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Links to Sites and
Annotated Bibliography of Favorite and Classic Articles
Concerned with Health-Related Quality of Life Research

Updated July, 2004


The following sites and resources may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information contained in the sites. These links do not imply endorsement of quality and do not constitute implicit recommendation from ISOQOL. Please notify us if any of the links is inactive, or with suggestions for additional links.



Links

Organizations & Non-profit Research Centers

American Psychosocial Oncology Society (APOS)
http://www.apos-society.org

The American Psychosocial Oncology Society (APOS), formerly the American Society for Psychosocial and Behavioral Oncology/AIDS (ASPBOA), was formed as a Chapter of IPOS in 1984. In 2002, APOS was incorporated as a national, multidisciplinary organization and approved as a nonprofit Society dedicated to promoting the psychological, social, behavioral, spiritual and physical well being of patients with cancer and allied diseases and their families at all stages of disease and survivorship, through clinical care, education, research and advocacy. Current APOS initiatives include the support of a toll free telephone helpline and interactive website database of individuals providing support for cancer patients and their caregivers; presentation of an online curriculum with 15 modules in psychosocial oncology; development of a pocket handbook of the essentials of psychosocial oncology; psychosocial training for oncology nurses; an Annual meeting; and much more as time and funding permits. APOS had 277 paid members in 2003. For more information, contact APOS headquarters:
Ms. Elliott Graham
Executive Director
American Psychosocial Oncology Society
2365 Hunters Way
Charlottesville, VA 22911
Telephone: 434.293.5350
Facsimile: 434.977.0899
e-mail: egraham@apos-society.org

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American Cancer Society
www.cancer.org
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

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American Medical Informatics Association
www.amia.org
AMIA is dedicated to the development and application of medical informatics in the support of patient care, teaching, research, and health care administration.

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AcademyHealth
www.academyhealth.org
Its primary mission is to increase the contribution that health services research makes to improving the health care system and health status of Americans.

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American Society of Clinical Oncology
www.asco.org
As a non-profit organization, ASCO is dedicated to achieving its charitable mission outlined by the organization’s founders in 1964. ASCO strongly supports all types of cancer research, but in particular, patient-oriented clinical research.

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American Thoracic Society
www.thoracic.org
The American Thoracic Society is an independently incorporated, international, educational and scientific society which focuses on respiratory and critical care medicine. The Society's members help prevent and fight respiratory disease around the globe through research, education, patient care, and advocacy. The Society's long-range goal is to decrease morbidity and mortality from respiratory disorders and life-threatening acute illnesses.

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Belgian Institute for Health Economics (BIGE-IBES)
www.ibes-bige.be
The Belgian Institute for Health Economics site aims at offering every quarter some new general data or specific information on health economics, with focus on pharmaco-economics, mainly for Belgium.

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Center for International Rehabilitation Research Information and Exchange
www.cirrie.buffalo.edu
CIRRIE's mission is to facilitate the sharing of information and expertise in rehabilitation research between the U.S. and other countries.

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Cochrane Collaboration - Health Related QoL Methods Group
www.cochrane.org/cochrane/mwgfield.htm#HRQL
The overall aim of the group is preparing, maintaining and promoting the accessibility of systematic reviews of the effects of health care interventions. The link gives contact information for the health related quality of life working group.

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Decision Analysis Society of INFORMS
faculty.fuqua.duke.edu/daweb
The Society promotes the development and use of logical methods for the improvement of decision-making in public and private enterprise.

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Drug Information Association
www.diahome.org
Trade organization sponsors and annual meeting on quality of life assessment.

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U.S. Food and Drug Administration
www.fda.gov
Regulatory agency of the U.S. Many slide sets related to quality of life, such as "Defining Quality of Life for Oncologic Drug Approval," Carol M. Moinpour, PhD. 10 February 2000.

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Health Measurement Research Group
http://www.healthmeasurement.org/
Health care professionals and policy makers have set high goals for improving the health and well-being of the public in the coming years. Understanding how well these health goals are met requires having measures of health-related quality of life that can be used across different settings and different groups of people. The goals of the research group are to evaluate the use of widely used health measures, understand the strengths and limitations of each, and create a versatile "toolbox" of summary measures of health that can be used to track changes in the public’s health over time. The Health Measurement Research Group represents an ongoing collaborative effort among health services researchers at UCLA, the University of Wisconsin, and the University of California, San Diego. At the end of our studies, public use data sets will be made available to other health service researchers interested in pursuing research on health-related quality of life issues.

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International Clinical Epidemiology Network
www.inclentrust.org
INCLEN is dedicated to improving the health of the people by promoting clinical practice based on the best evidence of effectiveness and the efficient use of resources.

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International Health Economics Association
healtheconomics.org/cgi-bin/WebObjects/ihea
HEA was formed to increase communication among health economists, foster a higher standard of debate in the application of economics to health and health care systems, and assist young researchers at the start of their careers.

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International Medical Informatics Association
www.imia.org
Aims to promote informatics in health care and biomedical research, advance international cooperation, stimulate research, development and routine application, further the dissemination and exchange of information, and encourage education and responsible behaviour.

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International Psycho-Oncology Society
The American Society of Psychosocial and Behavioral Oncology/AIDS
www.ipos-aspboa.org
The mission of these societies is to promote the psychological, social, and physical well being of patients with cancer, AIDS and allied diseases and their families at all stages of disease and survivorship through clinical care, education, research, and advocacy.

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International Society for Pharmacoeconomics and Outcomes Research (ISPOR)
www.ispor.org
is an international non-profit organization formed in 1995 to promote the practice and science of pharmacoeconomics and health outcomes assessment.

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International Society for Pharmacoepidemiology
www.pharmacoepi.org
The International Society for Pharmacoepidemiology (ISPE) is a non-profit international professional membership organization dedicated to promoting pharmacoepidemiology, the science which applies epidemiologic approaches to studying the use, effectiveness, value and safety of pharmaceuticals. ISPE is firmly committed to providing an unbiased scientific forum to the views of all parties with interests in drug development, drug delivery, drug use, drug costs, and drug effects.

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International Society for Quality of Life Studies
www.cob.vt.edu/market/isqols
The goals of the society are to stimulate interdisciplinary research in quality-of-life (QOL) studies within the managerial (policy), behavioral, social, medical, and environmental sciences; To provide an organization which all academic, business, nonprofit, and government researchers who are interested in QOL studies can coordinate their efforts to advance the knowledge base and to create positive social change, and; To encourage closer cooperation among scholars engaged in QOL research to develop better theory, methods, measures, and intervention programs.

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Health Technology Assessment international
www.htai.org
The International Society for Technology Assessment in Health Care (ISTAHC) has metamorphosed into Health Technology Assessment international (HTAi). HTAi's mission is 'to support the development, communication, understanding and use of HTA globally as a scientifically based means of promoting the introduction of effective innovation and the effective use of resources in health care'.

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MAPI Research Institute
http://www.mapi-research.fr/
MAPI Research Institute is a non-profit international health outcomes organisation established to support and promote research in the field of Health-Related Quality of Life (HRQoL). The Institute has particular expertise in cultural adaptation and linguistic validation of questionnaires, helpful instrument pages, a widely distributed newsletter and useful links.

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Medical Outcomes Trust
www.outcomes-trust.org
The Medical Outcomes Trust is a not for profit organization dedicated to improving health and health care by promoting the science of outcomes measurement, and the development, evaluation and distribution of standardized, high quality instruments that measure health and the outcomes of medical care.

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The Microsoft Decision Theory and Adaptive Systems Group
www.research.microsoft.com/dtas
This group developed the "paper clip" character in Windows 95 that uses Bayesian reasoning to diagnose faults and to guess what kind of help you need. The group is investigating the use of probability and utility theory to enhance computer applications and platforms.

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The MIT LCS Clinical Decision Making Group
www.medg.lcs.mit.edu
The Clinical Decision Making Group at the MIT Laboratory for Computer Science is a research group dedicated to exploring and furthering the application of technology and artificial intelligence to clinical situations.

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Multinational Association Of Supportive Care in Cancer
www.mascc.org
The Multinational Association of Supportive Care in Cancer (MASCC) is a fully private, non-profit-oriented professional and research-oriented association of physicians, nurses and other health-care professionals, aimed at providing the most recent scientific and social information on all aspects of cancer care world wide. This includes physical and psychosocial symptoms and side effects across the entire continuum of the cancer experience including the enhancement of rehabilitation and survivorship.

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Quality Metric
www.qmetric.com
QualityMetric Incorporated develops and markets patient-provided information assessment systems, including the SF-36 health survey.

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RAND Health
www.rand.org/health_area
A non profit institution that aims to improve health policy and decision making through research and analysis. Survey section includes instruments and scoring for several important instruments.

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Rod O’Connor & Associates
www.rodoconnorassoc.com
A Sydney based consulting company specialising in developing measures and methods to aid health care decision making and improve health service quality. Posting on the site include an 80 page review of issues in measuring health-related quality of life.

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Society of General Internal Medicine
www.sgim.org
An international organization of physicians and others who combine teaching, research, and patient care in general internal medicine, in academic and related settings such as university hospitals, government agencies, and community health facilities.

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Society for Medical Decision Making
www.smdm.org
The Society for Medical Decision Making is dedicated to promoting rational and systematic approaches to decision making that will improve the health and clinical care of individuals and assist health policy formation.

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The UC San Diego Health Outcomes Assessment Program
www.medicine.ucsd.edu/fpm/hoap
A multidisciplinary program with the goal of improving health outcomes assessment and quality of life. Instruments include the Quality of Well-being Scale (QWB).

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University of Michigan Decision Consortium
www.umich.edu/~psycdept/decision-consortium
UM's Decision Consortium is a University-wide distributed center for decision scholarship.

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Web-Based Interactive Decision Support
www.stanford.edu/group/cardport
The Cardiac Arrhythmia and Risk of Death Patient Outcomes Research Team (CARD PORT) modeling group homepage allows the user to perform interactive analyses on the underlying g model.

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World Database of Happiness
www.eur.nl/fsw/research/happiness
The World Database of Happiness is an ongoing register of scientific research on subjective appreciation of life.


Journals and Publications

American Journal of Managed Care
www.ajmc.com
An independent, peer-reviewed, medical-scientific journal dedicated to health care outcomes research.

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Expert Review of Pharmacoeconomics & Outcomes Research
www.future-drugs.com
Published bimonthly by Future Drugs, this ground-breaking journal provides commentary and analysis on the growing relationship between economic factors and clinical prescribing decisions, providing a practical background to informed prescribing decisions and allocation of healthcare resources.

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Healthy People 2010
www.health.gov/healthypeople
Healthy People 2010 is the prevention agenda for the U.S. Healthy People 2010 challenges individuals, communities, and professionals to take specific steps to ensure that good health, as well as long life, are enjoyed by all.

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Health and Quality of Life Outcomes
www.hqlo.com/home
An online BioMed Central journal on health-related quality of life.


Measures and Methods

American Thoracic Society Quality of Life Resource
www.atsqol.org
A web site devoted to patient-oriented quality of life (QOL) measures that are useful in the study and management of respiratory disease.

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CDC Healthy Days
www.cdc.gov/nccdphp/hrqol
Provides information on how the CDC measures population health-related quality of life, how the summary index of unhealthy days is calculated, the Health-Related Quality-of-Life Measure and related information.

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Child Health Questionnaire
www.thechq.com/index.html
is a generic quality of life instrument that has been designed for use with children 5 years of age and older.

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Evaluación Clinica Y Economica de Medicamentos
www.www.farmacoeconomia.com/default.htm
Spanish language site with pages on quality of life that include a list of instruments, databases, and bibliograpy.

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FACIT Functional Assessment of Chronic Illness Therapy
www.facit.org
Functional Assessment of Chronic Illness Therapy Measurement System.

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PedsQL
www.pedsql.org
The PedsQL 4.0 Measurement Model is a modular approach to measuring health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions.

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QOLID
www.qolid.org
QOLID is a new database that combines information from Marcello Tamburini's existing QLMed and the Resources Center of Mapi Research Institute. QOLID lists 1,000 patient reported outcome questionnaires, with detailed information on >300. The site has two sections: The first is unrestricted and includes the objective of development, name of the author, pathology, type of instrument, mode of administration, population, original language and the list of available translations. The second section requires a subscription and includes references, copyright, detailed contact information as well as copies of over 170 original questionnaires, 100 translations and over 50 user manuals.

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Researcher's Guide to the Choice of Instruments for Quality of Life Assessment in Medicine
www.qlmed.org
QLMed is collaborating in the development of the Quality of Life Instruments Database (QOLID) which will be realized by the MAPI Research Institute.

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The Research Methods Knowledge Base
http://www.socialresearchmethods.net/kb/
Authored by William Trochim, a comprehensive web-based textbook that addresses all of the topics in a typical introductory undergraduate or graduate course in social research methods. Includes definitions of concepts related to measurement.




Annotated Bibliography of Favorite and Classic Articles
in Quality of Life Research


Click here for an annotated bibliography of classic and personal "favorite” articles related to quality of life research. All were nominated by someone other than the authors. As one contributor commented, "I still find it difficult to come up with a favorite article (assuming one can't count one's own!)”

As you can see, the topics vary broadly. What you see below is the beginning of what may become a very useful resource. Please send additional nominations to Albert Wu at awu@jhsph.edu.


Classified Advertising

i3 Innovus
Sr. Researcher, Late Phase – Prospective Observational and HEOR


Posted 03/19/08

i3 Innovus is a leading provider of health economics and outcomes research and market informatics solutions to help clients realize the full potential of their brands. As an international organization that counts among its clients most of the top 20 biopharmaceutical companies in the world, i3 Innovus has a world-class reputation in observational, prospective research and patient reported outcomes and leads the globe in providing research solutions to support market access and reimbursement of health care products.

The Sr. Researcher maintains Project Director responsibilities for multiple projects, provides scientific oversight and quality assurance of late phase studies (e.g. health economics, outcomes research, registries, and interventional studies) mentors and trains new Project Managers and provides administrative management for Project Managers. Participates in business development activities as required.

Please send your resume to Mike Welsh at Michael.welsh@i3research.com @ reference the Sr. Researcher opening.

Diversity creates a healthier atmosphere: equal opportunity employer M/F/D/V.


Outcomes Research Scientist Eli Lilly and Company

Posted 02/04/08

For more than 130 years, Eli Lilly and Company has been dedicated to meeting the health care needs of people around the world. We address these needs primarily by developing innovative medicines—investing a higher percentage of our sales in research and development than any other major pharmaceutical company.

Outcomes Research Scientist

Lilly is expanding its Global Health Outcomes function and is seeking qualified candidates for numerous Outcomes Research Scientist positions. The Scientist is responsible for providing scientific expertise and effective project oversight to ensure the development and delivery of the necessary and needed information that informs the development of Lilly molecules and is valued by payers, providers, and patients. The Scientist effectively communicates complex concepts to internal and external business partners, along with scientific communities, in support of health outcomes research. Moreover, the Scientist provides technical and scientific leadership to influence cross-functional initiatives.

Qualified candidates will have an advanced degree, including Ph.D., M.D., or master's degree, with 5 years of experience in an appropriate discipline (e.g., economics, epidemiology, health administration, pharmacy, health services, medicine, pharmacoeconomics, psychology, statistics, or other relevant sciences). Previous training and experience in designing and conducting research and disseminating the results in the areas of health economics, economic modeling, clinical trials, cost-effectiveness evaluation, PRO instrument development, observational/epidemiologic research, health technology assessment, and/or health care policy is preferred. Clinical or therapeutic expertise in the areas of neuroscience, oncology, endocrine, cardiovascular, acute care, or inflammation is desired. Individual must possess strong communication and interpersonal skills and the ability to work in a diverse team environment.

Lilly credits its exceptional employees for its successes, and knows the key to ongoing achievement lies in attracting and retaining the best talent. A company rich in heritage, Lilly employs individuals, conducts research and markets products worldwide. By providing for the unmet needs of customers through a continuous stream of innovation, Lilly will continue to outgrow all its competitors.

Lilly earns consistent and wide recognition for creating an exceptional work environment:

  • Business Week Top 50 Best Places to Launch Your Career™
  • FORTUNE® America’s Most Admired Companies™
  • FORTUNE® 50 Best Companies for Minorities™
  • Working Mother 100 Best Companies for Working Mothers™
  • Industry Week magazine 100 Best-Managed Companies™
  • Business Ethics magazine 100 Best Corporate Citizens™
  • Science magazine Best Companies for Scientists™

For more information or to apply online, visit Eli Lilly and Company. Eli Lilly and Company is an equal opportunity employer.


Cancer Australia Chair in Cancer Quality of Life

Posted 12/17/07
Reference. S07/026

We are seeking an outstanding individual to contribute to improve the quality of life for all those who are impacted by cancer and its treatment. The Psycho-oncology Co-operative Research Group under the auspices of the University of Sydney is pleased to offer the Cancer Australia Chair in Cancer Quality of Life.

The successful candidate will have: a PhD in psychology, public health, or relevant health related discipline with an international reputation and a distinguished record of scholarship, research, publication and research in Quality of Life; demonstrated ability to effectively build and manage an active research program and attract research funding; a record of excellence in teaching and research training; demonstrated capacity for effective academic leadership; excellent management skills, including a willingness and ability to perform high-level administrative tasks; demonstrated ability to participate and provide leadership in working with universities, government agencies, health and medical bodies and professionals, health consumers and the wider community;

The position is available on a full-time 3 year fixed term basis, and is subject to the completion of a satisfactory probation period for new appointees, and continuing funding from Cancer Australia. Membership of a University-approved superannuation scheme is a condition of appointment for new appointees.

Specific inquiries concerning the position should be directed to Professor Phyllis Butow, Professor of Psychology, on: +61 2 9351 2859 or email (phyllisb@psych.usyd.edu.au.)

apply, please contact Kevin Mitchell, Senior Recruitment Manager: (k.mitchell@usyd.edu.au.) Tel: +61 2 9979 4409

Closing date:15th Jan 2008


NKI-AVL Logo










Scientific Staff Member in Psychosocial Oncology

Posted 12/14/07
The Netherlands Cancer Institute – Antoni van Leeuwenhoek Hospital (NKI-AVL) is seeking an experienced scientist to join the faculty of the Division of Psychosocial Research and Epidemiology. More specifically, the division is seeking an individual with expertise and experience in the theory, methods and practice of health and behavioral science research conducted in a medical setting. Substantive knowledge of the broad field of psychosocial oncology is desirable.

The successful candidate should hold a Ph.D., an M.D., or have equivalent training in the behavioral and/or social sciences, public health, health outcomes research, health services research or allied research fields. (S)he should have an established track record of publications and grants, and a national or international research profile. Inquiries should be directed by email to Prof. dr. Neil K. Aaronson, Head of the Division of Psychosocial Research and Epidemiology (n.aaronson@nki.nl).

Applications should be submitted electronically to Prof. dr. Anton Berns, Scientific Director (a.berns@nki.nl), and should include a letter of interest and a curriculum vitae. The deadline for application submission is January 31, 2008. Selected candidates will be asked to give a seminar, meet faculty members of the Institute, and present a written research plan.








Two One Year Research Fellowships, renewable for up to three years in QOL research within the EORTC Quality of Life Department

The EORTC is a Brussels-based international organization under Belgian law whose aims are to promote and coordinate cancer research in Europe. It operates through a network of more than 460 hospitals on an international basis addressing both pre-clinical and clinical aspects of cancer treatment.

Due to a grant from the Pfizer Foundation, the EORTC QOL Department based in Brussels has two research fellowships for:

PHYSICIAN/RESEARCH PSYCHOLOGIST/BIOSTATISTICIAN (m/f)


The Research Fellow will be involved in an ambitious research program, comprising of a series of broad-based research questions, analysis, presentation and dissemination of key-psychosocial/HRQOL findings in symposium and consensus-developed statements. This work will result in major publications and presentation of the results at key oncology scientific conferences. Therefore, this Fellowship offers an excellent opportunity to undertake exciting and innovative research projects in the QOL field.

Support will be provided by a multidisciplinary staff in a dedicated Quality of Life Department. The EORTC provides support from medical doctors, statisticians, data managers, and information systems analysts. The fellowship offers the opportunity to learn about many aspects of clinical trial design, statistics, psychometrics and application of quality of life endpoints in oncology.

For further information about EORTC Fellowships and the activities of the QOL Department, please consult in the section "EORTC Fellowship Program" on the EORTC website (http://www.eortc.be) and the homepage of the QOL Department (http://groups.eortc.be/qol).

The ideal candidate would have a Medical Degree or a Master's in psychology or biostatistics. A PhD and/or previous experience in SAS is ideally required. Experience in the field of clinical trials, oncology or quality of life assessment is a definite plus. Team spirit is a major factor we shall be looking for in this fellowship. A very good command of English is also essential.

The fellowship will take place at the EORTC Data Center in Brussels, Belgium and is funded for one year, with a possible extension for a further two years.

If interested, please send a letter of intent, a list of your specific areas of interest and letters of recommendation from two referees (optional) in English to:

Ms Dominique Eeckhoudt
EORTC Fellowship Program
Avenue E. Mounier 83, B 11, 1200 BRUSSELS, BELGIUM
Phone : +32 2 774 16 29 – fax : +32 2 772 35 45
E-mail : dominique.eeckhoudt@eortc.be
EORTC Website: http://www.eortc.be

Assistant/Associate/Full Professor, Pharmaceutical Evaluation & Policy, College of Pharmacy, University of Arkansas for Medical Sciences

The University of Arkansas for Medical Sciences (UAMS) College of Pharmacy invites applications for a 12-month tenure-track faculty appointment in Pharmaceutical Evaluation and Policy.
The ideal candidate will have a Ph.D. in Pharmacy Administration, Health Economics, Health Services Research, Psychology or a related field and have relevant post graduate experience with a successful research track record. Recent Ph.D. graduates or persons nearing completion of their training are eligible for consideration. The responsibilities of the position include developing a graduate course in patient reported outcomes / psychometrics and mentoring of M.S. and Ph.D. students in a developing graduate program in Pharmaceutical Evaluation and Policy (http://cop.uams.edu/pep/), instruction to professional Pharm.D. students, and the development of a nationally recognized research program conducting, patient reported outcomes (QOL) evaluations, psychometrics, pharmacoeconomic modeling, or outcome analyses of pharmaceuticals and pharmaceutical services and policies.

The position is available immediately and applications will be accepted until the position is filled. Interested applicants should submit a signed letter of intent describing career goals, curriculum vitae, and names and contact information of at least three references to: Bradley C. Martin, Pharm.D., Ph.D., Professor, UAMS College of Pharmacy, 4301 West Markham St. Slot 522, Little Rock, AR, 72205; telephone: (501) 603-1992; e-mail: bmartin@uams.edu

The University of Arkansas for Medical Sciences is an Equal Opportunity and Affirmative Action Employer.


Posting Title: Director, Global Outcomes Research Job Type: Full Time
Job Requisition: 068828 Posting Date: 4/25/2007
Posting Location: La Jolla, CA

Job Duties:

Plays a key role in developing product strategy for the clinical development and marketing-medical terms. Develops and implements OR strategy that is aligned with product development strategy. Assures timely quality production of OR research and value added programs to support product reimbursement and marketing. Leads others to collectively maximize business impact of marketing, medical and OR programs. Interacts and works with economic models, designs and implements clinical trials with OR components, epidemiologic studies and instrument development studies in accord with the product strategy. Coordinates the implementation of phase Ph2-3 clinical trial OR research. Provides technical consultation in area of experience to other OR scientists. Initiates and leads key cross-divisional task forces to help improve processes, standards in OR research programs. Some travel required in the US and/or internationally. Influences OR policies and methodological advances outside the company.

Qualifications:

Doctoral research degree in relevant discipline (health services research, epidemiology, health economics, clinical psychology, etc) with specific training in the conduct of outcomes research to evaluate health care interventions with 3+ years of pharmaceutical work experience. OR a Masters Degree in relevant discipline with 5+ years of pharmaceutical research experience in several therapeutic areas evaluating health care interventions with 2 years of research experience conducting health economics, health related quality of life, patient reported outcomes, and pharmacoepidemiology studies in the pharmaceutical industry. Independently conduct and manage the production of outcomes research such as analyzing OR data from large databases, patient reported outcomes (PRO) in clinical studies, health economics research and modeling, publications, regulatory submission packages. Leadership abilities, including a significant role in setting the strategic direction for an outcomes research strategy plan on a multi-disciplinary development team. Successful experience in the following areas: contributing to multi-disciplinary teams, including outcomes research and clinical development. Manage and triage a significant number of projects. Experience working with institutional customers (eg. academic institutions, hospitals, managed care organizations, government). Oncology experience is highly desirable. The title of the job may change due to capability level.

Skills: Excellent oral and written English communications required. Excellent interpersonal skills (ability to understand and respond to multiple internal and external customer demands, manage and handle conflict constructively). Understanding of key target customers. Excellent process and project management skills. Designing and managing contracted research projects (budget negotiations, quality assurance of work conducted by CROs).

To apply for this position, please visit www.pfizer.com/careers and reference requisition number above: 68828

Posting Title: Assoc.Director,Global OR (Oncology Team-NY Job Type: Full Time
Job Requisition: 068866 Posting Date: 4/25/2007
Posting Location: New York, NY

Job Duties:

The Associate Director will serve in the principal technical outcomes research (OR) support role for a compound. The Associate Director will supervise and undertake the implementation of approved plans and will formulate recommended strategies for consideration by the TA Director.
    The major duties and responsibilities will include but are not limited to:
  • Conduct and manage the production of health services research, including:
    • Health related quality of life research,
    • Economics research,
    • Economic models,
    • Publications,
    • And formulary support/ economic support packages.
  • Contribute to and partner with multi-disciplinary teams including Global Medical teams, clinical research and marketing staff to support product approval, product marketing, reimbursement and formulary acceptance.
  • Ensure understanding of key target customers payers, reimbursement authorities and health care systems are incorporated into OR plans
  • Evaluate health care interventions
  • Enhance product access (pricing, reimbursement, formulary acceptance, market acceptance) and product commercialization (market acceptance, penetration and expansion) through research which characterizes the economic value of Pfizer’s products
  • Define, develop, document, and disseminate value messages that are relevant to our customers; tailor messages to target appropriate customers including: payers, regulatory agencies, employers, health care providers, and patients
  • Contribute to clinical research and medical and marketing strategies, providing a long-term vision for support of products beyond efficacy and safety. Contribute to product differentiation and market expansion.
  • Synthesize information regarding disease impact, patterns of care, patient reported outcomes in order to enhance quality of care
  • Understand diverse health care systems, forecast trends and changes in health care environments in order to anticipate product challenges
  • Train and educate Internal audiences- regarding the role of Outcomes Research and its contribution in investment decisions and product commercialization
  • Develop and sustain internal and external stakeholder relationships
  • Serve as the resident expert on the economics of target diseases and the economic implications of relevant Pfizer products and emerging clinical data. Develop people by supporting high performance and ongoing learning
Qualifications:
Training & Education Preferred:
  • Advanced degree (masters or doctorate) in health services research, public health, epidemiology, economics, social psychology, medicine, pharmacy with training in the conduct of outcomes research to evaluate health care interventions.
Prior Experience Preferred
  • At least 3-5 years of experience in the evaluation of health care interventions (clinical research experience a plus) with at least 2-4 years of research experience conducting health economics, health related quality of life, and/or health services research studies for the pharmaceutical industry. Experience in the oncology therapeutic area and in pharmaceutical industry setting preferred.
Competencies:
  • Demonstrated ability to manage a significant volume of projects with exercise of good triage and judgment skills.
  • Experience with negotiations with pricing authorities, institutional customers (employers, hospitals, managed care organizations, government) and fund holding authorities preferable.
  • In depth knowledge of one or more health service research related discipline; broad working knowledge of all key disciplines. - Excellent oral and written English communication skills required.
  • Excellent process and project management skills.
To apply for this position, please visit www.pfizer.com/careers and reference requisition number above: 68866

Research Scientists Center for Health Outcomes Research

Center for Health Outcomes Research

Opportunities in Bethesda, MD & Boston, MA

UBC’s Health Care Analytics Group is a private health research firm providing health outcomes and health economic research and consultancy services to the pharmaceutical and device industry, and health service and government clients globally. Our scientists perform challenging work in a stimulating, collegial environment where everyone is dedicated to conducting the highest quality research in the industry.

Responsibilities Associated with this Position Include:
  • Designing & conducting studies to evaluate the value of new health care interventions, including pharmaceuticals and medical devices (studies include the evaluation of health-related quality of life (HRQL) and other patient-reported outcomes (PROs), and will involve instrument development and psychometric evaluation).
  • Developing business and fostering client relations.
  • Present research at scientific conferences and submission of manuscripts to peer-reviewed scientific journals.
  • Supervising mid-level staff.
Qualifications:
  • PhD in psychology, sociology, health services research, or biostatistics, with experience in measurement, instrument development, and psychometrics; or Master’s equivalent with minimum of 5 yrs. experience.
  • Experience working within or for the pharmaceutical or medical device industry desirable.
  • Ability to communicate effectively.
  • Demonstrated expertise evidenced by publications in peer-reviewed journals or abstracts presented at national meetings.
The candidate will have an opportunity to work with leaders in the field of pharmacoeconomics and health outcomes research. The Analytics Group offers a competitive compensation package as well as the necessary resources and rewards to enhance your career.

To apply:
Please email analytics.careers@unitedbiosource.com, fax (301-654-9864), or mail your CV to: United BioSource Corporation, 7101 Wisconsin Avenue, Suite 600, Bethesda, MD 20814 ATTN: Human Resources.


Senior Health Outcomes Researcher
Center on Outcomes, Research and Education (CORE)
Evanston Northwestern Healthcare


CORE is the locus for outcomes management and outcomes research at Evanston Northwestern Healthcare, with strong ties to the Institute for Healthcare Studies and several academic departments at the Feinberg School of Medicine at Northwestern University. CORE has established itself as a national leader in the application of clinical research to improve patient care and influence policy. We are seeking to hire a senior health outcomes researcher. Area of research specialization is open and should complement CORE’s existing focus areas: measurement and interpretation of patient-reported outcomes, translating outcomes research into clinical practice, and health disparities research.

Successful candidates should have a Ph.D. or M.D., a minimum of five years experience at the Assistant/Associate Professor level, and a demonstrated ability to obtain extramural, peer-reviewed research funding. Qualified candidates will be eligible to apply for a research faculty appointment at the Feinberg School of Medicine at Northwestern University. Salary is negotiable. Responsibilities will include maintaining a program of extramurally funded research, mentoring junior-level colleagues, and providing consultation on health outcomes research to internal or external clinicians and investigators. ENH is an Affirmative Action, Equal Opportunity Employer.

Interested candidates should submit a letter of interest, CV and three letters of reference to:

Elizabeth Hahn
Center on Outcomes, Research and Education (CORE)
Evanston Northwestern Healthcare
1001 University Place, Suite 100
Evanston, IL 60201
Phone: (224) 364-7373
Fax: (847) 570-8033
e-mail: e-hahn@northwestern.edu


Lilly is about breakthrough medicines and treatments to confront many of the most challenging diseases. While employing more than 43,000 employees worldwide and marketing our medicines in 146 countries, Lilly continues to earn consistent recognition for creating an exceptional work environment.


HEALTH OUTCOMES SCIENTIST
Individual will develop and implement research programs in support of reimbursement and access of Lilly compounds and be responsible for research strategy development; research design; project management; data management; and preparation of presentations, abstracts, and manuscripts.

An advanced degree (master's, M.D., or Ph.D.) in a relevant discipline, at least three - five years of health outcomes research experience in the pharmaceutical industry, strong publication and presentation history, and proven leadership skills are essential. Experience in patient reported outcomes instrument development and psychometric testing are strongly preferred.

For more information on Lilly or to view available opportunities, please visit www.lilly.com/careers and reference JOB ID 50285437.

Eli Lilly and Company is an equal opportunity employer.


Posting Title: Associate Director, Worldwide Outcomes Research
Job Requisition: 061591

Posting Locations:

Country State City
USA CT Groton
USA CT New London
USA NY New York

Responsibilities
Pfizer is seeking an Associate Director of Worldwide Outcomes Research to support the Infectious Diseases area. The Associate Director will have responsibility for developing and communicating the scientific evidence base to help prove the value of our compounds. The successful candidate will have at least 5 years of experience in Outcomes Research in the pharmaceutical industry, and be familiar with the drug development process from Phase II through post-marketing. This individual will have a high degree of scientific expertise in outcomes research and be able to communicate that with enthusiasm to a wide variety of audiences, both orally and in writing. Expertise in economic modeling and/or psychometrics is a requirement. Educational background in behavioral sciences, economics, or epidemiology a plus. Launch experience desirable. Ability to function in a fast-paced, dynamic, team-oriented environment essential. Some domestic and international travel required. Familiarity with HIV market would be an asset. Solid publication track record.

Equal Employment Opportunity
Pfizer is committed to equal opportunity in the terms and conditions of employment for all employees and job applicants without regard to race, color, religion, sex, sexual orientation, age, gender identity or gender expression, national origin, disability or veteran status. Pfizer also complies with all applicable national, state and local laws governing nondiscrimination in employment as well as employment eligibility verification requirements of the Immigration and Nationality Act.

All applicants must have authorization to work for Pfizer in the U.S. In certain circumstances it may be advantageous to Pfizer to support the application(s) for temporary visa classification and/or sponsor applications for permanent residence so that a foreign national colleague can accept or remain in a work assignment in the U. S. For certain classes of temporary visas, the resulting work authorization may be specific to Pfizer and the specific job and/or work site. Pfizer may at its business discretion decide to or refrain from obtaining, maintaining and/or extending the temporary visa status and/or sponsoring a colleague for permanent residency and /or employment eligibility, considering factors such as availability of qualified U.S. workers and the colleague's long-term prospects for securing lawful permanent residence, among other reasons. Employment applicants requiring immigration sponsorship must disclose, when initial application for employment is made, whether or not they are legally authorized to work for Pfizer in the U.S. and, if so, whether that authorization permits them to work in the job they seek. In no case should Pfizer's support of a colleague?s temporary visa application or sponsorship of a colleague for permanent residence be construed to guarantee success of that application or amend or otherwise invalidate the ?at-will? employment relationship between the colleague and Pfizer.

Org Marketing Statement
Imagine a career that touches the lives of people everywhere. Imagine an opportunity to reach beyond your area of expertise to make an impact on something greater than the bottom line. Imagine playing a key role in some of the most critical issues facing healthcare today. This is your career at Pfizer - a career unlike any other.


Faculty Position - Psychometrician
The Cleveland Clinic
is seeking an additional faculty member to join its multidisciplinary group in quantitative health sciences. The current group has 24 faculty and over 90 total members and is expected to grow substantially over the next several years. Areas of research application include biostatistics, clinical trials, statistical genetics and bioinformatics, statistical computing, predictive modeling, quality of life assessment, and cost-effectiveness analysis.

Successful candidates must have excellent written and verbal skills with the ability and desire to conduct both collaborative and methodologic research. A doctoral degree with expertise in quality of life instrument development and validation is required. The level of appointment will be based on the experience of the candidate and may be at the full, associate, or assistant level.

The Cleveland Clinic is a top-ranked medical center and has been the leading heart care center for over a decade. The Clinic has a strong academic mission with its medical school and world-renown Lerner Research Institute. The metropolitan and suburban areas of Cleveland comprise a population of over 3 million, rich in cultural diversity. The city itself is centrally located to several other large cities yet enjoys a low cost of living index.

Interested candidates should e-mail curriculum vitae, the names of at least three references, and a letter summarizing experience and research interests to QHSjobsearch@ccf.org. These and other current openings may be found at http://www.ccf.org/qhs.


Assistant Professor/Instructor
Division of Health Policy
Weill Medical College of Cornell University, New York City

The Division of Health Policy in the Department of Public Health at Weill Medical College of Cornell University is seeking a faculty member at the Assistant Professor (tenure-track) or Instructor level to join our growing academic research group in New York City. The Division’s mission is to conduct research on policy issues relevant to the local, national, and global delivery of health care. These include the allocation of scarce resources, financing and reimbursement, health care technology assessment, program evaluation, and organization of the health care delivery system.

We are seeking faculty members who plan on careers in externally-funded, clinically-oriented health policy research in an academic medical center environment. Successful candidates will have a doctorate in health services research, economics, decision science, public health, or a related field by July 1, 2007. Candidates must have a demonstrated record of successful quantitative research related to health policy and strong potential for obtaining external funding. We are especially interested in candidates with interests in urban health and health disparities, global health, and medical technology assessment (including information technology), but all fields will be considered.

Interested candidates should send a letter of application including a statement of research and policy interests, a CV, and contact information for three professional references to:

Bruce R. Schackman, PhD
Chief, Division of Health Policy
Department of Public Health
Weill Medical College of Cornell University
411 East 69th Street, New York, NY 10021
brs2006@med.cornell.edu

Applications will be accepted until the position is filled, with review of applications beginning immediately.


Global Health Outcomes Scientist

The purpose of the Global Health Outcomes Scientist position is to provide scientific and technical expertise to ensure that the Health Outcomes research conducted provides the necessary and needed information that informs the development of program phase molecules. The position will initially be focused in Diabetes. The Scientist oversees and ensures health economics/outcomes research strategies and programs to support Pricing, Reimbursement and Access activities for Lilly products. The Scientist demonstrates and applies in-depth knowledge, understanding, and evaluation of clinical, economic, and/or patient reported outcomes methodologies. The Scientist effectively communicates complex concepts to internal and external business partners, along with scientific communities, in support of health outcomes research. Moreover, the Scientist provides technical and scientific leadership to influence cross-functional initiatives.

A graduate degree in a field relevant to HO or significant previous training and experience in designing and conducting research and disseminating the results in the areas of health economics, health outcomes, disease management, and/or population health may be sufficient in lieu of a graduate degree. Strong communication and interpersonal skills and the ability to work successfully in a team/cross-functional environment. The ability to think and act globally with a customer focus and a solution orientation. Technical and analytic capabilities in the areas of economic modeling, economic evaluation, cost-effectiveness evaluation, burden of disease, epidemiology, statistics, and health care policyetc. The ability to influence individuals strong project management skills.

ELI LILLY AND COMPANY IS AN EQUAL OPPORTUNITY EMPLOYER

To apply, please click on the link below or go to http://www.lilly.com/careers and reference

Job ID 50270979


COVANCE MARKET ACCESS SERVICES INC. has an opening for a SENIOR SCIENTIST and other positions in its HEALTH ECONOMICS AND OUTCOMES CONSULTING PRACTICE.

THE COMPANY

Covance is one of the leading companies worldwide in providing development services on a contractual basis to manufacturers of pharmaceutical and medical device products. Covance Market Access Services Business Unit includes a consulting division, with offices in Maryland and California, as well as Leeds, England and Sydney, Australia. Among the offerings of the consulting business unit are advisory services related to health economics and outcomes.

SENIOR SCIENTIST- HEALTH ECONOMICS

The Senior Scientist generally manages client engagements, directing the collection and analysis of primary and secondary data and formulating strategic advice for clients. This individual is responsible for managing projects, and collaborates with managers in other divisions on consulting projects. In addition, the individual establishes business relationship with current clients that results in repeat business for Covance and calls on potential clients to explain the capabilities of Covance.

QUALIFICATIONS:
Knowledge: The Senior Scientist typically holds a doctoral degree in public health, management, clinical science, health services research, health economics, or other relevant discipline from an outstanding program at a distinguished university.

Experience: The Senior Scientist has several years of successful relevant research and/or consulting experience at Covance or in a similar environment, as well as strong communication, organization and analytical skills, with demonstrated proficiency in quantitative methods.

THE SENIOR ASSOCIATE will have the similar work experience as the Senior Scientist but will typically hold a master's degree in business administration, public health management, public policy, clinical science, or other relevant discipline from an outstanding program at a distinguished university. The senior associate will be capable of independent project management and spend the majority of his or her time in managing and performing project work. The senior associate also will assist in proposal writing and the sales of projects.

LOCATION
Positions are available in Leeds, UK, Gaithersburg, Maryland and San Diego, California.

Covance's purpose is to lead advancements in drug development through science, service and shaping solutions for the top 50 global pharmaceutical and biotech companies. By joining a thriving, US-based pacesetter, you'll work with progressive management, inventive technologies and alongside the talented scientists who have made us one of the world's largest and most comprehensive, drug development services companies with net revenues around a billion from nationwide and global operations.

In return for your skills and dedication we offer a first class benefits package which includes annual bonus, pension scheme, healthcare plan.

For more information please contact:
Recruitment.harrogate@covancce.com
Or
Recruitment and Talent Services Team
Covance Laboritories Ltd
Otley Road
Harrogate
North Yorkshire
HG3 1PY


Outcomes Research
The National Cancer Institute (NCI) is conducting a search for an experienced scientist to join the staff of the Outcomes Research Branch (ORB) of the Division of Cancer Control and Population Sciences. Research supported within the ORB focuses on enhancing the state of the science in cancer outcomes measurement as well as in quality of cancer care research. The incumbent will be responsible for a range of outcomes research activities related to the assessment of prevention, early detection, and cancer treatment services delivered in clinical trials and health care delivery settings. Emphasis will be on the development, testing and application of patient-reported outcomes including health-related quality of life, symptom management, and/or patient experience of and satisfaction with care.

The successful applicant will hold a Ph.D., M.D., or equivalent training. Expertise and experience is required in the conceptual basis, methodology and application of health outcome measures in the context of clinical trials, observational studies, and population level surveillance and cancer care evaluation. This position requires U.S. citizenship. The salary range is $74,782 - $97,213, depending on experience, with opportunities for promotion. Location is Rockville, Maryland. For further information, contact Dr. Steven Clauser, PhD, Chief, ORB, at clausers@mail.nih.gov.

Selection for this position will be solely on merit, with no discrimination for non-merit reasons such as race, color, gender, national origin, age, religion, sexual orientation, or physical or mental disability. NCI/NIH/DHHS is an equal opportunity employer.


Health Outcomes Research Consultants

QualityMetric Incorporated is an independent, privately held corporation led by John E. Ware, Jr., PhD; principal developer of the SF-36®, SF-12®, and SF-8TM Health Surveys. We are currently recruiting for Health Outcomes Research Consultants.

This position, reporting to the Vice-President of Insightâ„¢ Consulting is responsible for conducting health outcomes research for the pharmaceutical, biotechnical, medical device, disease management, and other health-related industries, project implementation, and the presentation of findings.

  • Lead client-sponsored research projects in patient-based outcomes research (e.g., quality of life; functional assessment; disability; satisfaction; etc.).
  • Design, manage, execute, and interpret data analyses, and write results into scientific reports, abstracts, posters, presentations, and manuscripts for publication
  • Utilize advanced knowledge of randomized-control trials required.
  • Be responsible for the timely and profitable completion of projects while maintaining quality.
  • Interact with clients, clinical experts, and research support staff to ensure that projects are completed in a timely fashion and in accordance with quality standards.
  • Develop and cultivate client relations through ongoing communications with clients from inception to final project deliverables.
  • Author abstracts for submission to professional meetings and manuscripts for submission to peer-reviewed journals.
Requirements:
  • PhD in a healthcare-oriented or quantitative discipline or relevant education in health service research, epidemiology, or a related field.
  • Advance knowledge in some of the following: Repeated Measures Analysis, Multiple Regression, Power Analysis, Research Design, ANOVA and other group comparisons, a plus.
  • 3-5 years of experience.
  • Demonstrated excellence in managing databases; using analytic programs (SAS, SPSS, STATA); research methodology; and quantitative measurement.
  • Experience in analyses of item response theory and structural equations modeling.
  • Familiarity with pharmaceutical industry a plus
  • Must demonstrate ability and motivation to quickly learn new content areas, skills, and methodologies.
  • Very strong oral and written communication skills.

These positions can be based in QualityMetric’s offices in Waltham, MA or Lincoln, RI. We offer a competitive salary and bonus plan combined with outstanding benefits. Email resumes to hr@qualitymetric.com


Patient-Reported Outcomes Specialist
Ref : ISOQOL-002323

UCB is deploying worldwide activities in research, development, manufacturing and marketing of ethical drugs. UCB is a leading biopharmaceutical company, specialised in the fields of central nervous system disorders (CNS), allergy and respiratory diseases, immune and inflammatory disorders, as well as oncology.

For the Global Outcomes Research Department, situated in Braine-l'Alleud, 15 kms away from Brussels, we are looking for a (m/f)

The function:

Patient-Reported Outcomes (PRO) are those study endpoints derived from patient self-assessment of disease and treatment impact. As a PRO Specialist, your responsibilities will include:

  • To ensure the selection of appropriate PRO in drug development plans.
  • To write relevant sections of Protocols, Case Report Forms, Statistical Analysis Plans, and Clinical Study Reports for the PRO assessment.
  • To analyze PRO data collected in clinical trials.
  • To liaise with Key Opinion Leaders in the field of PRO.
  • To ensure availability of selected questionnaires and their translations for the clinical trials.
  • To participate in the preparation of files to be submitted to Regulatory Authorities in collaboration with the assigned teams.
  • To support internal and external communication about PRO by preparing/reviewing written and oral presentations.
The profile:
  • University degree in life science (psychology, biology, medical/pharmaceutical sciences,...) followed by 2 to 3 years working experience in industry or academic environment.
  • Experience in psychometric, statistical analyses and writing of scientific reports/manuscripts.
  • Excellent organizational and communication skills.
  • Ability to work in interdisciplinary and transnational teams.
  • Ability to communicate in English is essential, although spoken French is an asset for local contacts.

If you are interested in this position, please send your application with complete c.v., to UCB Pharma, att. Human Resources Department, Chemin du Foriest, B-1420 Braine-l'Alleud, Belgium. It will be treated in total confidentiality.

Please mention ref : ISOQOL-002323. Only profiles corresponding to the required profile will be taken into consideration.

Email: braine.jobcadres@ucb-group.com
More information about UCB: www.ucb-group.com or www.ucb.be



Mapi Values is an internationally renowned company with offices in France, the UK, the Netherlands and the USA, offering strategic consultancy and tactical solutions in Health & Economic Outcomes

Project Director in Patient–Reported Outcomes
We are looking for a Project Director specialising in patient-reported outcomes (PRO) to be based in one of our European offices. These offices are in Lyon (France), near to Manchester (UK) and near to Utrecht (Netherlands). Worldwide, Mapi Values employs around 50 staff and is expanding.
Project Directors are responsible for procuring, designing and conducting health and economic outcomes research projects to support our clients’ drug development and marketing plans. The successful candidate will have a postgraduate qualification in a relevant topic and experience of running PRO projects within the pharmaceutical industry or for a consultancy. Fluency in English and French and proven organisational and client management skills are also essential, as is an understanding of European healthcare systems. Preference will be given to candidates who have worked on international projects.


ISOQOL Member Publications

Quality of Life, Second Edition The Assessment, Analysis and Interpretation of Patient-reported Outcomes March 2007 – Peter Fayers and David Machin

This book presents all essential information on Quality of Life Research in one comprehensive volume. The new edition accommodates significant methodological developments, and includes chapters on computer adaptive testing and item banking, choosing an instrument, systematic reviews and meta analysis. It covers the design of instruments, the practical aspects of implementing assessment, the analyses of the data, and the interpretation of the results.

“This book is highly recommended to clinicians who are actively involved in the planning, analysis and publication of QoL research.” Clinical Oncology

To receive a discount on the purchase of this publication, members should visit the Members Only section.

Assessing Quality of Life in Clinical Trials, 2nd Edition
May 2004 - Peter Fayers and Ron Hays
 

This highly acclaimed book, edited by Peter Fayers and Ron Hays, explores the current state of the art in the field and illustrates the benefits and potential of health-related quality of life assessment in clinical trials. It covers a wide range of analytical issues, emphasizing new and innovative approaches that are of practical and clinical importance.

This book is clearly written, resource-rich, and eloquently blends both traditional and innovative approaches to measuring HRQoL in clinical trials.” Quality of Life Research

This book represents a comprehensive overview of the field with contributions from 31 authors, in a collection of 24 chapters. The objective of this book is to provide a thorough review of the current state of the art methodology. The objective is whole-heartedly achieved through its six sections.” Journal of Biopharmaceutical Statistics

To receive a discount on the purchase of this publication, members should visit the Members Only section.


NOW AVAILABLE!
Advancing Health Outcome Research Methods and Clinical Applications
ISOQOL is pleased to announce that the book, Advancing Health Outcome Research Methods and Clinical Applications edited by William Lenderking and Dennis Revicki, has been published. The book is based on invited presentations during the June 2004 ISOQOL meeting held in Boston. This book includes a collection of chapters which cover a wide range of conceptual and theoretical, methodological, measurement, and statistical topics, and focuses on innovative and sometimes unfamiliar areas of research that might contribute to advancing health outcomes assessment. It is hoped that health outcomes researchers, students, clinical researchers, those involved in drug development, and others interested in patient-reported outcomes and health-related quality-of-life outcomes will find much that is intriguing and stimulating within the book. Click here to view the Table of Contents. If you would like to order a copy, click here for a copy of the Order Form.


Measuring and Valuing Health Benefits for Economic Evaluation
Special offer for ISOQOL Members

This is the first comprehensive textbook concerning the measurement and valuation of health benefits for economic evaluation.

The book addresses the key questions in the measurement and valuation of health, including: the definition of health, the techniques of valuation, who should provide the values, techniques for modelling health state values, the appropriateness of tools in children and vulnerable groups, cross cultural issues, and the problem of choosing the right instrument. The book concludes with a discussion of the way forward in light of the substantial methodological differences, the role of normative judgements, and where further research is most likely to take this fascinating component of health economics.

ISOQOL members are entitled to a 20% discount on this book - order your copy today! Please click here.




QOL Curriculum Outline

This is a list of topics that are recommended for consideration when planning an educational program or course on QOL related issues. ISOQOL recommends that you take into consideration the purpose of the offering and the audience/ students when devision the content for such an offereing.

Topics for Organizing Quality of Life Educational Materials Marcia Grant, RN, DNS and the Education Committee of ISOQOL
June, 2005

  1. Quality of life definitions, theory and conceptual issues
    1. Theories and Conceptual Models to Guide research
    2. Related Concepts.
    3. Utility Measures
    4. Functional Status
    5. Patient Reported Outcomes
  2. Quality of Life in Children
  3. Quality of Life in Adults
  4. Quality of Life in Special Populations ( Elderly, co-morbidities, disabled, etc.)
  5. Research Issues in QOL
    1. Methods for conducting QOL research
    2. Research approaches - qualitative and quantitative
    3. Cognitive aspects of survey methodology
    4. Practical aspects of implementing research
    5. Practical issues related to implementation of research
      Clinical Trials
      Descriptive Research
      Survey Research
  6. QOL Measurement Issues
    1. Where to find specific measures
    2. How to select a scale
    3. Generic versus disease specific scale
    4. Scales for adults
    5. Scales for families
    6. Scales for children and adolescents
    7. Economic/utility measurements
    8. Functional measures
    9. Item response theory
    10. Cross cultural adaptation/ translation and validation
  7. Scoring and Interpretation Issues
    1. Intent to treat analysis
    2. Missing Data
    3. Response Shift
    4. Norm reference
    5. Clinical versus Statistical Significance
  8. Quality of life issues in relation to specific populations
    1. Cancer
    2. Geriatrics
    3. Cardiovascular Disorders
    4. Respiratory Disease
    5. Neurologic Illness
    6. Mental Illness
    7. Gastrointestinal Disease
    8. COPD
    9. Diabetes Mellitus
    10. Stem Cell/Bone Marrow Transplant
    11. Orthopedics
    12. Eye Diseases
    13. AIDS
    14. Radiation Therapy
    15. Genetics
  9. Learning Resources for QOL education
    1. Journals
    2. Books
    3. Computerized bibliographic systems
    4. Websites
  10. Quality of life and economic issues (use of health care resources)
    1. Relation of QOL to Health Care Policy
    2. Ethical and medical basis of health care rationing
  11. Using QOL Assessment in clinical practice

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Disclaimer: Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.