The pre-conference day, Sunday 13 October, presents a packed agenda with additional learning and networking opportunities.
Limited tickets remain for the Local Workshop and educational workshops, so sign up today! Add an event ticket on to your overall conference registration, or register for single events at the non-conference attendee rate. View event ticket rates here.
Check out this year’s featured workshops below! View full descriptions and speaker information for the Local Workshop here and all general session workshops here.
Full-Day Workshop
Local Workshop: Patient-centered care and research: All you need to know to start with PROs and PROMs
Sunday 13 October | 9:00 am – 4:00 pm
Please note: This workshop will be presented in German.
This one-day workshop provides a comprehensive introduction to PROs and PROMs focusing on their use in research and clinical practice. Participants will gain initial experience and practical skills that will sharpen their understanding of how to design PRO assessments and how to plan the integration of PROMs in their individual work environment.
Half-Day Workshops
Workshop 2: Engagement and Activation of Children and Youth in Pediatric PROM/PREM research
Sunday 13 October | 9:00 am – 12:00 pm
In this workshop, participants will:
- Understand the importance and complexities of patient engagement in QOL research among paediatric populations
- Identify appropriate strategies to engage children, youth and parents
- Be able to develop an evaluation plan of the impact of these strategies in research
Workshop 3: Expanding diversity and inclusion strategies to foster representation of LGBTQIA+ communities in Patient Reported Outcome (PRO) research
Sunday 13 October | 9:00 am – 12:00 pm
The goal of this workshop is to educate attendees about LGBTQIA+ representation in Patient Reported Outcomes (PRO) research and the role this plays in achieving broader diversity and inclusion in clinical research. The workshop aims to show practical steps to maximise inclusivity and minimise cis-heteronormative biases in PRO measure development and evaluation.
Workshop 6: Optimal Test Design Approach to Fixed and Adaptive Test Construction
Sunday 13 October | 1:00 pm – 4:00 pm
This workshop covers the principles of the optimal test design framework and their applications in fixed and adaptive test construction, along with practical examples and an R package for creating and evaluating various fixed and adaptive test formats. This workshop is for professionals and researchers interested in automated and adaptive test form assembly and delivery.
The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).
Together, we are creating a future in which patient perspective is integral to health research, care and policy.