International Society for Quality of Life Research
International Society for Quality of Life Research

Past Webinars

Past ISOQOL webinars feature expert speakers on a range of topics in the health-related quality of life field. Recently recordings include:

Browse the full webinar archive

Plan a Webinar

Interested in presenting a webinar through ISOQOL? Fill out the Webinar Planning Form and send it to info@isoqol.org.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Upcoming Webinars

Adapting PROs for Research and Clinical Practice Series

This series of three webinars explores three different aspects of this topic, and will provide a forum where the ISOQOL community can learn about key issues and hear differing approaches and perspectives from experts in the field.

At this time, individual session registration is still available. Click each title for further description and speaker information.

 

 

Individual webinar registration rates

Member: $75
Student Member: $25
Special Member: $25
Retired Member: $25 
Non-Member: $100

Registration closes two days before each individual webinar. See descriptions below for specific close dates.

Recordings of each webinar will be available for purchase at the individual webinar rates four to six weeks after the conclusion of the live webinars.

Organizations who register 18 or more people are eligible to receive the member rate for all affiliated registrants. Interested parties should contact info@isoqol.org.

   
   

Short-form PROMs: Relevance, utility, and risks for health providers and policy makers

Tuesday 9 April 2019
10:00 AM CDT

Webinar completed. Recording now available in the webinar archive.

There is a growing interest in the use and implementation of PROMs in clinical practice and policy. However, a commonly stated barrier to using PROMs in clinical practice and policy making is the perception that existing PROMs, often developed for research purposes, are too long.

In this webinar, the speakers intend to provide an overview of considerations for using PROM short-forms in research, clinical practice, and policy making. We will describe methods for developing PROM short-forms while considering content validity, reliability and responsiveness. We will discuss how PROM short-forms can be used to inform clinical care and policy and provide an overview of the possible risks with and solutions to using PROM short-forms in clinical practice and policy-making.

These topics and methods for PROM short-forms will be described, using examples, during the webinar by the speakers. The presentation will be followed by an interactive Q&A session during which the speakers will address questions from the audience.

At the conclusion of the webinar, participants will have an understanding of the current state of evidence on the use of PROM short-forms. They will also gain insights into research gaps and potential challenges for using PROM short-forms in clinical practice and policy-making. 

Level Addressed: Intermediate

Audience Addressed: Research, Academic, Clinician, Nurse/Physician Assistant, Social Worker, Other Health Care Providers, Policy Makers, Trainees

Audience benefits: At the conclusion of the webinar, participants will have an understanding of the current state of evidence on the use of PROM short-forms. They will also gain insights into research gaps and potential challenges for using PROM short-forms in clinical practice and policy-making. 

Learning Outcomes/Objectives: After the webinar, the learner will be able to:

  • Ascertain the relevance of PROM short-forms according to the intended context of use
  • Delineate the theoretical measurement principles for the development of PROM short-form
  • Describe how short-form PROMs can be used to inform clinical care and policy
  • Outline mitigation solutions to manage the risks and benefits associated with using short-forms, compared to long-term forms, in clinical practice and policy-making.

Presenters:

  • Skye Barbic, PhD, OT, Assistant Professor, University of British Columbia, Department of Occupational Therapy
  • Antoine Regnault, Global Lead - Statistics, Modus Outcomes

Moderator: Claudia Rutherford, PhD, Deputy Director, Quality of Life Office and Senior Research Fellow, University of Sydney Quality of Life Office

 

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Methods for modifying PRO instruments for clinical practice and clinical research use

Wednesday 8 May 2019
10:00 AM CDT

Webinar completed. Recording now available in the webinar archive.

As the field of oncology evolves, the development of patient-reported outcomes (PRO) must also adapt to the changing benefits and toxicities that emerge with new therapies. It is always possible to develop de novo instruments, but that process can be time consuming and expensive. An alternative is to adapt existing PROs so that they meet the requirements of clinical practice and research. Several guidelines have emerged for PRO development and use including the Food and Drug Administration PRO guidance and ISOQOL recommendations.  This webinar will describe the steps that the speakers have used in producing symptom and function measure to answer specific questions that emerge in clinical practice and research. The webinar will also consider such issues as the incorporation of PROs into clinical practice, the issue of patient and clinician burden, the determination of whether or not PRO results can be incorporated into actionable steps. The speakers will present an example of modification of a validated tool to meet the need for use in clinical research and care in patients with malignant pleural mesothelioma, a relatively rare but highly symptomatic condition.  

Level Addressed: Hot Topic

Audience Addressed: Research, Academic, Clinician, Nurse/Physician Assistant

Audience benefits: Familiarization with critical steps in modifying a PRO tool in areas needed in patient care or clinical research; discussion of a specific modification of an existing measure.

Learning Outcomes/Objectives: After the webinar, the learner will be able to:

  • Describe the relative benefits of de novo development versus modification of an existing measure.
  • Describe the steps needed in modification to meet various PRO guidelines.

Presenters:

  • Charles Cleeland, PhD, McCullough Professor of Cancer Research, MD Anderson Cancer Center
  • Tito R. Mendoza, PhD, Professor, MD Anderson Cancer Center

Moderator: Xin Shelley Wang, MD, MPH, MD Anderson Cancer Center

 

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Methods for incorporating CATs (including ePROs) into clinical trials and clinical practice – operational and scientific challenges and solutions

Wednesday 29 May 2019
11:00 AM CDT

Registration closes 27 May 2019 at 11:59 PM CDT

Computerized adaptive testing (CAT) and ePROs refer to systems and statistical models that allow the assessment of patient-reported outcomes (PROs) electronically. While ePRO refers to electronic data collection of PROs in general, CAT is a dynamic system that adapts PRO assessment to the individual respondent. This individualized assessment has been proven to require fewer items to achieve the same measurement precision as static PRO measures. This happens in real time, such that a response to the first item will help determine which item should be administered next.

In this webinar, we intend to provide an overview of considerations for using CAT and ePROs in clinical trials and clinical practice. We will describe methods for incorporating CAT and ePROs, as well as discuss operational and scientific challenges and their solutions, including a combination of the theory behind CAT and practical examples of incorporating CAT in the real world.

The presentation will be followed by an interactive Q&A session during which the speakers will address questions from the audience.

At the conclusion of the webinar, participants will have a deeper understanding of the current state of evidence on the inclusion of CAT and ePROs in clinical trials and clinical practice. They will also gain insights into research gaps and potential operational and scientific challenges for incorporating CAT and ePROs into clinical trials and clinical practice and their solutions. 

Level Addressed: Intermediate

Audience Addressed: Research, Academic, Clinician, Nurse/Physician Assistant

Audience benefits: At the conclusion of the webinar, participants will have an understanding of the current state of evidence on the inclusion of CAT and ePROs. They will also gain insights into research gaps and potential operational and scientific challenges for incorporating CAT and ePROs into clinical trials and clinical practice and their solutions. 

Learning Outcomes/Objectives: After the webinar, the learner will be able to:

  • Explain the benefits of incorporating CAT and ePROs into clinical trials and clinical practice
  • Understand the methods for incorporating CAT and ePROs into clinical trials and clinical practice
  • Outline operational and scientific challenges to incorporating CAT and ePROs into clinical trials and clinical practice and their solutions

Presenters:

  • Mogens Groenvold, MD, PhD, Professor, University of Copenhagen
  • Matthias Rose, MD, PhD, Professor, Charité – Universitätsmedizin Berlin
  • Amanda Spraggs-Hughes, MA, Associate Director, Orthopaedic Clinical Research Center, Washington University School of Medicine, Department of Orthopedic Surgery

Moderator: Sandra Nolte, PhD, Principal, ICON plc; academic affiliation: Charité – Universitätsmedizin Berlin

 

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INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
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Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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