Register today to attend Measuring What Matters, a symposium focused on how Australia uses clinical (quality) registries in oncology and the role of patient-reported outcomes measures (PROMs) as part of these registries. Scheduled for 18 July 2023, this virtual event will consist of session presentations and live Q&As with the speakers. 

The registration deadline is 17 July 2023 at 11:59 pm CDT. More information about the symposium’s theme, registration rates, schedule and sessions is available below.

Registrants will access and attend the virtual symposium through the ISOQOL e-learning platform

About the Symposium

Cancer is a leading cause of morbidity and mortality globally. Clinical (including quality) registries are recognized as important tools for monitoring and evaluating quality of care by measuring variation from what is considered evidence-based, optimal practice (often defined a priori by a consensus process involving clinical experts and consumers). The complementary use of clinical and patient-reported data provides a comprehensive assessment of the impact of compliance, and through insights into variations between institutions (through benchmarking performance), registries provide invaluable opportunities for implementation research.

The 2023 Measuring What Matters virtual symposium focuses on clinical (quality) registries in oncology and explores the role of patient-reported outcomes measures (PROMs) as part of these registries.


  • Session 1: Overview of clinical registries in Oncology and Patient-reported outcomes data
  • Session 2: International examples of PROMs in oncology clinical registries
  • Session 3: The role of clinical quality registries in integrating PROMs into clinical care

Registration Rates

  • Members: $250
  • Non-members: $350
  • Student/Special/Retired Members: $150

Together with:

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.