Intensive longitudinal measurement:
Methodologies for collecting, analyzing and interpreting patient-generated data from daily diaries, wearables and sensors
As we collect data more frequently in both clinical and real-world studies, patients are often assessed using intensive longitudinal measurement techniques, such as daily diaries, wearable devices, and/or sensor technology. This allows the recording of data at regular intervals between site visits, the capture of acute events as they occur for clinical monitoring, and/or continuous monitoring in order to answer research questions that were previously unanswerable through traditional data collection.
Despite our ability to collect more data, our knowledge about evaluating new data collection techniques and using these rich data sources effectively is limited.
This symposium will cover
- patient-centered approaches to endpoint selection/development
- the subsequent identification of appropriate methods and technology for assessing these endpoints
- the different ways we currently summarize this data and how this leads to a loss of information
- ways to maximise our data using improved summary methods and more complex modelling techniques
Attendees will leave this symposium with new insights and better understanding on how to better use, analyze, and interpret intensive longitudinal data generated from daily diary and wearable devices in a more effective and complementary manner.
Measuring What Matters Symposium Committee Co-Chairs
Pip Griffiths, PhD
Jiat Ling Poon, PhD
Eli Lilly and Company
Indiana, United States
R.J. Wirth, PhD
Vector Psychometric Group, LLC
North Carolina, United States
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.