The Australia and New Zealand SIG brings together Australian and New Zealand researchers in the field of quality of life research. Given geographical remoteness of Australian and New Zealand quality of life researchers from colleagues in the northern hemisphere, there is a need for a local-based organization to bring together and support local researchers.
The aims of the SIG are to foster connections between local researchers and facilitate exchange of ideas, development of collaborative opportunities and discussion and dissemination of PRO-related findings from SIG members. The SIG also supports and nurtures emerging local researchers working in the area of quality of life research through providing forum to discuss their work with experienced researchers and mentorship opportunities.
We encourage active communication between members.
Chair: Rasa Ruseckaite, PhD
Dr. Rasa Ruseckaite is a Senior Research Fellow at the Transfusion Research Unit at the Department of Epidemiology and Preventive Medicine, Monash University. With an undergraduate degree in Science, Rasa has a Master of Science and two PhDs; one in Applied Computer Science from Vytautas Magnus University in Lithuania and the other in Neuroscience from the Australian National University in 2004.
She leads a number of projects involving analysis of the Massive Transfusion Registry data from Australia and New Zealand. This registry is a unique and important resource for clinicians in Australia, New Zealand and internationally, for Blood Services and for the broader community. It provides observational data regarding the types and frequency of conditions associated with critical bleeding requiring massive transfusion, the use of blood component therapy, patient outcomes and quality of life.
Chair Elect: Rebecca Mercieca-Bebber
Rebecca Mercieca-Bebber is a Research Officer at the Quality of Life Office, University of Sydney, where she provides advice about patient-reported outcomes to the 13 Australian Cancer Clinical Trials Groups. Her PhD is focused on methodological issues with protocol development, reporting of PRO studies, and strategies for reducing the problem of missing PRO data in clinical trials.
Secretary/Treasurer: Natasha Roberts, BN(Hons)
Natasha gained her Bachelor of Nursing in 1995, honours degree in 2001, and has worked clinically in intensive care and oncology. She has been caring for patients participating in clinical trials since 2011. At present she is in her final year of her PhD in public health, investigating implementation of PROMs in routine clinical oncology care.
Photo: Inaugural meeting of SIG Australia, Vancouver, 2015 (from left to right: Rebecca Mercieca-Bebber, Hayley Whitford, Lucy Busija, Rasa Rusekaite, Madeleine King, Claudia Rutherford).