The QOL in Clinical Practice Special Interest Group (CP-SIG) members are a diverse group of researchers and clinicians who share a common interest in the application of health-related quality of life (QOL) measurement in clinical practice settings.
We are open to new and interesting ideas and research to move the field of QOL in clinical practice settings forward.
Ultimately the purpose of the CP-SIG is to share knowledge and experiences by bringing individuals together who are interested in using QOL assessment to better involve, manage and treat individual patients as well as using QOL data for medical decision-making and improve clinical practice.
The aims of the CP-SIG are to:
A Companion Guide to the User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice
Purpose: Where the User’s Guide provides general guidance on how to use patient-reported outcome (PRO) measures in clinical practice, the Companion Guide will expand on this by bringing together real-time case studies. It will include examples of how CP-SIG researchers and clinicians have sought to and incorporated QOL assessment in the real world, including methodologic issues as well as logistical considerations.
A SIG Repository of QOL in Clinical Practice Case Studies
Purpose: The purpose of the repository initiative is to create a space where CP-SIG members can share examples of the work and research they are involved in and provide resources to other researchers and clinicians, such as useful websites and publications.
Activities vary from year to year.
User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice: Written by members of ISOQOL and the CP-SIG, the purpose of this guide is to help clinicians who are interested in using PRO measures in their clinical practice as a tool in patient management. The User’s Guide can be downloaded from http://www.isoqol.org/research/isoqol-publications Citation: International Society for Quality of Life Research (prepared by Aaronson N, Elliott T, Greenhalgh J, Halyard M, Hess R, Miller D, Reeve B, Santana M, Snyder C). User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice, Version: October 2014.
QOL in Clinical Practice bibliography: Please feel free to read through the list of core references related to research in the area of QOL in Clinical Practice. Click here to access the reference list. If you notice that an article that you are aware of is missing, or you would like to add a new article of your own, please email one of the co-chairs with the details – we will update the bibliography at least twice yearly.
We encourage active communication between members.
Watch here for announcements of upcoming QOL in Clinical Practice webinars.
Archived webinars: An introduction to using patient-reported outcome measures (PROMs) to improve clinical care. Presented by Dr. Albert Wu, Dr. Donna Berry and Mr. Jan Geissler on behalf of the CP-SIG. November 2012.
Chair Elect: Lotte Haverman, PhD
Chair: Louise Humphrey, MSc
Louise Humphrey is Director of Clinical Outcome Assessment at Clinical Outcomes Solutions. Ms. Humphrey has been involved in quality of life and outcomes research for over 10 years and has an active interest in the use of QOL and outcome measures in clinical practice to support patient care and clinical diagnosis. She has been involved in measurement development and validation in a wide variety of therapeutic areas but has specific expertise in pain, fatigue and women’s health issues. Past research projects include developing clinical screening tools, diagnostics and communications aids to facilitate dialogue between clinician and patient. Ms. Humphrey graduated in psychology from the University of Liverpool, UK and completed a Master’s degree in Social and Organizational Psychology from the University of Exeter, UK.
Past Char: Sandra Beurskens, PhD
Sandra Beurskens is director of the research center Autonomy and Participation for people with chronic illnesses at Zuyd University of Applied Science. She is also professor of Goal Orientated Measurement in Patient Care at Maastricht University. By combining a chair with a research center at an applied university, a unique collaboration between science and practice occurred which has an added value for both sites. The research projects are performed in close collaboration with the working field, lecturers, and students. Professionals involved are nurses, occupational therapist, speech therapists, biometrics, physiotherapists and family doctors. Ms. Beurskens was originally trained as a physical therapist, health scientist and epidemiologist.
Kirstie Haywood, Colleen Norris