Development and Stakeholder Perspectives of Core Outcomes Sets
Core Outcome Sets (COS), standardized collection of patient outcome measures prescribed for specific populations, are being requested and defined by a range of stakeholders including researchers, regulators, payers, physicians, patients, and health care systems with increased frequency. The methods to define and maintain COS are varied. The differing perspectives of stakeholders may influence clinical research care and medical product development. While outcomes data from COS may help to better evaluate outcomes and quality of care in a standardized way, there remain questions regarding development, implementation, and use of COS, and acceptability of such endpoints for key stakeholders. Measuring What Matters provides a valuable space for exploration of these issues from a variety of perspectives.
Monday, 27 July | 1:00 pm – 6:30 pm
Tuesday, 28 July | 8:30 am – 3:30 pm
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.