The webinar describes three programs training clinicians to use PROs in routine clinical practice of chronically ill patients, illustrating both successes and obstacles.

The webinar includes presentations on:

  • Using PROs in routine chronic care in pediatrics
  • Training lung transplant specialists to use PRO measures in routine clinical practice
  • Development of a facilitator to train oncologists

Key Lessons Include:

  • Engage Clinicians in Planning States: early and often
  • Stakeholder Involvement in Selection of HRQL measures; graphical presentation of data; support aids
  • Training Sessions Must Be Brief and Flexible
  • Provide Behavioural Feedback, especially early in the dissemination process
  • Integrate data into patient records and clinic workflow
  • Role of Opinion Leaders
  • Change as an Iterative Process
  • One Size Does Not Fit All; Has to Fit into the existing Delivery System


Using patient-reported outcome (PRO) measures in routine clinical care identifies problems, enhances patient-clinician communication as well communication with and among family members, improves clinical management, and promotes shared decision making. But clinicians need to be trained to interpret PRO data and make it actionable.

Learning Outcomes/Objectives

After the webinar, the learner will be able to:

  • Understand the importance of training clinicians in using PROs
  • How to engage Multi-disciplinary Teams
  • How to organize training sessions
  • What the content of training session could be


  • Lotte Haverman, PhD, Psychosocial Department of the Emma Children’s Hospital, Amsterdam, the Netherlands
  • Maria Jose Santana, PhD, University of Calgary, Calgary, Canada
  • Galina Velikova, PhD, MD, University of Leeds, Leeds, United Kingdom

Maria Jose Santana, PhD, University of Calgary

Organized By:
QOL in Clinical Practice SIG








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