While the governance of ISOQOL falls to its Board of Directors, the Society also relies on committees, task forces and judging panels to provide guidance and recommendations on specific topics. ISOQOL members are encouraged to serve on a committee, task force or panel, to lend their expertise and their voice to the direction of the Society. If you are interested in serving on one of the committees below, please contact ISOQOL Executive Director Colleen Pedersen.
The Advisory Council of Past Presidents shall serve as a resource to the President, Executive Committee and Board of Directors via institutional memory.
Chairs: Bryce Reeve, PhD and Galina Velikova, MD PhD FRCP
Advisory Council of Past Presidents Profile
The Annual Conference Program Committee shall manage the scientific content of the ISOQOL conference. They shall develop the theme, invite plenary speakers, and solicit papers and other presentations to develop a diverse scientific program. The Co-Chairs and committee members shall oversee the details to ensure the highest quality educational program and promote participation.
26th Annual Conference Chairs: Deborah Miller, PhD and Kathleen Yost, PhD
Annual Conference Program Committee Profile
The Audit Committee is comprised of the Executive Committee members. The role is to review the year-end audit report and tax filing.
Chair: Treasurer Joan Branin, PhD
Members: President Jose Valderas, MD MPH PhD and President Elect Lori Frank, PhD
Audit Committee Profile
The Education Committee shall develop and manage all educational courses for ISOQOL. The committee will proactively solicit, review and approve proposed ISOQOL webinars. They will review submitted proposals and develop workshop programs at the annual conference. Committee will review and develop mentor/mentee program.
Chairs: Skye Barbic, PhD and Diana Rofail, PhD CPsychol
IPRO Course: Heather Gelhorn, PhD and Nalin Payakachat, PhD
Mentor/Mentee: Maria-Jose Santana, PhD and Yuelin Li, PhD
Webinar: Claudia Rutherford, PhD and Xin Shelley Wang, MD MPH
Workshop: Richard Sawatzky, PhD and Elizabeth Unni, PhD
Education Committee Profile
The Membership Committee shall work to expand, recruit and maintain membership in general and in under-represented groups and regions.
Co-Chairs: Canhua Xiao, PhD and Richard Skolasky, ScD
Members: Erica Lee, MD; Liliane Elze Lins Kusterer, PhD; Adesola Odole, PhD; Emre Yucel, PhD MS MIBS
The Nominations Committee shall play an active role in identifying potential director candidates and officer positions of President Elect, Secretary-Treasurer to the Board of Directors. The committee will present the slate of candidates to the ISOQOL Board of Directors for approval. Once approved, the slate of candidates will be sent to the members for vote and confirmation. The committee shall also review and recommend candidates for Honorary Membership status to the Board of Directors.
Chair: Lori Frank, PhD
Members: Ida Korfage, PhD; Josephine Norquist, MS; Kevin Weinfurt, PhD
Nominations Committee Profile
The Standards & Best Practices Committee shall advance the scientific study of health-related quality of life and other patient-centered outcomes by leading projects to develop standards and best practices, as well as create tools to promote implementation of recommendations. These activities may include methodologic and applied work related to patient-reported outcomes in research and practice. The Committee will also serve as the custodian of ISOQOL standards and best practices documents, including updating them as needed.
Past Chair: Susan Bartlett, PhD
Chair: Veronique Sebille, ScD PhD
Chair Elect: Lori McLeod, PhD
Standards & Best Practices Profile
The President’s Award is awarded to an individual who has advanced HRQOL research and has made outstanding contributions to the Society.
The Emerging Leader Award was established in 2011 to honor and commemorate past-President Donna Lamping's contribution to the leadership of the Society. It will be awarded to an ISOQOL member who has shown exceptional leadership skills and potential.
The ISOQOL Scholarship Program has been developed to increase the opportunity for members in the early stages of their careers, members from developing countries and patients to attend and present at the annual conference by providing funds to help defray the expenses associated with travel to the annual conference. Travel scholarships provide access to the educational content of the annual conference, and also provide attendees the opportunity to meet with their peers and establish research contacts. Members who meet eligibility requirements can apply for the scholarships.
Each year, ISOQOL recognizes the best overall oral and poster presentations at the Annual Conference made by full time students and investigators in the early stages of their career in HRQOL research.
Evaluate and determine the balance of methods, theory and substantive applications at the Annual Meeting and consider enhancing networking opportunities.
Chair: Kevin Weinfurt, PhD
Liaison: Ida Korfage, PhD
Members: Joanne Greenhalgh, PhD; Roxanne Jensen, PhD; Deborah Miller, PhD; Kathleen Yost, PhD
Building on the success of the ISOQOL Reporting Guidelines Task Force and ISOQOL’s role in the development of the CONSORT PRO Extension, the Task Force is developing best practices documentation for patient-reported outcomes (PROs) in randomized clinical trials (RCTs).
Protocol Checklist Development Team Leaders: Melanie Calvert, PhD and Madeleine King, PhD
CONSORT PRO Guidance Implementation Tools Team: Michael Brundage, MD and Melanie Calvert, PhD
Best Practices for PROs Task Force Webpage
The Communications Strategy Task Force's role is to work with the Communication Manager to develop a communication plan to promote and highlight ISOQOL’s strengths and initiatives. Past experience involving science communications, public relations, social media and/or marketing is a huge plus. The Task Force will meet via conference calls and is expect to remain involved with the project for four to eight months.
Liasion: Lori Frank, PhD
Members: Cynthia Chauhan, MSW; Kathrin Fischer, PhD candidate; Michele Halyard, MD; Louise Newton, MSc; Bryce Reeve, PhD; Elizabeth Unni, PhD
The Industry Education Course Task Force will develop the core curriculum to provide training aimed at pharmaceutical professionals.
Chairs: Betsy Tschosik, PhD and Josephine Norquist, MS
Liaison: Karon Cook, PhD
Members: Somali Burgess, PhD; Amy DeLozier, MPH; William Lenderking, PhD; Louise Newton, MsC; Ana Maria Rodriquez, MPH; Helen Kitchen, MSc
Intro to PCOR for Pharma/Biotech (IPCOR-Pharma) Course Profile
The Measuring What Matters Task Force (MWM) will develop a 1.5 day symposium targeting industry partners, clinicians, patients, and government agencies. The program will address important considerations to these stakeholders when developing a PRO measurement strategy to “measure what matters.”
Chairs: Tom Willgoss, PhD; Jennifer Petersen, MPH; Andrew Mulberg
Measuring What Matters Symposium Task Force Profile
The aim of the ISOQOL Best Practices for the Collection, Analysis and Reporting of Proxy Data for Patient-Reported Outcomes in Adults Task force (Proxy Taskforce) is to develop evidence-based guidelines to improve the design, collection, analysis and reporting of proxy assessment for adult patient populations.
Chairs: Rebecca Mercieca-Bebber, PhD; Jessica Roydhouse, PhD
Liaison: I-Chan Huang, PhD
Advisor: Madeleine T. King, PhD
Members: Matthew Cohen, Nadia Corsini, Henrik Eshoj, Diane Fairclough, Andrea Ireland, Angelos Kassianos, Cindy J. Nowinski, Sara Perez Martinez, Ana Maria Rodriguez, Claudia Rutherford, Véronique Sebille, Katarzyna Wac, Emre Yucel
Proxy Task Force Profile
The Strategic Collaboration Task Force forge mutually beneficial collaborations with external organizations to advance the field. They will evaluate, define and pursue collaborative opportunities.
Chairs: Sandra Nolte, PhD and Albert Wu, PhD
Liaison: Jose M. Valderas, MD MPH PhD
Members: Anne Klassen, DPhil; Andrea Pusic, MD MHS FRCSC; Bellinda King-Kalimanis, PhD; Antoine Regnault, PhD