Education
ISOQOL’s education initiatives are open to anyone with an interest in the theory, methods, standards and best practices, or application of health related quality of life (HRQL) research. Members receive complimentary access to ISOQOL’s education library of past virtual symposia and select webinars. Additionally, ISOQOL offers an introductory online education course on PROs available for purchase.
Virtual Symposia
Formerly known as Measuring What Matters (MWM), the ISOQOL symposia program was established in 2016 as an in-person event. It was later made into a virtual event, hosted through ISOQOL’s online education program. Virtual symposia focus on specific/niche topics.
Past Symposia
1st Virtual Symposium
Advancements in the Engagement and Preparation of Healthcare Providers for the Routine Integration of PROMs in Clinical Practice
6-8 May 2025
Virtual Event
2025 Program and Archived Sessions
7th Measuring What Matters Symposium
Measuring What Matters in Social Determinants of Health for Chronic Illness
16-17 July 2024
Virtual Event
2024 Program and Archived Sessions
6th Measuring What Matters Symposium
Measuring What Matters in Oncology: Translating research into clinical practice using clinical registries
18 July 2023
Virtual Event
2023 Program and Archived Sessions
5th Measuring What Matters Symposium
Measuring What Matters in Child Health: Challenges, Developments and Opportunities
18-19 July 2022
Virtual Event
2022 Program and Archived Sessions
4th Measuring What Matters Symposium
Intensive longitudinal measurement: Methodologies for collecting, analyzing and interpreting patient-generated data from daily diaries, wearables and sensors
19-20 July 2021
Virtual Event
2021 Program and Archived Sessions
3rd Measuring What Matters Symposium
Development and stakeholder perspectives of core outcomes sets
10 & 17 September 2020
Virtual Event
2020 Program and Archived Sessions
2nd Measuring What Matters Symposium
How should we be measuring functioning as a marker of clinical benefit in clinical trials?
23 – 24 July 2018
Washington, D.C., United States
2018 Program
Inaugural Measuring What Matters Symposium
Bridging industry regulatory needs with what matters to patients and clinicians
25 – 26 July 2016
Washington, D.C., United States
2016 Program
Webinars
ISOQOL webinars cover both core concepts behind HRQL research and emerging trends in the field. Browse the webinar library below.
Browse Webinars in Chronological Order
Regulatory Strategy and Analytical Considerations for Digital Health Technology Use – Webinar #1
Traversing the Last Mile for Regulatory Qualification of Sensor-derived Digital Endpoints
Revealing hidden change through a response shift lens – Webinar #1
Revealing hidden change through a response shift lens: The role of individualized methods
Assessing and Improving the Reliability of our PROs in Complex Multifaceted Designs – An Introduction to Generalizability Theory
Description Reliability is a key property that needs to be assessed with all PROs, as outlined in regulatory guidance documents as well as psychometric best practice. That is, to what extent are my PRO scores reproducible or consistent across facets of interest, e.g....
Good Practices for the Translation, Cultural Adaptation, and Linguistic Validation of Clinician-Reported Outcome, Observer-Reported Outcome, and Performance Outcome Measures
Description Within current literature and practice, the category of patient-reported outcome (PRO) measures has been expanded into the broader category of clinical outcome assessments (COAs), which includes the subcategory of PRO, as well as clinician-reported outcome...
Using patient-reported outcome measures to estimate the cost-effectiveness of healthcare interventions
Date of Live Webinar 17 November 202110:00 AM CST - 11:00 AM CST Because ISOQOL is an international society with members from all around the world and in numerous time zones, all webinars are recorded and made available to registrants within a few weeks of the live...
Incorporating PRO data to optimize dose in anti-cancer therapies
Description Exposure-response (E-R) analysis to inform optimal dose in early clinical development of oncology products has traditionally relied on adverse event-based clinician-reported Common Terminology Criteria for Adverse Events. As part of a broader effort to...
Online Education Course
For those looking to gain a better understanding of patient-reported outcomes (PROs), ISOQOL offers an introductory education course.
Introduction to Quality of Life and Patient-Reported Outcomes (IPRO Course)
Theory, Measurement and Applications
Collecting and acting upon Patient-Reported Outcomes (PROs) is one of the cornerstones of patient-centered care. PROs include symptoms, some aspects of function, health perception, health related quality of life and quality of life. Choosing the right set of PROs can be challenging as there are many options, each with advantages and disadvantages.
This intensive online course offers a curriculum that will provide a basic level introduction to the why and how of using PROs in research.
Intended Audience
This training is aimed at:
- Health professionals
- Medical scientists who are not experts in the use of PROs
- Consultants
- Pharmaceutical and medical device representatives
- New investigators and research students
- Policymakers
- Other associations and individuals who are interested in acquiring familiarity with the PRO research terms and methodology
Learning Objectives
- Identify the historical and conceptual framework of Patient-Reported Outcomes (PROs)
- Identify the types of PRO measures
- Review the purposes and applications of PROs
- Gain knowledge on the key psychometric properties of PRO measures
- To compare and contrast the main measurement approaches that apply to PROs
- Gain familiarity with the basic steps in measure development
- Discuss need for cross-cultural equivalence
- Discuss the conceptual model of child health and illness outcomes
- Review the rationale for implementing PROs in clinical practice
- Comprehend approaches and pitfalls
- Gain understanding of resources available to guide implementation
Course Registration Rates
Member: $210 USD
Student/Retired/Special Member: $175 USD
Non-member: $350 USD
Have you already purchased the IPRO online course? Access the course modules here through your ISOQOL account login.
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.