QOL in Clinical Practice
Who are the members?
The QOL in Clinical Practice Special Interest Group (CP-SIG) members are a diverse group of researchers and clinicians who share a common interest in the application of health-related quality of life (QOL) measurement in clinical practice settings.
We are open to new and interesting ideas and research to move the field of QOL in clinical practice settings forward.
What is the role of the CP-SIG?
Ultimately the purpose of the CP-SIG is to share knowledge and experiences by bringing individuals together who are interested in using QOL assessment to better involve, manage and treat individual patients as well as using QOL data for medical decision-making and improve clinical practice.
The aims of the CP-SIG are to:
- Learn, develop and promote best practice in the field of QOL assessments in Clinical Practice research and implementation
- Provide support to CP-SIG members and stimulate research in the field of QOL in Clinical Practice
- Encourage CP-SIG members to meet each other and share relevant research and experiences through ISOQOL and at other professional meetings
- Increase awareness among the general ISOQOL members of the important of clinical practice issues in QOL research
Our research includes, among others topics:
- Developing or adapting QOL instruments for clinical practice
- Determining meaningful differences between or within individuals
- Using data for management of care, for example clinical or shared decision-making, or prognostic, diagnostic or evaluative purposes
- Testing the feasibility and usability of QOL instruments and assessments
- Exploring the impact and effects of QOL assessment within routine clinical practice
- Adapting instruments for people with communication difficulties
- e-health applications of QOL assessments in clinical practice
- Selecting QOL assessments for clinical practice
- Applications of QOL assessments in clinical practice
- Implementations research and knowledge transfer in the field of QOL assessments in daily practice
Activities and Initiatives
- 2018 Annual Report
- A Companion Guide to the User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice
- Download the User's Guide from www.isoqol.org/research/isoqol-publications
- Purpose: Written by members of ISOQOL and the CP-SIG, the purpose of this guide is to help clinicians who are interested in using PRO measures in their clinical practice as a tool in patient management. Where the User’s Guide provides general guidance on how to use patient-reported outcome (PRO) measures in clinical practice, the Companion Guide will expand on this by bringing together real-time case studies. It will include examples of how CP-SIG researchers and clinicians have sought to and incorporated QOL assessment in the real world, including methodologic issues as well as logistical considerations. Citation: International Society for Quality of Life Research (prepared by Aaronson N, Elliott T, Greenhalgh J, Halyard M, Hess R, Miller D, Reeve B, Santana M, Snyder C). User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice, Version: October 2014.
- A SIG Repository of QOL in Clinical Practice Case Studies
- Purpose: The purpose of the repository initiative is to create a space where CP-SIG members can share examples of the work and research they are involved in and provide resources to other researchers and clinicians, such as useful websites and publications.
- QOL in Clinical Practice bibliography: Please feel free to read through the list of core references related to research in the area of QOL in Clinical Practice. Click here to access the reference list. If you notice that an article that you are aware of is missing, or you would like to add a new article of your own, please email one of the co-chairs with the details – we will update the bibliography at least twice yearly.
Communication and Information Sharing
We encourage active communication between members.
- Connect with other CP-SIG researchers using the ISOQOL Membership Directory.
- Review the Quality of Life Quarterly, ISOQOL's quarterly newsletter, to keep up to date.
- Consider the CP-SIG Teamwork and ISOQOL LinkedIn as a way to connect with fellow SIG members.
- Contact one of the leaders listed below for more information.
Chair: Kathryn Flynn, PhD
Kathryn was trained in sociology and population health sciences at the University of Wisconsin. She completed a post-doctoral fellowship on patient-reported outcomes at Duke University, where she co-led the development of the PROMIS Sexual Function and Satisfaction measure. Currently, she is Associate Professor of Medicine at the Medical College of Wisconsin and Senior Scientific Director for Patient-Reported Outcomes at the Center for International Blood and Marrow Transplant Research.
Chair-Elect: Kate Absolom, PhD
Kate is a University Academic Fellow working with the Patient Centred Outcomes Research Group and Division of Health Services Research at the University of Leeds. She has a background in psychology and experience of delivering a range of research projects exploring the quality of life implications of cancer and using patient reported data in oncology settings. Kate's recent research focus has been the development and evaluation of clinically integrated online PRO monitoring systems to support care during cancer treatment.
Lotte Haverman, PhD
Kirstie Haywood, DPhil
Louis Newton, MSc
Colleen Norris, PhD
Sandra Beurskens, PhD