International Society for Quality of Life Research
International Society for Quality of Life Research


 Who is the Canada-PRO SIG?

We are a diverse group of Canadian researchers, clinicians, patients and decision makers with a common interest in promoting and harmonizing patient reported outcomes (PRO) research and use in Canada. We invite you to come join us to meet up with old friends, engage with new colleagues, discuss and debate tried and true methods and innovative approaches to shape the future of QOL research in Canada.

Purpose of the Canada-PRO Special Interest Group

  • Create a network for Canadian PRO investigators and clinicians
  • Discuss methodological issues, developments, and generate new ideas to move PRO research and use forward in Canada
  • Work together on projects to advance PRO research and application of PRO measures in clinical practice and policy planning.
  • Share experiences and facilitate networking
  • Stay up to date on issues of interest
  • Provide support for Canadian students, fellows, new investigators, and first time attendees at ISOQOL
  • Work on joint projects with the other SIGs


2018 Annual Report

Annual Conference SIG Meeting
Is there something you would like to see discussed at this year’s SIG meeting? Please contact the co-chairs so this can be added to the agenda.

Communication and Information Sharing

Listserv: Connect with Canada-PRO SIG members through the listserv

Quality of Life Quarterly: ISOQOL's quarterly newsletter will include updates from the Canada-PRO SIG Chairs


Sara Ahmed, PhD
Dr. Sara Ahmed is an Associate Professor of Medicine at McGill University.  Originally trained as a Physical Therapist, she holds a PhD in Epidemiology and Biostatistics, and a postdoctoral fellowship in Clinical and Health Informatics. Supported by federal, provincial, and private industry funds, her research includes studies that 1) address the challenges of using patient reported outcomes in chronic disease management programs, and the use of advanced psychometric approaches for improving the precision and efficiency of outcome evaluations, 2) develop and evaluate the impact of chronic disease computer-enabled self-management interventions integrated into electronic personal health records, and 3) knowledge exchange and transfer related to best practices for chronic disease management.  She leads the Chronic Disease and Health Informatics Research Lab and is the co-founder of the Canada PRO Initiative. Dr. Ahmed has been a member of ISOQOL since 2000, sat on the ISOQOL Board of Directors (2010-2012), and served as co-chair of the 2012 conference in Budapest.

Susan Bartlett, PhD
Susan Bartlett PhD is Associate Professor of Medicine in the Division of Clinical Epidemiology, Rheumatology and Respirology at McGill University, and Adjunct Associate Professor of Medicine in the Division of Rheumatology at the Johns Hopkins School of Medicine. Dr. Bartlett is a clinical psychologist, graduating from Syracuse University in 1995, with postdoctoral training at Johns Hopkins in obesity, clinical investigations, and behavioral epidemiology. She is the Canadian representative in the PROMIS International working group, co-founder of the Canada Pro Initiative, a Steering Committee member for the Rheumatoid Arthritis Working Group of OMERACT.  Her research focuses on the development and use of patient reported outcomes in relation to clinical care and research, and implementing behavioral interventions in chronic conditions (arthritis, asthma, COPD). Dr. Bartlett has been a member of ISOQOL since 2007, served as co-chair of the 2014 annual conference in Berlin, and currently sits on the Board of Directors.

Past Leadership:
Skye Barbic, PhD
Nancy Mayo, PhD
Sharon Wood-Dauphinee, PhD

555 East Wells Street, Suite 1100, Milwaukee, WI USA 53202
Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349

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