International Society for Quality of Life Research
International Society for Quality of Life Research

United Kingdom and Ireland

Who are the members?

The UK & Ireland SIG members are a diverse group of researchers and clinicians who share a common interest in the methods and application of health-related quality of life (QOL) measurement.

What is the role of the UK & Ireland-SIG?

In the UK there are many PROMS events but no national researcher led activities on methodologies around development, testing and use of PROMS in different contexts and settings. We propose to meet this gap be setting up an Academic PROMS group within the remit of an ISOQOL Special Interest Group.

The overall aim of the group is to promote research into use of PROMS in the UK and in addition meet the aim of Isoqol  ‘to advance the scientific study of health-related quality of life and other patient-centered outcomes to identify effective interventions, enhance the quality of health care and promote the health of populations’.

We hope to achieve the following objectives

  • addressing important methodological issues,
  • reviewing UK PROM developments as they arise,
  • encouraging and facilitating networking,
  • encourage and supporting engagement with users (policy, clinical  and patients),
  • developing capacity and supporting research students and fellows.

 Future activities might include the following:

  • Annual seminar/meeting.
  • Webinars
  • Isoqol website resources- newly published research by members/key players
  • Commentary on UK policy developments
  • Research collaboration
  • Liaise with NHS England and equivalent agencies around the UK

Current SIG Initiatives

3rd PROMs Research Conference 2018: Wednesday 20th June 2018, University of Birmingham

Following the success of last PROMs Research Conference held at St Anne’s College, Oxford we are delighted to announce the date of the forthcoming conference which will be hosted by the Centre for Patient Reported Outcomes Research at the University of Birmingham, UK on 20th June 2018.

This one-day conference will include a mixture of plenary sessions, oral presentations and posters and will bring together leading international experts, clinicians, patient partners and early career researchers to engage with the latest advances in the field of PROMs research and implementation. 

Full details can be found on the conference website, www.birmingham.ac.uk/proms2018.

Activities

2018 Annual Report

Communication and Information Sharing

“Teamwork.com” project management program and communication tool implemented December 2015

Quality of Life Quarterly: The aim will be to produce an article annually outlining progress

Online Education

Watch here for announcements of upcoming webinars.

Leadership

Chair: Elizabeth Gibbons
Elizabeth Gibbons is a Senior Research Scientist in the Health Services Research Unit, Nuffield Department of Population Health and CLAHRC-Oxford.  Research activity includes reviews of PROMs for specific populations and health conditions and involved in several pilots of PROMs in different contexts. These include patients with Long term conditions in primary care and depression in secondary care which was in collaboration with John Brazier and colleagues at ScHARR, She is involved in several other pilots of PROMs: skin cancer in collaboration with University Hospitals Oxford, PROMs in musculoskeletal conditions, and patients undergoing surgery for breast cancer. She is also involved in the development and evaluation of a PROM for people with Long-term conditions (University of Oxford). Previous research also included developing and evaluating a questionnaire to capture patient experience and outcomes (the Outcomes and Experience Questionnaire- OEQ). Other research has focused on Patient Reported Experience measures in collaboration with Picker Institute Europe testing and evaluating new models of measuring patient experience across pathways and within services in the NHS. Other collaborative work with Picker Institute includes developing indicators of integrated care. Elizabeth’s research interests focus on evaluating the impact of PROMs and PREMs in different contexts specifically in relation clinical practice but also for service improvement and commissioning decisions.

Chair : Dr. Anju Keetharuth
Anju Keetharuth is a development economist by background. Since embracing life as a health economist over nine years ago and her research has focused mainly on outcome measurement and quality of life, economic evaluation alongside trials at the School of Health and Related Research at the University of Sheffield. With an international team, she has recently developed a new PROM, Recovering Quality of Life, for use with a mental health population. 

She is delighted to be the chair of the UK SIG from October 2018 and look forward to contributing to the mission of ISOQOL and the SIG.

 

Incoming chair from October 2018

Dr Grace Turner

Grace Turner is a NIHR Postdoc Fellow at the Centre for Patient Reported Outcomes Research at the University of Birmingham. Grace is a mixed methods researcher and is currently undertaking a NIHR postdoc fellowship to develop and test the feasibility of a care pathway to help manage long-term problems after transient ischaemic attack and minor stroke. Grace also leads a programme of research which aims to develop a pathway for the electronic capture of PROMs in trauma care. Other research she is involved in includes a mixed methods study investigating use of PROMs in primary care and a systematic review of PROMs in Primary Sclerosing Cholangitis (a rare chronic liver disease).

Grace is passionate about building capacity for early/mid-career researchers in her roles as co-chair of the Institute Early Career Researchers Group and representative for the College Postdoc Committee at the University of Birmingham.

 

Past chairs:

Professor John Brazier

INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
555 East Wells Street, Suite 1100, Milwaukee, WI USA 53202
Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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DISCLAIMER
Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.

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