International Society for Quality of Life Research
International Society for Quality of Life Research

Industry Special Interest Group (I-SIG)

[Formerly the Industry Advisory Committee (IAC)]

Who is the I-SIG?

The Industry Special Interest Group (I-SIG) members are a diverse group of researchers from the pharmaceutical and device industry, academia and consulting, who share a common interest in the application of patient-centered outcomes, including health-related quality of life (HRQOL), in research important to industry.

We are interested in innovative methods and research in patient-centered outcomes measurement for use in research important to industry.

What are our aims?

The purpose of the I-SIG is to synthesize, share, promote and educate on industry-related patient-centered outcomes research by bringing individuals together who are interested in topics of joint interest to industry and ISOQOL.

Our specific goals are to:

  • Learn, develop and promote best practice in the field of patient-centered outcomes research and implementation in industry-related research
  • Provide support to I-SIG members and stimulate research in this field
  • Encourage I-SIG members to meet and share relevant research and experiences through ISOQOL and at other professional meetings
  • Increase awareness among the general ISOQOL members of issues important to industry

Our research includes, among others topics:

  • Methods for selecting, developing or adapting patient-centered outcomes instruments for use in industry-related research
  • Testing the feasibility and usability of patient-centered outcomes instruments
  • Implementation of patient-centered outcomes instruments in industry-related research
  • Design of studies involving patient-centered outcomes instruments
  • Analysis and interpretation of patient-centered outcomes data
  • See links below to our online education webinars related to these research topics 

Current I-SIG Initiatives:

2018 Annual Report

Annual Conference Activities:

2019 Annual Symposium: topic to be determined

Past Symposium Topics:

  • 2018: Meaning in movement: Defining valid endpoints using data collected with mobile technology tools
  • 2017: Real-world evidence to support approval and reimbursement: new frontier?
  • 2016: Incorporating the patient voice in benefit risk assessment and regulatory/HTA decision making
  • 2015: Bring Your Own Device (BYOD): trends, best practices, challenges….where do PRO measures go from here?
  • 2014: Advancing Measurement Science Beyond PROs: Patient-Centeredness and Validity Across All Clinical Outcome Assessments
  • 2013: Innovations for Patient Engagement in Health Outcomes Development, Selection and Measurement: Opportunities and Limitations
  • 2012: Perspectives on Mixed Methods to Assess Content Validity of a Patient Reported Outcome
  • 2011: To Qualify or Not to Qualify: Benefits and Challenges of PRO Instrument Qualification from Industry, Academic, and Regulatory Perspectives

Communication and Information Sharing

We encourage active communication between members.

  • Connect with other I-SIG researchers using the ISOQOL Membership Directory.
  • Review the Quality of Life Quarterly, ISOQOL's quarterly newsletter, to keep up to date.
  • Consider the I-SIG Teamwork and ISOQOL LinkedIn as a way to connect with fellow I-SIG members.
  • Contact one of the I-SIG leaders listed below for more information.

Online Education

Leadership

Co-Chair: Paivi Miskala, MSPH, PhD

Co-Chair: Linda Nelsen, MHS

Past Leadership

Josephine Norquist, MS
Emuella Flood

 

INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
555 East Wells Street, Suite 1100, Milwaukee, WI USA 53202
Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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DISCLAIMER
Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.

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