Child Health Special Interest Group
Who are the members?
The Child Health Special Interest Group (CH-SIG) members are a diverse group of researchers who share a common interest in the quality of life of children. We are open to new and interesting ideas and research to move the field of children’s QoL forward.
Our aims are to:
- create a critical mass with which to tackle key methodological challenges collectively
- provide educational material, in the form of webinars, roundtables, etc.
- stimulate excellent child health-related quality of life research
- foster improvements in child health and across the transition to early adulthood
- increase awareness among the general ISOQOL membership of the importance of child health
We provide a structure for networking by:
- connecting researchers with similar interests to strengthen our collective knowledge
- sharing experiences, research, and publications
- facilitating discussions that advance research and application
- remaining current on issues of interest in the field
- supporting the development of trainees
Our research includes:
- developing new avenues/methods for child-reported outcomes
- exploring opportunities to augment self-report with observational methods for those not able to provide self-report
- maximizing the value of data from multiple perspectives
- adapting instruments for respondents with low literacy, visual, cognitive and other functional challenges
- assessing the long term effects of a variety of health strategies
- investigating mechanisms to assess change over time across the developmental trajectory
- determining meaningfulness of change and response shift
- establishing associations between scores from multiple instruments (i.e., cross walks)
Communication and Information Sharing
We encourage active communication between members.
- Connect with other Child Health researchers using the ISOQOL Membership Directory.
- Review the Quality of Life Quarterly, ISOQOL's quarterly newsletter, to keep up to date.
- Consider the Child Health Teamwork and ISOQOL LinkedIn as a way to connect with fellow SIG members.
- Contact one of the Child Health SIG leaders listed below for more information.
Chair: Nalin Payakachat, BPharm, MS, PhD
Nalin Payakachat is an Associate Professor with tenure in the Division of Pharmaceutical Evaluation and Policy, College of Pharmacy, University of Arkansas for Medical Sciences (UAMS). Nalin has been an ISOQOL member since 2009 and an associate editor for the journal Quality of Life Research since 2016. Nalin’s research involves selecting appropriate PRO measures for specific populations, validating existing PRO measures, and exploring family and caregiver spillover effects. Her work on child health focuses on measuring quality of life of children with chronic conditions (such as autism, craniofacial malformation, and developmental disabilities) and also how such chronic conditions impact the health of parents. As a PRO measure may have different sensitivity/responsiveness to detect changes in a population that is different from the one for which it was developed and validated, Nalin is interested to test which PRO instruments work in child health. Nalin also developed a PRO course for graduate students at UAMS. Her PRO course has been offered since 2009.
Chair Elect: Robert Arbuckle, Adelphi Values
Katherine Bevans, PhD
Anne-Catherine Haller, Dipl.Psych
Anne Riley, PhD
Ulrike Ravens-Sieberer, MPH
Nancy Young, PhD