International Society for Quality of Life Research
International Society for Quality of Life Research


 Who is the Canada-PRO SIG?

We are a diverse group of Canadian researchers, clinicians, patients and decision makers with a common interest in promoting and harmonizing patient reported outcomes (PRO) research and use in Canada. We invite you to come join us to meet up with old friends, engage with new colleagues, discuss and debate tried and true methods and innovative approaches to shape the future of QOL research in Canada.

Purpose of the Canada-PRO Special Interest Group

  • Create a network for Canadian PRO investigators and clinicians
  • Discuss methodological issues, developments, and generate new ideas to move PRO research and use forward in Canada
  • Work together on projects to advance PRO research and application of PRO measures in clinical practice and policy planning.
  • Share experiences and facilitate networking
  • Stay up to date on issues of interest
  • Provide support for Canadian students, fellows, new investigators, and first time attendees at ISOQOL
  • Work on joint projects with the other SIGs


2019 Annual Report

2018 Annual Report


The Canada-PRO SIG meets yearly at the ISOQOL Annual Conference. If there is an item you would like to see discussed at this year's SIG meeting, contact the SIG leadership listed below.

Communication and Information Sharing

We encourage active communication between members.

  • Connect with other Canada-PRO researchers using the ISOQOL Membership Directory.
  • Review the Quality of Life Quarterly, ISOQOL's quarterly newsletter, to keep up to date.
  • Consider the Canada-PRO Teamwork and ISOQOL LinkedIn as a way to connect with fellow SIG members.
  • Contact one of the leaders listed below for more information.


Chair: Ayse Kuspinar, BSc(PT), MSc, PhD

Dr. Ayse Kuspinar is an Assistant Professor in the School of Rehabilitation Science, McMaster University. Originally trained as a physiotherapist, she holds a PhD in Rehabilitation Sciences from McGill University, and a postdoctoral fellowship from the School of Public Health & Health Systems at the University of Waterloo. Dr. Kuspinar's research focuses on outcome measurement challenges in quality of life research, including refinement and adaptation of existing patient-reported outcomes, development of new measures using advanced measurement methods, and psychometric testing of current measures in new settings or patient populations. Dr. Kuspinar has been a member of ISOQOL since 2009.


Chair-Elect: Nora Fayed, PhD, MSc, OT

Dr. Nora Fayed is an Assistant Professor in the School of Rehabilitation Therapy, Queen's University. Originally trained as an occupational therapist she holds a PhD in Rehabilitation Sciences from McMaster University. Former fellowships include a Marie-Curie EU Fellowship at the ICF Research Branch, Germany and a CIHR Fellowship at the Division of Health Care and Outcomes Research, University Health Network. Her research is focused on selecting and measuring patient-important outcomes in collaboration with families of children with chronic disease. Dr. Fayed has been a member of ISOQOL since 2007.


Past Leadership

Sara Ahmed, PhD
Skye Barbic, PhD
Susan Bartlett, PhD

Nancy Mayo, PhD
Sharon Wood-Dauphinee, PhD

555 East Wells Street, Suite 1100, Milwaukee, WI USA 53202
Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349

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Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.


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