Measuring What Matters 2022

July 18-19, 2022 | Chicago/O’Hare, Illinois, USA*

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Measuring What Matters in Child Health: Challenges, Developments and Opportunities

There are many challenges that arise in the use of patient reported outcome measures (PROMs) in pediatric populations. These include age and developmental differences, response shift associated with developmental changes and illness trajectories, identifying the best informant(s) (the child, a parent/caregiver, healthcare professional), and understanding what concepts are important to children and at what age they can reliably self-report. The aim of this symposium is to provide a forum to share and debate current conceptualizations of quality of life in children, methodological and operational challenges commonly encountered in measurement and best practice methods for addressing these.


Monday, 18 July | 1:00 pm – 5:30 pm
Tuesday, 19 July | 9:00 am – 3:30 pm

*ISOQOL is optimistically planning to hold the 2022 Measuring What Matters Symposium in Chicago/O’Hare from 18-19 July 2022. The ISOQOL Board of Directors will assess the feasibility of an in-person meeting early Spring 2022. If anything changes, it will be announced to ISOQOL membership at that time.

Measuring What Matters Symposium Committee Co-Chairs

Nalin Payakachat, BPharm MS PhD

Eli Lilly and Company
Arkansas, United States

Rob Arbuckle

Adelphi Values
Patient-Centered Outcomes
United Kingdom

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.