International Society for Quality of Life Research
International Society for Quality of Life Research

Conference Program

Assessment, action, and accountability: Achieving optimal patient-centered outcomes through quality of life research

Healthcare providers in the US, Europe, and elsewhere are increasingly being held accountable for the outcomes of the patients they treat. Central to the concept of accountability is a thorough understating of the role of patient-reported outcome measures in healthcare delivery. In the absence of patient-reported outcomes, healthcare providers and oversight agencies must rely on other metrics such as emergency department visits, re-hospitalization, complications, and mortality. Engagement with patients and other key stakeholders is critical to ensuring the outcomes measured are patient-centered. ISOQOL is uniquely positioned to contribute to this international discussion to advance theory, methods, and application of quality of life research in the pursuit of optimal patient-centered outcomes.

Use the links at left and below to explore the various learning, networking, and social components of the 26th Annual Conference.

Preliminary Program

Annual Conference A to Z Guide


  • Assessment: The art and science of selecting measures for patient-centered outcomes research. The goal for this plenary is to stimulate discussion regarding the choice of different types of outcome measures (PROMs, clinical outcome assessments, surrogate outcomes) in patient-centered outcomes research and the implications of those choices for policy and patient care.
  • Cutting Edge Research. The Cutting Edge Research plenary session features some of the highest-ranked, innovative research from ISOQOL abstract submissions. In particular, these abstracts reflect research that truly “pushes the ISOQOL envelope” in providing new and different ways to look at quality of life.
  • Action: Theory, methods, and application related to achieving optimal patient-centered outcomes – lessons from Implementation Science. ISOQOL member and non-member conference attendees have made remarkable contributions to the field of patient-reported outcome (PRO) measurement.  Increasingly more attention is being placed on implementing PROs in routine clinical practice. This plenary will provide a platform to discuss how patient-centered outcomes research and patient-centered care can be strengthened through Implementation Science.
  • Accountability: Counting what counts. The goal of this plenary is to consider how we can expand the use of PROMs and promote them as endpoints for assessing healthcare quality, clinical decision making, and delivery of patient-centered care.


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Throughout the website, ISOQOL provides outside resources that may provide assistance to people interested in health-related quality of life and its assessment. It is recommended that readers conduct their own evaluation of the information outside of ISOQOL activities.


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