Thank you to everyone who participated in the Silent Auction at the 2026 Annual Conference in Prague! Bids for the two training courses will remain open through 10 December 2026. We invite you to participate by placing your bid today!
All proceeds for the Silent Auction go toward the ISOQOL Travel Scholarship Program. Help us award more travel scholarships next year to:
- Patient Research Partners
- Members from Developing Countries
- Students and New Investigators
Interpretation of Change in Rare Disease Training Course
Donated by
Rare-disease clinical development requires an approach to interpreting change that is both methodologically rigorous and flexible enough to address small samples, heterogeneous presentations, variable disease trajectories, and multiple respondent perspectives. Building on the FDA Patient-Focused Drug Development guidance in rare patient populations, this workshop will examine how patient-centered qualitative evidence and quantitative psychometric analyses can be integrated to establish meaningful change in clinical outcome assessment endpoints and support fit-for-purpose, totality-of-evidence regulatory decision-making.
What is included
Two 4-hour sessions, with all materials, focused on interpreting change in rare disease through PFDD guidance and endpoint evidence generation, with emphasis on the FDA’s rare-disease regulatory science framework, fit-for-purpose clinical outcome assessment and clinical endpoints, as well as totality-of-evidence decision-making.
Psychometrics for Non-Psychometricians Training Course
Donated by
This certificate entitles the bearer to one full day of live, interactive training in the fundamentals of psychometrics, written for researchers, patient advocates and industry teams who work with COA and patient-reported data but have no formal measurement background, together with eight hours of preparation time to tailor the material to the holder’s own instruments, therapeutic area and questions.
- Stated Value: €12,000 (approximately $14,000 USD)
- Participants: Up to 15
- Book by: Within 12 months
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.