Intensive longitudinal measurement:

Methodologies for collecting, analyzing and interpreting patient-generated data from daily diaries, wearables and sensors

The virtual Measuring What Matters Symposium was a huge success! We had record attendance with 168 registrants as well as engaging participation in the live Q&As.

If you were not able to join the live symposium in July, recordings are now available for purchase. The session presentations include:

The cost to purchase the event recordings is the same as the individual registration rate*. If you registered for the event, you can access the recordings at no charge.

*Registration Rates

  • Members: $250
  • Non-members: $350
  • Student/Special/Retired Members: $150

About the Symposium

As we collect data more frequently in both clinical and real-world studies, patients are often assessed using intensive longitudinal measurement techniques, such as daily diaries, wearable devices, and/or sensor technology. This allows the recording of data at regular intervals between site visits, the capture of acute events as they occur for clinical monitoring, and/or continuous monitoring in order to answer research questions that were previously unanswerable through traditional data collection.

Despite our ability to collect more data, our knowledge about evaluating new data collection techniques and using these rich data sources effectively is limited.

This symposium covers

  • patient-centered approaches to endpoint selection/development
  • the subsequent identification of appropriate methods and technology for assessing these endpoints
  • the different ways we currently summarize this data and how this leads to a loss of information
  • ways to maximise our data using improved summary methods and more complex modelling techniques

Attendees will leave this symposium with new insights and better understanding on how to better use, analyze, and interpret intensive longitudinal data generated from daily diary and wearable devices in a more effective and complementary manner.

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.