International Society for Quality of Life Research
International Society for Quality of Life Research

Special Interest Groups Overview


TEAMWORK.COM - https://isoqol.teamwork.com

ISOQOL’s official "Teamwork.com" project management program for Special Interest Groups and Committees was launched in 2016. Teamwork is intended to be a resource for ISOQOL members to come together in a shared (online) space to collaborate and communicate within their SIGs and additional working groups.

If you have never used ISOQOL's Teamwork page, getting started is very straightforward. You have received an invite to the email address associated with your ISOQOL membership to access Teamwork projects. If you have not, please send a message to teamwork@isoqol.org, and we will get you connected. Accepting this invite will grant you access to all the groups that you are a part of. Please keep in mind that only those who are current (dues-paying) members of ISOQOL are eligible to use the program.

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Access the Teamwork.com SIG User Guide.
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ISOQOL SPECIAL INTEREST GROUPS (SIGS)

Australia

The Australia Special Interest Group brings together Australian-based researchers in the field of quality of life research. Given geographical remoteness of Australian quality of life researchers from colleagues in the northern hemisphere, the SIG aims to support local researchers by facilitating communication and opportunities for collaboration and exchange of ideas.

Chair:  Ljoudmila Busija, PhD  (term 2015-2017)
Chair Elect:  Claudia Rutherford (term 2015-2018
Chair Elect:  Rasa Ruseckaite (term 2015-2019)
Secretary/TreasurerRebecca Mercieca-Bebber (term 2015-2018)

Canada-PRO

The Canada-PRO Special Interest Group members are a diverse group of researchers and clinicians with a common interest in promoting patient reported outcomes (PRO) research and use in Canada. Building on initial efforts of the co-leaders and informal meetings at ISOQOL, we will discuss methodological issues and PRO developments, and generate new ideas to move PRO forward in Canada. Initial goals are to identify priority issues for PRO applications in clinical practice, research, and population monitoring, facilitate networking for Canadian researchers and clinicians and provide support for students and fellows, new investigators and first time attendees at ISOQOL.

Co-Chair: Sara Ahmed, PhD  (term 2015-2019)
Co-Chair: Susan Bartlett, PhD (term 2015-2018)

Child Health

Primary interests are to stimulate excellent child health-related quality of life research (C-HRQoL), to increase awareness among the general ISOQOL membership of the importance of early health and the potential of child health concepts and methodological practices to foster improvements in health across the lifespan. Such methods/practices include non-patient observer reports/studies; integration of data from multiple reporters: cognitive interviewing methods; adaptations of instruments for respondents with low literacy, attentional and other respondent challenges; and long term effects of health promotion interventions.

Past Chair:  Nancy Young, PhD  (term 2014-2017)
Chair:  Jeanne Landgraf, MA  (term 2014-2018)
Chair Elect:  Anne-Catherine Haller, Dipl.Psych  (term 2014-2019)

Health Preference Research

The purpose of the Health Preference Research SIG is to perform and promote educational activities and scientific research with respect to health and health-related preferences and all that is related thereto in the broadest sense, is part thereof and/or may promote it; and to engage in organizational activities that support the growth and greater integration of preference research within ISOQOL and its membership.

Co-Chair: Benjamin Craig, PhD (term 2012-2017
Co-Chair: Richard L. Skolasky, ScD (term 2016-2018)

Ibero America

The Ibero America SIG is open to any ISOQOL member residing in an Ibero American country. The SIG holds meetings on targeted issues pertaining to health-related quality of life research. The most recent meeting took place 29 November - 1 December, 2012 in Gois, Brazil. Download the proceedings from the conference.

Co-Chair: Pedro L. Ferreira, PhD (term 2015-2017)
Co-Chair: Monica Avila, MPH (term 2015-2018)

Industry (I-SIG)

The Industry Special Interest Group works to increase participation of the pharmaceutical and device industry in ISOQOL activities through spearheading scientific and methodological initiatives such as leading workshops, organizing symposia, supporting fundraising, authoring papers, and chairing meetings related to scientific and methodological topics of joint interest to industry and ISOQOL.

Co-Chair: Josephine Norquist (term 2010-2017)
Co-Chair: Emuella Flood (term 2016-2018)

Mixed Methods

The purpose of the Mixed Methods SIG is to promote the use of mixed methods research in the field of QoL research by exploring the challenges and methodological solutions offered by this research paradigm, identifying opportunities for application of mixed methods research in the field, and defining good practice. Our ultimate aim is to share and learn best-practice methodologies which can be utilized to enhance the patient centeredness of outcomes research.

Co-Chair: Thomas Willgoss, PhD (term 2015-2018)
Co-Chair: Antoine Regnault, PhD (term 2015-2017)

New Investigators

The New Investigators SIG is targeted at people new to QOL research. We welcome students, post docs, and anyone who has been working in QOL research for five years or less. We aim to:

  • Create a network for investigators new to the field of QoL
  • Facilitate discussions, both theoretical and practical
  • Help solve common problems at early stages of one’s career

Co-Chair: Manraj Kaur, PT, MSc, PhD(c) (term 2016-2018)
Co-Chair: Kathrin Fischer (term 2015-2017)

Patient Engagement

The purpose of the Patient Engagement SIG is to place greater emphasis on patients' voice in relation to ISOQOL activities and work with patient advocacy organizations and partners. The Patient Engagement SIG will work closely with the QOL in Clinical Practice SIG to achieve these goals.

Chair:  Sam Salek, BSc RPh PhD FFPM (term 2014-2018)
Chair Elect: Kirstie L. Haywood, DPHiL BSc (Hons) (term 2016-2019)
 

Psychometrics

The goals of the Psychometric SIG are to: 1) advance the science of HRQOL research through the application of psychometric methods; and 2) educate researchers and clinicians on the appropriate use of psychometric methods. The field of psychometrics plays a critical role in HRQOL research. Psychometrics plays a key role alongside qualitative methods to develop and evaluate HRQOL measures. Further, structural equation models provide an incredible methodology for looking at associations among HRQOL variables or to model change over time when there are multiple endpoints or mediating/moderating factors.

Chair: Stacie Hudgens, MA (AbD) (term 2014-2018)
Chair Elect: R.J. Wirth (term 2016-2019)
Past Chair: Wen-Hung Chen, PhD (term 2014-2017)

QOL in Clinical Practice

The QOL in Clinical Practice Special Interest Group (CP-SIG) was formed by researchers and clinicians who are interested in health-related quality of life (QOL) assessment to improve clinical practice. Thus the CP-SIG is unique in that it is at the cusp between methodology and implementation. The ultimate objective of the CP-SIG is to bring together individuals who are interested in using QOL assessment to better involve, manage and treat individual patients as well as using QOL data for medical decision-making and improve clinical practice.

Chair: Louise Humphrey, MSc (term 2014-2018)
Chair Elect: Lotte Haverman, PhD (term 2016-2019)

Response Shift

The purpose of the response shift interest group is to bring together investigators and clinicians who are interested in the influence of response shift (a change in an individual’s values, internal standards, and conceptualization of QOL) on QOL assessments. The ultimate objective is to better understand when and why response shift occurs such that healthcare professionals and researchers using patient reported outcomes across various disciplines can recognize and account for response shift.

Chair: Veronique Sebille  (term 2015-2018)
Chair Elect: Tolulope Sajobi, PhD (term 2016-2019)

Translation & Cultural Adaptation

The overall objectives of the TCA-SIG are to identify and advance research into practices and outcomes of translation and cultural adaptation of patient-reported outcome instruments; to provide an evidence database on translation and cultural adaptation of PROs; and to promote visibility of cross cultural issues in development and use of PROs in ISOQOL.

Chair: Sonya Eremenco, MA (term 2013-2017)
Chair Elect: Benjamin Arnold, MA (term 2016-2018)
Secretary: Dagmara Kuliƛ, MA (term 2016-2018)

United Kingdom & Ireland

The overall aim of the United Kingdom and Ireland SIG would be to promote research into use of PROMS in the UK and Ireland. We would hope to address important methodological issues, discuss UK PROM developments as they arise. This will be an opportunity to encourage and facilitate networking, and support engagement with users (policy, clinical and patients). Support could also be provided for research students and fellows, new UK investigators and first time attendees at ISOQOL.

Co-Chair: John Brazier, PhD (term 2015-2018)
Co-Chair: Elizabeth Gibbons, MSc (term 2015-2019)


Interested in creating a new Special Interest Group?

Fill out the ISOQOL SIG Application and submit it to info@isoqol.org.

INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
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Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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DISCLAIMER
Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.

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