The Child Health Special Interest Group (CH-SIG) members are a diverse group of researchers who share a common interest in the quality of life of children. We are open to new and interesting ideas and research to move the field of children’s QoL forward.
We encourage active communication between members.
Nalin Payakachat, Co-Chair
Nalin Payakachat is an Associate Professor with tenure in the Division of Pharmaceutical Evaluation and Policy, College of Pharmacy, University of Arkansas for Medical Sciences (UAMS). Nalin has been an ISOQOL member since 2009 and an associate editor for the journal Quality of Life Research since 2016. Nalin’s research involves selecting appropriate PRO measures for specific populations, validating existing PRO measures, and exploring family and caregiver spillover effects. Her work on child health focuses on measuring quality of life of children with chronic conditions (such as autism, craniofacial malformation, and developmental disabilities) and also how such chronic conditions impact the health of parents. As a PRO measure may have different sensitivity/responsiveness to detect changes in a population that is different from the one for which it was developed and validated, Nalin is interested to test which PRO instruments work in child health. Nalin also developed a PRO course for graduate students at UAMS. Her PRO course has been offered since 2009.
Jeanne Landgraf, Co-Chair
Jeanne Landgraf has been actively involved in the development of child PRO’s for almost 30 years with research experience at Dartmouth Medical School/Dept.of Community and Family Medicine and The Health Institute/Tufts New England Medical Center. She is the founding scientific officer at HealthActCHQ in Boston, MA USA. Ms. Landgraf has instructed at the Harvard School of Public Health and served as associate editor for Quality of Life Research for 10 years. Jeanne’s background is in ethnography/discourse analysis, language acquisition, questionnaire development and applied outcomes and benchmarking at the physician practice level. She is the principal developer of the Child Health Questionnaire (CHQ) and the Infant Toddler Quality of Life Questionnaire (ITQOL) of which there are more than 353 language versions. She has also developed PRO child surveys for ADHD/ADD, enuresis, neonatology, asthma/allergy and patient satisfaction. Her current interest is in the exploration and integration of novel approaches for measuring and eliciting PRO data from the very young, their families and those with special needs.
Robert Arbuckle, Co-Chair
Rob Arbuckle leads a team of over 35 Patient-Centered Outcomes researchers at Adelphi Values in the UK and has been involved in the development of clinical outcome assessments (COA) since 2002. Rob provides strategic input and direction on projects focused on the selection, development, validation and implementation of all types of Clinical Outcome Assessments (COA) – including Patient-Reported Outcomes (PRO), Clinician-Reported Outcomes (ClinRO) and Observer-Reported Outcomes (ObsRO). Rob has developed measurs in a wide variety of health conditions. Rob has a particular interest in developing PRO and ObsRO assessments for use is pediatric populations and also has extensive experience of developing and testing measures in rare disease populations. Rob has extensive experience of overseeing all types of PRO/COA development research and measurement strategy including literature reviewing, concept elicitation and cognitive interviews, qualitative exit interviews, eCOA development/migration, psychometric evaluation studies, and preparing regulatory submissions. Rob has authored numerous manuscripts and poster presentations focused on development, validation and use of endpoints. He is a reviewer for Quality of Life Research and Value in Health and has frequently presented workshops and presentations on PROs at scientific meetings. Rob has an MA in Psychology from Edinburgh University and an MSc in Applied Psychology from Manchester University.
Katherine Bevans, PhD
Anne-Catherine Haller, Dipl.Psych
Anne Riley, PhD
Ulrike Ravens-Sieberer, MPH
Nancy Young, PhD