The purpose of the Response Shift Special Interest Group is to bring together investigators and clinicians who are interested in the influence of response shift (a change in an individual’s values, internal standards, and conceptualization of QOL) on QOL assessments.
The ultimate objective is to better understand when and why response shift occurs such that healthcare professionals and researchers using patient reported outcomes across various disciplines can recognize and account for response shift.
We encourage active communication between members.
Annual Conference activities vary from year to year, but here are examples of a few conference activities:
Co-Chair: Lene Kongsgaard Nielsen, MD
Dr. Kongsgaard Nielsen is a PhD student and medical doctor with a specialist degree in hematology (blood and bone marrow diseases). Her research has a primary focus on PROs in population-based registries and clinical cancer trials. After entering the field of QOL research and learning about Response Shift and QOL appraisal, this became one of her main areas of interest as well. Dr. Kongsgaard Nielsen states, "I that we can gain more profit in benefit of the patients, if we learn more about the QOL appraisal processes and response shift mechanisms in clinical research and the daily clinic."
Co-Chair: Tolulope Sajobi, PhD
Dr. Sajobi is associate professor and senior research statistician at the University of Calgary Cumming School of Medicine. His research program focuses on the measurement and analysis of patient-reported outcomes measures (PROMs) to aid clinical decisions in chronic disease populations. He investigates methodological issues related to measurement bias (differential item functioning and response shift) and missing data in patient-reported outcomes data and their implications for design of clinical trials and development of prognostic tools.
Sara Ahmed, PhD
Ruth Barclay, PhD
Leah McClimans, PhD
Lena Ring, PhD
Véronique Sébille, PhD, ScD