Terms of Use

Last updated on [12/2/2019]

  2.  » Terms of Use

These Terms of Use govern your use of this site, which is provided by the International Society for Quality of Life Research (ISOQOL). By accessing this site, you are indicating your acknowledgment and acceptance of these Terms of Use. These Terms of Use are subject to change by ISOQOL at any time in its discretion. Your use of this site after such changes are implemented constitutes your acknowledgment and acceptance of the changes. Please consult these Terms of Use regularly.


Collecting and Using User Information

ISOQOL collects information in different ways from those who access our site. We primarily use this information to provide a customized experience as you use our site and do not share this information with third parties. However, we may disclose personal information collected if we have received your permission beforehand or in very special circumstances, such as when we believe that such disclosure is required by law, or in other special cases described below.



ISOQOL makes available this website and the information and services contained herein in furtherance of ISOQOL’s nonprofit and tax-exempt purposes. While the information contained on this website is presented in good faith and believed to be correct, ISOQOL does not warrant, endorse, approve or certify such information, nor does it make any representation as to the accuracy, completeness, efficacy, or timeliness of such information. Use of such information is voluntary, and reliance on it should only be undertaken after an independent review by qualified experts. Reference herein to any specific commercial product, process or service does not constitute or imply endorsement, recommendation or favoring by ISOQOL.

The information, products and services offered on or through the website are provided “as is” and without warranties of any kind, either express or implied. To the fullest extent permissible pursuant to applicable law, we disclaim all warranties, express or implied, including, but not limited to, implied warranties of merchantability and fitness for a particular purpose.

ISOQOL does not warrant that the website or any of its functions will be uninterrupted or error free, that defects will be corrected, or that any part of this website, including message boards, or the servers that make the site available, are free of viruses or other harmful components.

ISOQOL assumes no responsibility for consequences resulting from use of the information contained herein, or from use of the information obtained at linked sites, or in any respect for the content of such information. ISOQOL is not responsible for, and expressly disclaims all liability for, damages of any kind arising out of use, reference to, reliance on, or performance of such information, as well as for any damages or injury caused by any failure of performance, error, omission, interruption, deletion, defect, delay in operation or transmission, computer virus, communication line failure, theft or destruction, or unauthorized access to, alteration of, or use of any record. You also acknowledge that ISOQOL is not liable for the defamatory, offensive, or illegal conduct of other third parties, subscribers, members, or other users of the message boards and that the risk of injury from the foregoing rests entirely with each user.



All contents © 2019 International Society for Quality of Life Research. All rights reserved.

This website is protected by the U.S. and foreign copyright laws. This website, the contents of all material available on this website, and all images are copyrighted by ISOQOL unless otherwise indicated. Copyright is not claimed as to any part of an original work prepared by a U.S. or state government officer or employee as part of that person’s official duties. All rights are reserved and content may not be reproduced, downloaded, disseminated, or transferred, in any form or by any means, except with the prior written agreement of ISOQOL or as indicated below. Users may download pages or other content for their own personal use on a single computer, but no part of such content may be otherwise or subsequently reproduced, downloaded, disseminated, or transferred, in any form or by any means, except with the prior written agreement of, and with express attribution to, ISOQOL.


Access to This Site

To access this site or some of the resources it has to offer, you may be asked to provide certain personal information (contact or financial) or other information. It is a condition of your use of this site that all the information you provide on this site will be correct, current, and complete. If ISOQOL believes the information you provide is not correct, current, or complete, ISOQOL has the right to refuse you access to this site or any of its resources, and to terminate or suspend your access at any time.


Restrictions on Use

You may use this site for purposes expressly permitted by this site. You may not use this site for any other purpose, including any commercial purpose, without ISOQOL’s express prior written consent. For example, you may not (and may not authorize any other party to): i) co-brand this site, or ii) frame this site, without the express prior written permission of an authorized representative of ISOQOL. For purposes of these Terms of Use, “co-branding” means to display a name, logo, trademark, or other means of attribution or identification of any party in such a manner as is reasonably likely to give a user the impression that such other party has the right to display, publish, or distribute this site or content accessible within this site. You agree to cooperate with ISOQOL in causing any unauthorized co-branding or framing immediately to cease.


Proprietary Information

The material and content accessible from this site, and any other World Wide website owned, operated, licensed, or controlled by ISOQOL is the proprietary information of ISOQOL or the party that provided the content to ISOQOL, and ISOQOL or the party that provided the content to ISOQOL retains all right, title, and interest in the content. Accordingly, the content may not be copied, distributed, republished, uploaded, posted, or transmitted in any way without the prior written consent of ISOQOL, except that you may print out a copy of the content solely for your personal use. In doing so, you may not remove or alter, or cause to be removed or altered, any copyright, trademark, trade name, service mark, or any other proprietary notice or legend appearing on any of the content. Modification or use of the content except as expressly provided in these Terms of Use violates ISOQOL’s intellectual property rights. Neither title nor intellectual property rights are transferred to you by access to this site.



This site may be hyperlinked to other sites that are not maintained by, or related to, ISOQOL. Hyperlinks to such sites are provided as a service to users and are not sponsored by or affiliated with this site or ISOQOL. ISOQOL has not reviewed any or all of such sites and is not responsible for the content of those sites. Hyperlinks are to be accessed at the user’s own risk, and ISOQOL makes no representations or warranties about the content, completeness or accuracy of these hyperlinks or the sites hyperlinked to this site. Further, the inclusion of any hyperlink to a third-party site does not necessarily imply endorsement by ISOQOL of that site.



You hereby grant to ISOQOL the royalty-free, perpetual, irrevocable, worldwide, non-exclusive right and license to use, reproduce, modify, adapt, publish, translate, create derivative works from, distribute, perform, and display all content, remarks, suggestions, ideas, graphics, or other information communicated to ISOQOL through this site, and to incorporate any submission in other works in any form, media, or technology now known or later developed. ISOQOL will not be required to treat any submission as confidential, and may use any submission in its business (including without limitation, for products or advertising) without incurring any liability for royalties or any other consideration of any kind, and will not incur any liability as a result of any similarities that may appear in future ISOQOL operations.

ISOQOL will treat any personal information that you submit through this site in accordance with its Privacy Policy.

Notice of Copyright Infringement

If you are a copyright owner who believes your copyrighted material has been reproduced, posted, or distributed via the website in a manner that constitutes copyright infringement, please report the violation to our designated copyright agent by sending written notice by mail to ISOQOL, 555 East Wells Street, Suite 1100, Milwaukee, WI 53202, USA, Attn: Executive Director, or by e-mail to info@isoqol.org.

Please include the following information in your written notice:

  • A detailed description of the copyrighted work that is allegedly infringed;
  • A description of the location of the allegedly infringing material on the website;
  • Your contact information, including your address, telephone number, and, if available, e-mail address;
  • Your statement that you have a good-faith belief that the allegedly infringing use is not authorized by the copyright owner, its agent, or the law;
  • Your statement, made under penalty of perjury, affirming that the information in your notice is accurate and that you are authorized to act on the copyright owner’s behalf; and
  • An electronic or physical signature of the copyright owner or someone authorized on the owner’s behalf to assert infringement of copyright and to submit the statement.


Limitation on Liability

ISOQOL, its subsidiaries, affiliates, licensors, service providers, content providers, employees, agents, officers, and directors will not be liable for any incidental, direct, indirect, punitive, actual, consequential, special, exemplary, or other damages, including loss of revenue or income, pain and suffering, emotional distress, or similar damages, even if ISOQOL has been advised of the possibility of such damages. If you are dissatisfied with the website, any materials, products, or services on the site, or with any of the site’s terms and conditions, your sole and exclusive remedy is to discontinue using the site. Without limiting the foregoing, in no event will the collective liability of ISOQOL and its subsidiaries, affiliates, licensors, service providers, content providers, employees, agents, officers, and directors to any party (regardless of the form of action, whether in contract, tort, or otherwise) exceed the lesser of $100 or the amount you have paid to ISOQOL for the applicable content or service out of which liability arose.



You will indemnify and hold ISOQOL, its subsidiaries, affiliates, licensors, content providers, service providers, employees, agents, officers, directors, and contractors (the “Indemnified Parties”) harmless from any breach of these Terms of Use by you, including any use of Content other than as expressly authorized in these Terms of Use. You agree that the Indemnified Parties will have no liability in connection with any such breach or unauthorized use, and you agree to indemnify any and all resulting loss, damages, judgments, awards, costs, expenses, and attorneys’ fees of the Indemnified Parties in connection therewith. You will also indemnify and hold the Indemnified Parties harmless from and against any claims brought by third parties arising out of your use of the information accessed from this site.



Trademarks, service marks, and logos appearing in this site are the property of ISOQOL or the party that provided the trademarks, service marks, and logos to ISOQOL. ISOQOL and any party that provided trademarks, service marks, and logos to ISOQOL retain all rights with respect to any of their respective trademarks, service marks, and logos appearing in this site. Unauthorized use of the trademarks, service marks and logos of ISOQOL or any third party is unlawful and will be grounds for exclusion from future use of this website.


Controlling Law; Forum Selection

These Terms shall be construed in accordance with the laws of the State of Wisconsin, without regard to conflicts principles. A court of competent jurisdiction in Milwaukee, Wisconsin, USA shall be the exclusive forum for the resolution of any dispute between you and ISOQOL, and you irrevocably consent to the personal and subject matter jurisdiction, and venue, of such court.

The International Society for Quality of Life Research (ISOQOL) is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, and patient research partners advancing health related quality of life research (HRQL).

Together, we are creating a future in which patient perspective is integral to health research, care and policy.