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Scaling up a measurement model for rare disease clinical trials: Expanding the ORCA measure
By Christy Zigler, PhD MSEd
Item bank for measuring communicative participation
By Eline Alons
Measuring QOL for patients’ family members
By Rubina Shah, MSc MPH
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Events
Deadline Extended! Submit your topic proposal for MWM 2023
The submission deadline for Measuring What Matters 2023 topic proposals is now 27 September 2021.
What’s New at ISOQOL 2021
Join these new sessions at the Virtual Annual Conference!
Plenary Session Spotlight: 2021 Annual Conference
This year’s Plenary Sessions embody the conference theme of Making valid decisions: Learning from Patient Reported Outcomes
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The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.