ISOQOL 31st Annual Conference

Conference Theme

All different together: Showcasing variety of QOL research

The 2024 Annual Conference will focus on the range of research done within the QOL field. Working within the framework of applications, methods and theory, we would like to turn to topics that might be less prominent. The plenaries will cover regulatory issues in digital health services, non-PRO measures and their technological applications, and the concept of HRQL from a broader historical perspective. 

Plenary Sessions

Back to basics: the concept of HRQL under a magnifying glass
HRQL research has been evolving, not only when it comes to the modes of administration or methods for ensuring validity, but also in how we approach the concept itself. In this plenary, we will explore how the concept of HRQL has changed over the decades due to the emergence of parallel ideas and altered contextual conditions, from the initial conceptual framework that served for the development of foundational measures, to current programs of research and application, and HRQL’s possible future evolution.

Cutting Edge Research
The Cutting Edge Research plenary session features some of the highest-ranked, innovative research from ISOQOL abstract submissions. In particular, these abstracts reflect research that truly “pushes the ISOQOL envelope” in providing new and different ways to look at quality of life.

Pathways through the unknown: challenges in adopting digital health measures in clinical research
The digitization of healthcare, clinical workflows and outpatient monitoring brings with it multiple legal, ethical and regulatory challenges. Moreover, this changing landscape raises questions concerning the appropriate adoption and application of digital health measures, given that regulatory frameworks and acceptance of digital health measures vary widely across countries. There is a need to provide clarity to stakeholders from research and industry trying to navigate this complex regulatory landscape. This plenary will bring together different perspectives and discuss some of the most debated issues and challenges in the adoption and use of digital health measures, with a focus on those collected in the context of clinical trials.

Broaden the scope: health outcomes assessment beyond PROs
In recent years, health outcome assessment beyond patient-reported outcomes measures has become increasingly important and diversified. Besides different types of widely established clinical outcome assessments, some new developments emerged: family-reported outcome measures were introduced and digital health outcome measures are on the rise. This session will take a closer look at these developments, reflecting on their implications, potentials and limitations for health outcome assessment as well as how these relate to almost existing approaches in terms of complementary insights and added value.

Scientific Program Committee Co-Chairs