2000 Annual Conference in Vancouver, Canada
October 29-31, 2000
Vancouver, Canada
2000 Annual Conference in Vancouver, Canada October 29-31, 2000 Vancouver, Canada |
| Click Here to View Abstracts to be Presented: |
| An Invitation Dear Colleague, On behalf of the International Society for Quality of Life Research (ISOQOL), it is our pleasure to invite you to the 7th Annual Conference that will be held in Vancouver, Canada 29-31 October 2000. As we have worked on the program there seems to be an emerging theme concerning the "Interpretation of HRQOL measures" and the "Determination/measurement of a meaningful change in HRQOL." We hope that the special invited presentations from experts in the field, which are already part of the program, will initiate that discussion. But the success of the meeting will depend on the contribution of papers reflecting the state of the art of HRQOL research from multiple disciplines. Please send us abstracts of your best recent work and plan ahead for your participation in Vancouver. We hope that you will find the program prepared by the Scientific Program Committee interesting and challenging. We would like to bring to your attention two new experimental presentation formats for this year. The first is a Special Contributed Oral Session. This format will allow members to organize sessions that they believe are important and timely. We will also have one fewer presentation during each Special Contributed Oral Session to allow for more extensive discussion of the topic. If you have an area that you think will be of special interest, please consider organizing one of these sessions. The second is the addition of parallel Poster Discussion Sessions that will allow for more interactive discussion of selected posters. Vancouver is a very special place. We strongly recommend that you take the opportunity of both a productive professional meeting and an enriching personal experience. See you in October in Vancouver. Drs. Diane Fairclough, Carol Moinpour and David Osoba Co-Chairs, 7th Annual Conference of ISOQOL |
| Provisional Program | |||||
| Sunday October 29th | Monday October 30th | Tuesday October 31st | |||
7:30-8:30 |
Breakfast Meetings | 7:30-8:30 |
"Meet the Developer " | ||
8:30-8:45 |
Presidential Welcome | 8:30-10:00 |
Oral Session III | ||
| 9:00-12:00 | Workshop I | 8:45-10:15 |
Plenary Session | ||
10:15-10:45 |
Break | 10:00-10:30 |
Break | ||
10:45-12:15 |
Oral Session I | 10:30-12:00 |
Oral Session IV | ||
| 12:00-1:00 | Lunch on your own (policy meeting and lunch for those that sign up) |
12:15-1:45 |
ISOQOL Business Meeting/Lunch | 12:00-1:30 |
Lunch on your own |
| 1:30-4:30 | Workshop II | 1:45-2:45 |
Masters Lectures | 1:30-2:45 |
Special Contributed Papers /Oral V |
| 1:00-6:00 | Posters I on Display | 2:45-3:25 |
Posters-Meet the Authors | 2:45-3:25 |
Posters-Meet the Authors |
3:30-4:00 |
Posters-Discussion Session | 3:30-4:00 |
Posters-Discussion Session | ||
| 4:30-5:10 | Posters-Meet the Authors | 4:00-4:15 |
Break | 4:00-4:15 |
Break |
| 5:15-5:45 | Posters-Discussion Session | 4:15-5:45 |
Oral Session II | 4:15-5:30 |
Closing Address and Awards |
| 6:00-7:30 | Welcome Reception | 6:30-9:30 |
Conference Dinner | ||
| Speakers for Special Sessions: I. Plenary: Chair: Sharon Wood-Dauphinee a. "Utility measurement of health-related quality of life: past, present and future" Speaker: George Torrance; Discussant: Les Lenert b. "When does a profile beat a single number, or are two always better than one?" Speaker: Ron Hays; Discussant: Robert Kaplan II. Closing Chair: Ivan Barofsky "Health-Related Quality of Life: Where are we and where should we be going?" Speaker: Ian Tannock; Panel Dissussion: Ann Cull, Sally Shumaker, David Cella, Rick Berzon III. Invited Masters Series a. "The added value of health-related quality-of-life evidence: is safety and efficacy enough?" Speaker: Dennis Revicki; Discussant: Bob Meyer (invited) b. "Methods for Assessing Clinical Significance in Quality of Life Measurement" Speaker: Jeff Sloan; Discussant: Mirjam Sprangers. c. "Over-use and abuse of psychometrics - is there a role for clinimetrics?" Speaker: Peter Fayers; Discussant: John Ware d. "Evaluation of HRQOL in Special Populations: Children" |
Panel: Ronald Barr, Jeanne Landgraf, Ulrike Ravens-Sieberer (No discussant.) | |
English is the official language of the conference, no simultaneous translation. |
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| Guidelines for Submission of Abstracts Deadline: The abstract deadline for RECEIPT of abstracts was May 31, 2000. (Special Contributed Sessions and/or Oral/Poster Sessions). Special thanks to all who contributed, and congratulations to those whose projects have been accepted for poster and oral presentations, as well as special contributing sessions. Acceptance: Notification was sent July 14, 2000. Authors whose abstracts are accepted were required to register by August 18. |
| Special Contributed Sessions ISOQOL is going to experiment with a new scientific session format this year. The concept is to allow ISOQOL members to propose and organize a special contributed oral session consisting of 3-4 contributed oral papers with an optional discussant on a selected topic. One of the motivations for this format is to allow ISOQOL members to identify topics and speakers that are timely and of particular interest to the membership. The second motivation is to allow slightly more time for presentation or discussion than will be available in the regular oral sessions. The Scientific Program Committee will review both the concept and the individual abstracts. Based on that review, they will select the best combinations for presentation in this special format. Abstracts not selected for presentation in this special format will be automatically considered for oral or poster presentation unless otherwise requested. The organizer is responsible for providing 1) a title for the session, 2) a brief description of the session, 3) identification of abstract titles and speakers and 4) the identification of the discussant. The potential speakers are responsible for submitting an abstract in the standard format. Deadline for all abstract submissions was May 31, 2000. Important Dates May 31, 2000 - Abstracts due July 14, 2000 - Notifications sent about acceptance August 18, 2000 - Early registration deadline |
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| Topics for Abstract Submission Methodological and Theoretical Topics in QOL 1. Analytic Issues (longitudinal studies/missing data/multiplicity of endpoints) 2. Individualized Measures 3. Instrument Calibration/Equivalency among Scales 4. Interpretation of HRQOL data 5. Item Response Theory (IRT) 6. Modes of Administration 7. Proxy Measures 8. Psychometric Methods/Scaling 9. Qualitative Methods 10. Response Shift 11. Responsiveness/Interpretation 12. Scale Development/Validation 13. Scale Translation/Cultural Adaptation 14. Theories of Quality of Life 15. Utilities 
Disease-Specific Applications of QOL ResearchA. Cardiovascular Disease B. Chronic Disease C. Dermatology D. Gastrointestinal Disease E. Gynecology/Obstetrics/Endocrine F. Infectious Disease/HIV/AIDS G. Musculosketal/Rheumatology H. Neurology I. Oncology J. Psychiatric Disorders/Substance Abuse K. Psychoneuroimmunology L. Respiratory Disease M. Surgery/Transplantation N. Urology/Nephrology QOL in Special Populations O. Children P. Disability/Injury/Rehabilitation Q. Elderly R. End of Life care S. Family/Caregivers T. Minority Populations QOL in Specific Research Settings U. Clinical Trials V. Disease Prevention/Public Health W. Epidemiology/Population based studies X. Health Services Research/Technology Assessment Y. Medical Practice/Quality of Care |
| Scientific Awards ISOQOL presents five Annual Awards honoring individuals in three different categories. ISOQOL is committed to promoting excellence in quality of life research. Therefore, again this year, the Young Investigator's Award will be presented during the conference closing plenary ceremony. This award recognizes the best overall oral presentation made by an individual under age 35. In recognition of the vital role that posters play in communicating QOL research methods and findings, the Scientific Program Committee will also present three Best Poster Awards during the closing ceremony. A special jury organized by the Scientific Committee will judge all the posters. Starting in 2000, an award will be given annually to someone who has advanced QLR and has made outstanding contributions to ISOQOL. (More details to follow). Training Workshops Duration All workshops will last three hours and will be held on Sunday, October 29 at the official Conference hotel. Number of Participants Individuals are encouraged to register as soon as possible--space is limited. A minimum number of participants will be required to organize a workshop. Final Workshop Program Workshop descriptions may be found on next page. For more information on those that have an incomplete listing in this brochure, please be sure to visit the ISOQOL website. Updates will be posted when information becomes available. Workshop Registration Fee Prior to August 18 the fee for workshop registration was US$100 per workshop or US$175 for two workshops. After August 18, 2000 registration fee is now $125 per workshop; or $200 for two. |
| Workshop Topics and Speakers Morning Session (9am-12pm) 1. Quality of Life Assessment: Introduction and Overview; Sharon Wood-Dauphineeée In this introductory workshop the following topics will be presented: conceptualization of the quality of life(QoL) construct; why and when should QoL be assessed; classification of QoL measures; modes of administration; selecting QoL measures; and issues related to analysis and interpretation. A generic and a disease-specific measure will also be completed by attendees on behalf of a simulated case history. 2. Assessing Clinical Significance for QOL Measurement; Jeff Sloan/Tara Symonds The content of this workshop include a summary of the literature and approaches for assessing QOL. Examples drawn from clinical oncology trials will be involved. Hands-on experience at designing and analyzing QOL endpoints will be provided. 3. Individual Differences in QOL Treatment Responses; Gary Donaldson In standard evaluation of quality of life outcomes in clinical trials, individual differences compose the error term for testing the hypothesis of mean population equality. An alternative approach recognizes that individual differences have systematic as well as error components. The systematic variation in individual responses provides directly relevant clinical information and also provides a context for interpreting the size of the mean treatment difference. Mixed model analyses provide a formal approach to the study of individual differences by including (random) person effects in the same model as (fixed) treatment effects. This session will demonstrate statistical and graphical description of individual differences, and explain how to represent and interpret their effects in mixed effects models. 4. Technical Aspects of Questionnaire Development; Hanne Thorsen In recent years there have been major advances in methods for gathering questionnaire content designed to assess some form of subjective health status, for example, the use of face-to-face interviews with representatives of patient groups and focus groups. However, there has been a decline in the amount of attention paid to the more detailed aspects of questionnaire design such as the instructions to respondents, the format, layout and wording of items and interpretation of items by different groups. Also the choice of `user friendly' response options seems to be a topic which is seldom discussed. All of these can have profound effects on responses and missing data. The emphasis of the work shop will be on ensuring `respondent friendliness' of questionnaires. The participants will be asked to complete several pre-existing questionnaires. Based on this exercise the following topics will after a short introduction be raised and discussed with the lecturer and members of the EQUAL group
This workshop is an introduction to the basic concepts of measurement, including unidimensionality, item bias, scaling properties, and their link to the traditional psychometrics of reliability, validity and responsiveness. The presentation will explore an introduction to Rasch analysis and its one stop approach to examination of a wide variety of measurement issues. It will also cover a worked example of fitting data from the Nottingham Health Profile (NHP) to the Rasch model. The workshop will also include a discussion of issues arising from the application of IRT. What delegates can expect to learn from the workshop:
This session will explore the role of cognitive science in the development and refinement of self-report QOL assessments. The presentation will build on current developments in the cognitive sciences as applied to QOL assessments. It will focus on how cognitive interviews, focus groups, and expert panels can be used to generate relevant, sensitive QOL assessments, and how to use cognitive research methods to evaluate the adequacy of existing instruments or develop new instruments. Participants will have an opportunity to observe and practice cognitive interviewing techniques during the workshop. Afternoon Session (1:30-4:30pm) 7. Introduction to Health State Preference/Utility Assessment; Dennis Revicki/Sonika Mathur This workshop provides an introduction to the theory and methods of health state reference and utility assessment. It includes a basic overview of the rating scale, standard gamble, time trade-off, and multi-attribute techniques. A discussion of critical issues associated with preference/utility measurement, including population effects, contextual effects, cognitive processes, and beliefs and attitudes. 8. Imputation for non-randomly missing QOL data in longitudinal studies; Diane Fairclough This course will examine methods of imputation for missing QOL data in longitudinal studies. Simple imputation methods will be briefly discussed but the focus will be on multiple imputation methods such as Approximate Bayesian Bootstrap (ABB), explicit models, `closest predictor' and delta-adjustment. We will discuss the strengths and weaknesses of these methods in longitudinal studies with non-ignorable (NMAR) missing data. The workshop will include some hands-on experience with these techniques (participants are encouraged to bring a hand calculator). Participants should have some experience with the analysis of multivariate or longitudinal data. 9. Crosscultural and Translation Issues; Alain Leplège/Patrick Marquis The purpose of this workshop is to examine and discuss the conceptual, methodological and statistical issues that are encountered in projects aiming at measuring perceived health and quality of life in medical setting across cultures. The workshop will be based on the analysis of recent examples. 10. Pediatric QOL Assessment; Jeanne Landgraf Measurement work in children was initiated in the early 1980’s and gained momentum in the 1990’s. However, to date, there are relatively few well validated measures. This is due, in part, to some of the complexities involved in working with child and adolescent populations. The workshop will focus on some of these complexities, drawing on current and early experiences with the Child Health Questionnaire (CHQ). Data from CHQ studies will be presented as illustrations and cover conditions such as asthma, JRA, Cystic Fibrosis, and sinusitis. 11. Modern Psychometric Methods, Adaptive Testing, Dynamic Health Assessment, and the Internet; John E. Ware, Jr./Mark Kosinski/Jakob Bjorner This workshop covers advances in methods for monitoring health outcomes based on item response theory and computerized dynamic methods of data collection and processing. The advantages of scoring results, across methods, on a standard metric will be demonstrated for applications, including: (a) population health monitoring; (b) clinical trials; and, (c) screening and monitoring individual patients using computerized dynamic health assessments. 12. Patient Satisfaction Assessment; Ron D. Hays/Leo Morales This workshop will introduce basic issues in assessing patient experiences with health care. Discussion will focus on leading instruments for assessing ambulatory care periodically at the health plan (Consumer Assessment of Health Plans Study Survey) and physician group (Physician Value Check Survey) level. Examples will be provided of instruments for assessing satisfaction with a specific visit and hospital care. Key methodological issues (e.g., reliability assessment, casemix adjustment) in analyzing and reporting results will be presented. |
| Registration Register on-line! |
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| Registration fees: | |||
| By August 18 | After August 18 (but before October 18) |
On-site | |
|---|---|---|---|
| ISOQOL members: | US$300 | US$350 | US$400 |
| Non-members: | US$400 | US$450 | US$500 |
| Student*: | US$115 | US$140 | US$180 |
| Workshop Fees: | |||
| Before August 18: One workshop=US$100, Two workshops=US$175 After August 18, 2000: One workshop=US$125, Two workshops=US$200 |
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| Accompanying Persons**: US$60 *Please provide a letter from your mentor or a copy of your student identification. **Includes Welcome Reception on Sunday, October 29 and conference dinner on Monday, October 30 at the Vancouver Art Gallery. The deadline for registration prior to the conference has passed. You must register on-site.. The Registration Fee includes: Participation in the Conference and access to the exhibition area Abstracts and program Certificate of attendance Welcome Reception on Sunday, October 29 Refreshments/coffee breaks on Monday and Tuesday, October 30 and 31 Lunch Monday for those that attend the Business Meeting. |
| Hotel Accommodation This year's ISOQOL meeting will take place at the Hyatt Regency Vancouver, 655 Burrard Street, Vancouver, B.C., V6C 2R7, Canada, Telephone: (604) 683-1234; Fax: (604) 689-3707. The Hyatt Regency Vancouver is located in the heart of Vancouver and its business district, adjacent to shopping at Royal Centre and the Sky Train Rapid Transit station. It is also close to all shopping, cultural, and tourist attractions! ISOQOL has negotiated a special sleeping room rate of $195 Canadian ($132 US guaranteed) per night plus tax for ISOQOL meeting attendees. Please contact the hotel directly for reservations and mention that you are with the ISOQOL meeting to receive the special rate. Telephone: (604) 683-1234 or toll free into the Hyatt Central reservations office at (800) 233-1234. The cut-off date for hotel reservations is September 25, 2000; however, we recommend that you make your reservations as soon as possible to ensure that you will get a room under the ISOQOL block. Any reservations requested after September 25 will be on a "subject availability" basis, at the best rate available. Group rates may apply 3 days prior to and after meeting dates, depending upon availability. Transportation The International Airport is serviced by the world's leading airlines so it's easy to reach Vancouver from any major city. And when you land, Hyatt Regency Vancouver is only 20 minutes away in the heart of downtown. Please make your own flight arrangements. ISOQOL has arranged for you to receive a 5-15% discount off the lowest fare on UNITED, DELTA, and US AIR. Please be sure to give them the appropriate meeting code. If you do not call the airline directly to make your reservations and you have your travel agent make your arrangements, please be sure to give them the meeting codes as well. ISOQOL will get credited for tickets posted. UNITED: meeting code: 596CD- to make reservations call 1-800-521-4041 DELTA: meeting identifier code: 162098A- to make reservations call 1-800-241-6760 US AIR: meeting gold file number: GF93191467- to make reservations call 1-877-874-7687 |
| Cancellations All cancellations must be received in writing and all refunds will be paid after the Conference. A $50 fee will be assessed for cancellations received by August 18. 50% of the total amount will be refunded if cancellation is received by September 25. 25% will be refunded if cancellation is received by October 29. Cancellations received after October 29 will not be eligible for a refund. Social Events
Touring Vancouver One of the most breathtakingly beautiful cities in the world, Vancouver is truly a spectacular meeting location. Safe, clean, and friendly, the vibrant city promises an endless array of fascinating things to see and do. ISOQOL has organized several tours for accompanying persons. Registration is required prior to October 18. Saturday, October 28 Grand City Orientation Tour HIGHLIGHTS: 1,000 Acre Stanley Park, West Coast Nature Indian Totem Poles, Prospect Point and English Bay Beaches, Chinatown and Historic Gastown, Prestigious Shaughnessy residential area, Queen Elizabeth Park with Photo stop at the Sunken Gardens, Panoramic view of the city from Little Mountain, City Centre and Financial District. Pick-up at 1:00pm at the Hyatt Regency Melville Street entrance, continue on a 3.5 hour tour of Vancouver City tour. Drop-off and dismiss at 4:30pm. Cost US$30.00 Sunday, October 29 Victoria Tour HIGHLIGHTS: Fully escorted tour includes: Priority Ferry Boarding, 90 minute ferry ride through the Gulf Islands, Admission to world renowned Butchart Gardens, University of Victoria, Royal Victoria Yacht Club, Beacon Hill Park, Victoria City Tour, Uplands and Oak Bay scenic residential areas, Scenic Beach Drive, Ample free time to explore world famous Empress Hotel, British Import shops, Parliament Buildings, Provincial Museum, the city centre and the attractions around the Inner Harbor. Pick-up at 7:15am at the Hyatt Regency Melville Street entrance, continue on a 12 hour Victoria Excursion. Drop-off and dismiss at 7:30pm. Cost US$80.00 Monday, October 30 Parks Homes and Gardens Tour with Lunch HIGHLIGHTS: Admission to Van Dusen Botanical Gardens, noted for its ornamental displays (self guided tour), Queen Elizabeth Park, Sunken Gardens with admission to Bloedel Conservatory, 1,000 acre Stanley Park, English Bay Beach Drive, Lunch reservations at the Fish House Restaurant in Stanley Park, Exotic Chinatown, Historic Gastown, City Centre Shopping District, and the Financial District. Pick-up at 10:00am at the Hyatt Regency Melville Street entrance, continue on a 6 hour Vancouver Parks and Gardens Tour including lunch. Drop-off and dismiss at 4pm. Cost US$60.00 Tuesday, October 31 Mountains & Sea Tour with Grouse Mountain HIGHLIGHTS: Grouse Mountain Skyride, Capilano Canyon and Suspension Bridge, Nature Trails, Cross Vancouver's harbour on the unique Paddlewheeler. View Vancouver's Trade and Convention Centre from the Harbour , Lion's Gate Bridge, Theatre In The Sky. Tour includes Grouse Mountain Skyride, Paddlewheeler and Capilano Suspension Bridge admission. Pick-up at 9:00am at the Hyatt Regency Melville Street entrance, continue on a 5 hour Mountains & Sea Tour. Drop-off and dismiss at 2:00pm. Cost is US$48.00 Wednesday, November 1 Whistler Resort Tour HIGHLIGHTS: This scenic tour takes you along majestic Howe Sound with its panorama of mountains, lakes and glaciers. Enjoy Shannon Falls, one of America's tallest, in the Squamish Forest Reserve. Tour also includes free time to shop, stroll or have lunch at Whistler town centre. Pick-up at 9:00am at the Hyatt Regency Melville Street entrance, continue on an 8 hour Whistler Resort Tour. Drop-off and dismiss at 4pm. Cost US$48.00 All About Vancouver
Vancouver is a city of many activities and interests for those who are travelling to the ISOQOL meeting. ISOQOL, of course, is offering several tour options as well as the conference dinner at the Vancouver Art Gallery.For general information about Vancouver and the many options it offers you, click here: http://www.isoqol.org/Vancouver_Guide.html Insurance ISOQOL cannot accept responsibility for personal losses, accidents, or damages to participants and/or accompanying persons. Participants are therefore strongly advised to take out personal insurance to cover any eventuality that may happen during the Conference. |
Chairs Diane Fairclough, DrPH, USA Carol M. Moinpour, PhD, USA David Osoba, MD, Canada Committee Members Neil Aaronson, PhD, The Netherlands Jordi Alonso, MD, PhD, Spain John Brazier, PhD, UK Peter Fayers, PhD, UK David Feeny, PhD, Canada William Lenderking, PhD, USA Donald Patrick, PhD, USA Mirjam Sprangers, PhD, The Netherlands |
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| ISOQOL Leadership President Sharon Wood-Dauphinee, PhD, Canada President-Elect Ivan Barofsky, PhD, USA Immediate Past President Monika Bullinger, PhD, Germany Editor of Journal Neil Aaronson, PhD, The Netherlands Secretary-Treasurer Dennis Revicki, PhD, USA |
Board Members Rick Berzon, DrPH, USA David Cella, PhD, USA Diane Fairclough, DrPH, USA Shunichi Fukuhara, MD, Japan Paul Kind, Mphil, UK David Osoba, MD, Canada Geraldine Padilla, PhD, USA Laurie Ramiro, PhD, Phillipines Mirjam Sprangers, PhD, The Netherlands Albert Wu, MD, USA |
Chairs Diane Fairclough, DrPH, USA Carol M. Moinpour, PhD, USA David Osoba, MD, Canada Committee Members Neil Aaronson, PhD, The Netherlands Jordi Alonso, MD, PhD, Spain John Brazier, PhD, UK Peter Fayers, PhD, UK David Feeny, PhD, Canada William Lenderking, PhD, USA Donald Patrick, PhD, USA Mirjam Sprangers, PhD, The Netherlands |
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| ISOQOL Leadership President Sharon Wood-Dauphinee, PhD, Canada President-Elect Ivan Barofsky, PhD, USA Immediate Past President Monika Bullinger, PhD, Germany Editor of Journal Neil Aaronson, PhD, The Netherlands Secretary-Treasurer Dennis Revicki, PhD, USA |
Board Members Rick Berzon, DrPH, USA David Cella, PhD, USA Diane Fairclough, DrPH, USA Shunichi Fukuhara, MD, Japan Paul Kind, Mphil, UK David Osoba, MD, Canada Geraldine Padilla, PhD, USA Laurie Ramiro, PhD, Phillipines Mirjam Sprangers, PhD, The Netherlands Albert Wu, MD, USA |
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Future ISOQOL Conferences | Past ISOQOL Conferences | Other Conferences Newsletter | Awards | Resources 6728 Old McLean Village Drive McLean, VA 22101-3906 USA Phone: (703) 556-9222 FAX: (703) 556-8729 Email: info@isoqol.org |