International Society for Quality of Life Research
International Society for Quality of Life Research

   

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2018 MEASURING WHAT MATTERS SYMPOSIUM

How should we be measuring functioning as a marker of clinical benefit in clinical trials?

23-24 July 2018
Arlington, VA, United States

Function is a multidimensional concept that is emerging as an important aspect of clinical benefit assessment across therapy areas, as well as a concept that matters greatly for patients (and families), regulators, HTA groups, clinicians and payers when making medical decisions.  

The aims of the symposium are to discuss definitions and concepts of functioning, to identify fit-for-purpose approaches to measurement (including novel technologies) and to identify evidence needs for different stakeholders, including regulators, payers, clinicians and patients.  By organizing a range of stakeholders together, we hope to inspire collaboration across fields, and further strategies to generate meaningful data on patients’ functioning in clinical trials.

 Program Goals

  1. To develop a greater understanding of measurement concepts related to functioning, and how these may vary by therapeutic focus.
     
  2. To identify fit-for-purpose approaches to measuring functioning in clinical trial and real-world settings.
     
  3. To understand evidence needs from different stakeholders including regulators, payers, clinicians and patients

Co-Chairs: Tom Willgoss, Jennifer A. Petersen, Andrew E. Mulberg

ISOQOL Board Liaison: Diana Rofail

 

INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH
555 East Wells Street, Suite 1100, Milwaukee, WI USA 53202
Phone: +1 (414) 918-9797; Fax: +1 (414) 276-3349
Email: info@isoqol.org

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