ISOQOL’s official "Teamwork.com" project management program for Special Interest Groups and Committees was launched in 2016. Teamwork is intended to be a resource for ISOQOL members to come together in a shared (online) space to collaborate and communicate within their SIGs and additional working groups.
If you have never used ISOQOL's Teamwork page, getting started is very straightforward. You have received an invite to the email address associated with your ISOQOL membership to access Teamwork projects. If you have not, please send a message to email@example.com, and we will get you connected. Accepting this invite will grant you access to all the groups that you are a part of. Please keep in mind that only those who are current (dues-paying) members of ISOQOL are eligible to use the program.
While the interface of Teamwork is user-friendly, we have developed several tools for you to use to familiarize yourself with the site.
The Australia Special Interest Group brings together Australian-based researchers in the field of quality of life research. Given geographical remoteness of Australian quality of life researchers from colleagues in the northern hemisphere, the SIG aims to support local researchers by facilitating communication and opportunities for collaboration and exchange of ideas.
Past Chair: Ljoudmila Busija, PhD (term 2015-2019)
Chair: Claudia Rutherford (term 2015-2019)
Chair Elect: Rasa Ruseckaite (term 2015-2020)
Secretary/Treasurer: Rebecca Mercieca-Bebber (term 2015-2018)
The Canada-PRO Special Interest Group members are a diverse group of researchers and clinicians with a common interest in promoting patient reported outcomes (PRO) research and use in Canada. Building on initial efforts of the co-leaders and informal meetings at ISOQOL, we will discuss methodological issues and PRO developments, and generate new ideas to move PRO forward in Canada. Initial goals are to identify priority issues for PRO applications in clinical practice, research, and population monitoring, facilitate networking for Canadian researchers and clinicians and provide support for students and fellows, new investigators and first time attendees at ISOQOL.
Primary interests are to stimulate excellent child health-related quality of life research (C-HRQoL), to increase awareness among the general ISOQOL membership of the importance of early health and the potential of child health concepts and methodological practices to foster improvements in health across the lifespan. Such methods/practices include non-patient observer reports/studies; integration of data from multiple reporters: cognitive interviewing methods; adaptations of instruments for respondents with low literacy, attentional and other respondent challenges; and long term effects of health promotion interventions.
The overall goal of the Chinese PRO SIG is to promote research and education of patient reported outcomes in the Chinese population. The Chinese population is one of the largest populations in the world that comprises around 1.4 billion people in 2017. It possesses a long historical unique culture that deserves special attention in the development of PROs for this population. The Chinese PRO SIG shall discuss the development of PROs for the Chinese population, and develop linkages with other ISOQOL SIGS, international groups such as the World Association for Chinese Quality of Life (WACQOL) that share similar interests. The ISOQOL Chinese PRO SIG will facilitate networking for Chinese researchers and offer support for students, fellows, new investigators and first time attendees at ISOQOL.
The purpose of the Health Preference Research SIG is to perform and promote educational activities and scientific research with respect to health and health-related preferences and all that is related thereto in the broadest sense, is part thereof and/or may promote it; and to engage in organizational activities that support the growth and greater integration of preference research within ISOQOL and its membership.
The Ibero America SIG is open to any ISOQOL member residing in an Ibero American country. The SIG holds meetings on targeted issues pertaining to health-related quality of life research. The most recent meeting took place 29 November - 1 December, 2012 in Gois, Brazil. Download the proceedings from the conference.
The Industry Special Interest Group works to increase participation of the pharmaceutical and device industry in ISOQOL activities through spearheading scientific and methodological initiatives such as leading workshops, organizing symposia, supporting fundraising, authoring papers, and chairing meetings related to scientific and methodological topics of joint interest to industry and ISOQOL.
The purpose of the Mixed Methods SIG is to promote the use of mixed methods research in the field of QoL research by exploring the challenges and methodological solutions offered by this research paradigm, identifying opportunities for application of mixed methods research in the field, and defining good practice. Our ultimate aim is to share and learn best-practice methodologies which can be utilized to enhance the patient centeredness of outcomes research.
The New Investigators SIG is targeted at people new to QOL research. We welcome students, post docs, and anyone who has been working in QOL research for five years or less. We aim to:
The purpose of the Patient Engagement SIG is to place greater emphasis on patients' voice in relation to ISOQOL activities and work with patient advocacy organizations and partners. The Patient Engagement SIG will work closely with the QOL in Clinical Practice SIG to achieve these goals.
The goals of the Psychometric SIG are to: 1) advance the science of HRQOL research through the application of psychometric methods; and 2) educate researchers and clinicians on the appropriate use of psychometric methods. The field of psychometrics plays a critical role in HRQOL research. Psychometrics plays a key role alongside qualitative methods to develop and evaluate HRQOL measures. Further, structural equation models provide an incredible methodology for looking at associations among HRQOL variables or to model change over time when there are multiple endpoints or mediating/moderating factors.
The QOL in Clinical Practice Special Interest Group (CP-SIG) was formed by researchers and clinicians who are interested in health-related quality of life (QOL) assessment to improve clinical practice. Thus the CP-SIG is unique in that it is at the cusp between methodology and implementation. The ultimate objective of the CP-SIG is to bring together individuals who are interested in using QOL assessment to better involve, manage and treat individual patients as well as using QOL data for medical decision-making and improve clinical practice.
The purpose of the response shift interest group is to bring together investigators and clinicians who are interested in the influence of response shift (a change in an individual’s values, internal standards, and conceptualization of QOL) on QOL assessments. The ultimate objective is to better understand when and why response shift occurs such that healthcare professionals and researchers using patient reported outcomes across various disciplines can recognize and account for response shift.
The overall objectives of the TCA-SIG are to identify and advance research into practices and outcomes of translation and cultural adaptation of patient-reported outcome instruments; to provide an evidence database on translation and cultural adaptation of PROs; and to promote visibility of cross cultural issues in development and use of PROs in ISOQOL.
The overall aim of the United Kingdom and Ireland SIG would be to promote research into use of PROMS in the UK and Ireland. We would hope to address important methodological issues, discuss UK PROM developments as they arise. This will be an opportunity to encourage and facilitate networking, and support engagement with users (policy, clinical and patients). Support could also be provided for research students and fellows, new UK investigators and first time attendees at ISOQOL.