Per aspera ad astra: Advancement in measuring child health

Measuring health of children and adolescents has substantially progressed but remains a challenging adventure. In the fourth session of the symposium, the potentials and limitations of selected, advanced approaches to health status assessment in different pediatric populations will be presented.

These novel solutions are related to alternative forms in which data are collected (e.g. using cartoon tools), what kind of data are recorded (e.g. behavioral data such as laughter), or which metrics are applied (e.g. multiple-group item response theory). Implications for interpretation and practice are discussed.

Session Speakers:

Holger Muehlan, PhD

University of Greifswald

Holger Muehlan, PhD, is a Senior Research Fellow in the Department of Health & Prevention at the University of Greifswald, Germany. Since his thesis on pediatric quality of life assessment his interest in health outcome assessment has continued to grow, especially in regard to pediatric health indicators and digital health applications. Some of his current research activities are directed toward the development of setting-sensitive outcome assessments in digital health contexts, the use of behavioral data for health assessment in small children, as well as ecological momentary assessment. Currently he serves as Chair of the ISOQOL Child Health SIG.

Aaron Kaat, PhD

Northwestern University

Dr. Kaat is an Assistant Professor in the Department of Medical Social Sciences at Northwestern University. His expertise is in measure development, adaptation, and validation for chronic and developmental conditions typically diagnosed in childhood—especially intellectual and developmental disabilities. Dr. Kaat is particularly interested in novel solutions to the measurement challenges associated with younger children and individuals with cognitive impairments: for example, multiple-group psychometric models, and methods to account for informant effects. He is particularly interested in how the purpose of assessment should guide measure selection and how modern measurement theory can improve these practices.

Register today to attend Measuring What Matters, a symposium focused on patient-reported outcome measures (PROMs) in child health. Scheduled for 18-19 July 2022, this virtual event will consist of session presentations and live Q&As with the speakers. Recordings of the symposium will be archived for future access for registrants unable to attend the live presentations in July. 

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.