International Society for Quality of Life Research
International Society for Quality of Life Research

QOL in Clinical Practice

Who are the members?

The QOL in Clinical Practice Special Interest Group (CP-SIG) members are a diverse group of researchers and clinicians who share a common interest in the application of health-related quality of life (QOL) measurement in clinical practice settings.

We are open to new and interesting ideas and research to move the field of QOL in clinical practice settings forward.

What is the role of the CP-SIG?

Ultimately the purpose of the CP-SIG is to share knowledge and experiences by bringing individuals together who are interested in using QOL assessment to better involve, manage and treat individual patients as well as using QOL data for medical decision-making and improve clinical practice.

The aims of the CP-SIG are to:

  • Learn, develop and promote best practice in the field of QOL assessments in Clinical Practice research and implementation
  • Provide support to CP-SIG members and stimulate research in the field of QOL in Clinical Practice
  • Encourage CP-SIG members to meet each other and share relevant research and experiences through ISOQOL and at other professional meetings
  • Increase awareness among the general ISOQOL members of the important of clinical practice issues in QOL research

Our research includes, among others topics:

  • Developing or adapting QOL instruments for clinical practice
  • Determining meaningful differences between or within individuals
  • Using data for management of care, for example clinical or shared decision-making, or prognostic, diagnostic or evaluative purposes
  • Testing the feasibility and usability of QOL instruments and assessments
  • Exploring the impact and effects of QOL assessment within routine clinical practice
  • Adapting instruments for people with communication difficulties
  • e-health applications of QOL assessments in clinical practice
  • Selecting QOL assessments for clinical practice
  • Applications of QOL assessments in clinical practice
  • Implementations research and knowledge transfer in the field of QOL assessments in daily practice

Current SIG Initiatives

A Companion Guide to the User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice

Purpose: Where the User’s Guide provides general guidance on how to use patient-reported outcome (PRO) measures in clinical practice, the Companion Guide will expand on this by bringing together real-time case studies. It will include examples of how CP-SIG researchers and clinicians have sought to and incorporated QOL assessment in the real world, including methodologic issues as well as logistical considerations.

A SIG Repository of QOL in Clinical Practice Case Studies

Purpose: The purpose of the repository initiative is to create a space where CP-SIG members can share examples of the work and research they are involved in and provide resources to other researchers and clinicians, such as useful websites and publications.                                                                                                                                            

Annual Conference Activities

Activities vary from year to year.

For 2015:

  • Ancillary ‘Meet and Greet’ with round table discussions and informal get-together (commencing after the annual conference welcome reception) on Wednesday, October 21st  at 7:30 pm – 9.30 pm.
  • Workshop - Implementation of routine Patient Reported Outcome measurement in clinical practice on Wednesday, October 21st 9:00 am – 12:00 pm.
  • Poster presentations relating to the topic of QOL assessment in clinical practice.

Communication and Information Sharing

User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice: Written by members of ISOQOL and the CP-SIG, the purpose of this guide is to help clinicians who are interested in using PRO measures in their clinical practice as a tool in patient management. The User’s Guide can be downloaded from http://www.isoqol.org/research/isoqol-publications    Citation: International Society for Quality of Life Research (prepared by Aaronson N, Elliott T, Greenhalgh J, Halyard M, Hess R, Miller D, Reeve B, Santana M, Snyder C).  User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice, Version: October 2014.

QOL in Clinical Practice bibliography: Please feel free to read through the list of core references related to research in the area of QOL in Clinical Practice. Click here  to access the reference list.  If you notice that an article that you are aware of is missing, or you would like to add a new article of your own, please email one of the co-chairs with the details – we will update the bibliography at least twice yearly.

We encourage active communication between members.

  • Connect with other CP-SIG researchers using the ISOQOL Membership Directory.
    • Note you will need to login and select “QOL in Clinical Practice” under the “Specialty Search” tab.
  • Review the Quality of Life Quarterly, ISOQOL's quarterly newsletter, to keep up to date.
  • Consider the CP-SIG Listserv and ISOQOL LinkedIn as a way to connect with fellow CP-SIG members. Contact one of the co-chairs for information.

Online Education

Watch here for announcements of upcoming QOL in Clinical Practice webinars.

Archived webinars: An introduction to using patient-reported outcome measures (PROMs) to improve clinical care. Presented by Dr. Albert Wu, Dr. Donna Berry and Mr. Jan Geissler on behalf of the CP-SIG. November 2012.

Leadership

Chair: Lotte Haverman, PhD

Past Chair: Louise Humphrey, MSc

Louise Humphrey is Director of Clinical Outcome Assessment at Clinical Outcomes Solutions. Ms. Humphrey has been involved in quality of life and outcomes research for over 10 years and has an active interest in the use of QOL and outcome measures in clinical practice to support patient care and clinical diagnosis. She has been involved in measurement development and validation in a wide variety of therapeutic areas but has specific expertise in pain, fatigue and women’s health issues. Past research projects include developing clinical screening tools, diagnostics and communications aids to facilitate dialogue between clinician and patient. Ms. Humphrey graduated in psychology from the University of Liverpool, UK and completed a Master’s degree in Social and Organizational Psychology from the University of Exeter, UK.

 

Past Co-Chairs:
Kirstie Haywood 
Colleen Norris
Sandra Beurskens, PhD

INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
555 East Wells Street, Suite 1100, Milwaukee, WI USA 53202
Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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DISCLAIMER
Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.

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