABCs of IRT – An Introduction to Item Response Theory with PRO Applications
  • Workshop 3: Machine-Learning Methods for Differential Item Functioning in Patient-Reported Outcomes
  • Workshop 4: Designing training and education to facilitate sustained provider adoption of patient-reported outcomes in routine practice
  • Workshop 5: Balancing measurement science with user experience practices in eCOA migration
  • Workshop 6: Visualize your research! Learn how to build, deploy, and implement interactive online dashboards to increase protocol adherence, monitor patient-reported outcomes (PROs), and inform clinical decision making

IPRO Course and Workshop Ticket Prices

Tickets are available at Advanced Registration rates through 19 September:

IPRO Course

  • Regular, Conference Attendee: $350
  • Student, Retired, Special, Patient Research Partner, Conference Attendee: $150
  • Regular, Non-Conference Attendee: $450
  • Student, Retired, Special, Patient Research Partner, Non-Conference Attendee: $200

Full-Day Workshops

  • Regular, Conference Attendee: $225
  • Student, Retired, Special, Patient Research Partner, Conference Attendee: $75
  • Regular, Non-Conference Attendee: $300
  • Student, Retired, Special, Patient Research Partner, Non-Conference Attendee: $115

Half-Day Workshops

  • Regular, Conference Attendee: $150
  • Student, Retired, Special, Patient Research Partner, Conference Attendee: $50
  • Regular, Non-Conference Attendee: $200
  • Student, Retired, Special, Patient Research Partner, Non-Conference Attendee: $75

Tickets are limited, and prices increase after the Advanced Registration deadline, so get your tickets soon!

Registration Details

  • Workshop 7: Qualitative in-trial or exit interview methods to elicit supplementary patient experience data during clinical studies
  • Workshop 8: Arguing for validity: structured evidence-based validation practice to advance PRO measurement
  • Workshop 9: Engagement and Activation of Youth in Paediatric PROM/PREM research

Visit the Annual Conference website for full descriptions and speaker lists for all workshops.

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.