International Society for Quality of Life Research
International Society for Quality of Life Research

Call for Papers

The editors of Quality of Life Research are planning two special issues on prominent topics in health-related quality of life research.

Those interested in participating in special issues must submit a letter of intent, and a subset of these letters of intent will be invited to submit a full manuscript. The issue topics and letter of intent deadlines are listed below. Click on each title for further information.

"Non-parametric Measurement for Patient Reported Outcomes"
Letters of intent due 30 September 2019

"Consequences of Overdiagnosis for (Health-related) Quality of Life"
Deadline TBA

"Non-parametric Measurement for Patient Reported Outcomes"

The Editors of Quality of Life Research are planning a special issue to illuminate current and innovative state-of-the-art methods for nonparametric measurement. Recent years have seen an increase in popularity of nonparametric item response theory (NP-IRT) and Mokken scale analysis in health-related quality of life data. Because NP-IRT models are more flexible and have better data fit than their parametric counterparts, NP-IRT models and the related scaling procedure, Mokken scale analysis, are very useful for the construction of Patient Reported Outcome (PRO) instruments.

We are seeking accessibly written papers tailored to the needs of Quality of Life researchers exemplifying excellent science to develop, expand, or evaluate existing methodology, or applying appropriate state-of-the-art nonparametric IRT methods to PRO and/or (health-related) quality of life data. Papers may include the following, but are not limited to:

Illustrative Applications

  • Applications of NP-IRT to (health-related) quality of life instruments presenting the specific research questions NP-IRT help to answer and/or specific advantages of NP-IRT methods.
  • Comparing applications of different measurement methods (incl. NP-IRT) to the same data, illustrating how different model-based analyses can be combined and jointly support the evaluation of psychometric properties.
  • The use of nonparametric person-fit analysis in (health-related) quality of life research.

Methodological development or evaluation

  • Comparative reviews of NP-IRT/Mokken scale analysis including available software.
  • Simulation studies exploring PRO-relevant scenarios, for example comparing software or modeling approaches.
  • Comparing methods for item selection and model fit, with an eye to robustness issues.
  • Development of methods and further investigation of existing methods testing the assumptions of nonparametric item response theory models.

It is expected that all papers that present analyses are published with online appendices outlining the analytic strategy and detailed instructions (or code where possible) for how to conduct the analyses presented in the paper.

To participate in this call, please submit a letter of intent with draft title, contact information and institution for all co-authors, and a structured abstract (500 word maximum). A subset of these letters of intent will be invited to submit a full manuscript.

This issue will be co-edited by guest editors Andries van der Ark (University of Amsterdam) and Klaas Sijtsma (Tilburg University).

Anticipated timeline:

Letters of intent will be accepted and handled on an ongoing basis until the final submission deadline of 30 September 2019. Please email the letters to Jan R. Boehnke (j.r.boehnke@dundee.ac.uk) and Claudia Rutherford (claudia.rutherford@sydney.edu.au).

Invitations for full papers will be provided within two weeks after submission of the letter of intent.

After invitation, manuscript submissions will be handled on an ongoing basis and sent out to review. The final deadline for the submission of a first full version of an invited manuscript is the 15 January 2020.

Papers will be published online-first if accepted after normal peer-review. We anticipate to publish the special section in print in winter 2020/2021.

 

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"Consequences of Overdiagnosis for (Health-related) Quality of Life"

The Editors of Quality of Life Research are planning a special issue to illuminate current and innovative state-of-the-art thinking, evidence, and methodological and clinical approaches to overdiagnosis and its consequences for (health-related) quality of life (HR)QOL. Overdiagnosis has been recognized as a key problem in contemporary healthcare. It is an issue across a wide range of services, diseases, and disorders, and is likely to need a response from a wide range of actors involved in treatment, care, and rehabilitation. While the topic in itself is widely recognised, the specific consequences for patients' and carers' (health-related) quality of life remain underexplored.

For the purposes of the special issue we are following a broad definition of the term "overdiagnosis", which is used to describe for example:

  • "[...] when people without symptoms are diagnosed with a disease that ultimately will not cause them to experience symptoms or early death." and "[m]ore broadly defined, overdiagnosis refers to the related problems of overmedicalisation and subsequent overtreatment, diagnosis creep, shifting thresholds, and disease mongering, all processes helping to reclassify healthy people with mild problems or at low risk as sick." (Moynihan et al., 2012, BMJ, 344:e3502)
  • "[...] overdiagnosis and any subsequent overtreatment are terms generally used about instances in which a diagnosis is ‘correct’ according to current standards but the diagnosis or associated treatment has a low probability of benefitting the patient, and may instead be harmful." (Armstrong, 2018, BMJ Qual Saf, 27:571–574)

As widely described in the literature, overdiagnosis negatively impacts health care systems in a variety of ways. In this special issue we are interested in receiving submissions that focus on the consequences experienced by patients and/or carers, especially with view to their (HR)QOL. We are looking for innovative theoretical approaches, applications, and research around exploring this issue. More specifically we are looking for manuscripts including but not limited to:

  • Contributions to theoretical and empirical approaches to capturing overmedicalisation and its consequences for (HR)QOL.
  • Approaches to reduce the occurrence of overdiagnosis in services by using subjective outcome data (e.g., PROMs, CREMs).
  • Approaches to reduce the occurrence of overdiagnosis in services and their effect on patients' (HR)QOL.
  • Conceptual and empirical studies on how to use archival and routine outcome data to investigate the occurrence of overdiagnosis and its consequences.
  • The main thrust of the call is focused on patients and their (HR)QOL, but manuscripts focusing on the (HR)QOL of other stakeholders (especially carers) are welcome and will also be considered.

To participate in this call, please submit a letter of intent with draft title, contact information and institution for all co-authors, and a structured abstract (300 word maximum). A subset of these letters of intent will be invited to submit a full manuscript.

The deadline for letters of intent and an anticipated publication timeline will be announced here soon.

Please email the letters to Jan R. Boehnke (j.r.boehnke@dundee.ac.uk) and Claudia Rutherford (claudia.rutherford@sydney.edu.au).

 

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INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
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Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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