International Society for Quality of Life Research
International Society for Quality of Life Research

Child Health Special Interest Group

Who are the members?

The Child Health Special Interest Group (CH-SIG) members are a diverse group of researchers who share a common interest in the quality of life of children.

We are open to new and interesting ideas and research to move the field of children’s QoL forward.

Our aims are to:

  • create a critical mass with which to tackle key methodological challenges collectively

  • provide educational material, in the form of webinars, roundtables, etc.

  • stimulate excellent child health-related quality of life research

  • foster improvements in child health and across the transition to early adulthood

  • increase awareness among the general ISOQOL membership of the importance of child health

We provide a structure for networking by:

  • connecting researchers with similar interests to strengthen our collective knowledge

  • sharing experiences, research, and publications

  • facilitating discussions that advance research and application

  • remaining current on issues of interest in the field

  • supporting the development of trainees

Our research includes:

  • developing new avenues/methods for child-reported outcomes

  • exploring opportunities to augment self-report with observational methods for those not able to provide self-report

  • maximizing the value of data from multiple perspectives

  • adapting instruments for respondents with low literacy, visual, cognitive and other functional challenges

  • assessing the long term effects of a variety of health strategies

  • investigating mechanisms to assess change over time across the developmental trajectory

  • determining meaningfulness of change and response shift

  • establishing associations between scores from multiple instruments (i.e., cross walks)

Communication and Information Sharing:

We encourage active communication between members.

  • Connect with other CH-SIG researchers using the ISOQOL Membership Directory.
    • Note you will need to login and select “Child Health” under the “Specialty Search” tab.

  • Review the Quality of Life Quarterly, ISOQOL's quarterly newsletter, to keep up to date.

  • Consider the CH-SIG Listserv and ISOQOL LinkedIn as a way to connect with fellow CH-SIG members.

Current Activities

2018 Annual Report

Leadership

Current Chairs: Jeanne M. Landgraf (USA), Anne-Catherine Haller (Germany), Nalin Payakachat (USA)

Jeanne M. Landgraf (USA)
Jeanne Landgraf has been actively involved in the development of child PRO’s for almost 30 years with research experience at Dartmouth Medical School/Dept.of Community and Family Medicine and The Health Institute/Tufts New England Medical Center. She is the founding scientific officer at HealthActCHQ in Boston, MA USA. Ms. Landgraf has instructed at the Harvard School of Public Health and served as associate editor for Quality of Life Research for 10 years. Jeanne’s background is in ethnography/discourse analysis, language acquisition, questionnaire development and applied outcomes and benchmarking at the physician practice level. She is the principal developer of the Child Health Questionnaire (CHQ) and the Infant Toddler Quality of Life Questionnaire (ITQOL) of which there are more than 129 language versions with new translations continuously being added. She has also developed PRO child surveys for ADHD/ADD, enuresis, neonatology, asthma/allergy and patient satisfaction. Her current interest is in the exploration and integration of novel approaches for measuring and eliciting PRO data from the very young, their families and those with special needs

Anne-Catherine Haller (Germany)
Anne-Catherine Haller is a research assistant and lecturer at the Faculty of Psychology at the University of Applies Sciences Fresenius in Hamburg. Ms Haller’s doctoral research focuses on risk and protective factors of mental health and health-related quality of life in children and adolescents in Germany. Past research projects include the WHO-HBSC linked study on the health behaviour, mental health, and health-related quality of life of children and adolescents in Kosovo. She is a member of the junior research group Preventive Strategies for Mental Health of Children and Adolescents supported by the Foundation for German Science. Ms Haller graduated from the University of Hamburg as a clinical and educational psychologist with a focus on child mental health and a minor in social anthropology.
 

Nalin Payakachat (USA)
Nalin Payakachat is an Associate Professor with tenure in the Division of Pharmaceutical Evaluation and Policy, College of Pharmacy, University of Arkansas for Medical Sciences (UAMS). Nalin has been an ISOQOL member since 2009 and an associate editor for the journal Quality of Life Research since 2016. Nalin’s research involves selecting appropriate PRO measures for specific populations, validating existing PRO measures, and exploring family and caregiver spillover effects. Her work on child health focuses on measuring quality of life of children with chronic conditions (such as autism, craniofacial malformation, and developmental disabilities) and also how such chronic conditions impact the health of parents.  As a PRO measure may have different sensitivity/responsiveness to detect changes in a population that is different from the one for which it was developed and validated, Nalin is interested to test which PRO instruments work in child health. Nalin also developed a PRO course for graduate students at UAMS. Her PRO course has been offered since 2009.

Past Leadership:
Nancy Young, PhD
Katherine Bevans, PhD
Anne Riley, PhD
Ulrike Ravens-Sieberer, MPH

INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
555 East Wells Street, Suite 1100, Milwaukee, WI USA 53202
Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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DISCLAIMER
Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.

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