The UK & Ireland SIG members are a diverse group of researchers and clinicians who share a common interest in the methods and application of health-related quality of life (QOL) measurement.
In the UK there are many PROMS events but no national researcher led activities on methodologies around development, testing and use of PROMS in different contexts and settings. We propose to meet this gap be setting up an Academic PROMS group within the remit of an ISOQOL Special Interest Group.
The overall aim of the group is to promote research into use of PROMS in the UK and in addition meet the aim of Isoqol ‘to advance the scientific study of health-related quality of life and other patient-centered outcomes to identify effective interventions, enhance the quality of health care and promote the health of populations’.
We hope to achieve the following objectives
Future activities might include the following:
This unique event brings together leading experts and early career researchers to engage with the latest advances in the field of PROMs research and implementation. The one-day conference will include a mixture of plenary sessions, oral presentations and posters by PROMs researchers from across the UK and Ireland. PhD students are especially encouraged to attend and to present their work.
Professor Galina Velikova – Using Patient Reported Outcome Measure (PROMs) in cancer care
Professor Jose-Maria Valderas – The National Institutes of Health: Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
Conference Organizing Committee:
Professor John Brazier, ScHARR, University of Sheffield and NIHR CLAHRC Yorkshire and Humber
Professor Ray Fitzpatrick, Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford
Elizabeth Gibbons, Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford
Dr Caroline Potter, Nuffield Department of Population Health, University of Oxford and NIHR CLAHRC Oxford
Professor Jose-Maria Valderas, University of Exeter Medical School and NIHR CLAHRC South West Peninsula
Watch this space!
“Teamwork.com” project management program and communication tool implemented December 2015
Listserv Connect with fellow UK & Ireland SIG members
Quality of Life Quarterly: The aim will be to produce an article annually outlining progress
Watch here for announcements of upcoming webinars.
John Brazier is a Professor of Health Economics and Director of Research in the School of Health and Related Research (ScHARR)) at the University of Sheffield. He is also the Director of the Economic Evaluation Policy Research Unit (EEPRU) which is a joint Sheffield and York Unit funded by the Department of Health in England to undertake applied and methodological research to inform health policy in England.
He has more than 25 years’ experience of conducting economic evaluations of health care interventions for policy makers with a particular interest in the measurement and valuation of health for economic evaluation. Related work is in developing a preference-based measure of health for the SF-36 (SF-6D), but with colleagues have further developed and extended these methods to a number of specific condition including measures in asthma, diabetes cancer, overactive bladder, dementia and epilepsy. He is currently working on a new measure of quality of life for mental health (Recovering Quality of Life – ReQoL).
His research has also examined issues including methods of reviewing measures, mapping between measures, valuation methods (including the use of DCE) and developing ways to incorporate equity concerns such as burden of disease into the weights applied to QALYs. He has also been examining the role of well-being in public policy and it’s use in economic evaluation.
Elizabeth Gibbons is a Senior Research Scientist in the Health Services Research Unit, Nuffield Department of Population Health and CLAHRC-Oxford. Research activity includes reviews of PROMs for specific populations and health conditions and involved in several pilots of PROMs in different contexts. These include patients with Long term conditions in primary care and depression in secondary care which was in collaboration with John Brazier and colleagues at ScHARR, She is involved in several other pilots of PROMs: skin cancer in collaboration with University Hospitals Oxford, PROMs in musculoskeletal conditions, and patients undergoing surgery for breast cancer. She is also involved in the development and evaluation of a PROM for people with Long-term conditions (University of Oxford). Previous research also included developing and evaluating a questionnaire to capture patient experience and outcomes (the Outcomes and Experience Questionnaire- OEQ). Other research has focused on Patient Reported Experience measures in collaboration with Picker Institute Europe testing and evaluating new models of measuring patient experience across pathways and within services in the NHS. Other collaborative work with Picker Institute includes developing indicators of integrated care. Elizabeth’s research interests focus on evaluating the impact of PROMs and PREMs in different contexts specifically in relation clinical practice but also for service improvement and commissioning decisions.