Measuring What Matters in Child Health: Challenges, Developments and Opportunities
The 2022 Measuring What Matters Symposium was a huge success! We had approximately 100 registrants, as well as great engagement and participation in the live Q&As.
If you were not able to join the live symposium, recordings are now available for purchase on the ISOQOL e-learning platform. The session presentations include:
- Session I: Does one size actually fit all? Conceptual fuzziness of QoL/HRQoL/functioning in pediatrics
- Session II: Measurement framework and approaches for different age ranges and conditions in pediatric populations
- Session III: How to meaningfully discuss meaningful change with children: Qualitative approaches
- Session IV: Per aspera ad astra: Advancement in measuring child health
- Session V: Why is it so challenging to measure preference-based HRQoL in children? Potential measurement problems and challenges
- Session VI: Stronger together: Patient engagement and integration of PROs in pediatric clinical practice and research prioritization
The cost to purchase the symposium on-demand is available below.* If you registered for the live event, you can access the recordings at no additional charge.
- Members: $250
- Non-members: $350
- Student/Special/Retired Members: $150
About the Symposium
There are many challenges that arise in the use of patient-reported outcome measures (PROMs) in pediatric populations. These include age and developmental differences, response shift associated with developmental changes and illness trajectories, identifying the best informant(s) (the child, a parent/caregiver, healthcare professional), and understanding what concepts are important to children and at what age they can reliably self-report. The aim of this symposium is to provide a forum to share and debate current conceptualizations of quality of life in children, methodological and operational challenges commonly encountered in measurement and best practice methods for addressing these.
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.