Thursday, 25 October | 8:30 am – 10:00 am
There is increasing interest in the digital collection and use of PRO data by patients to support self-management of long term conditions. In this plenary, we will explore the opportunities and challenges of digital self-tracking from different perspectives.
Chair: Kevin Weinfurt, PhD, Duke University, Durham, NC, United States
Thursday, 25 October | 10:50 am – 12:05 pm
The Cutting Edge Research plenary session features some of the highest-ranked, innovative research from ISOQOL abstract submissions. In particular, these abstracts reflect research that truly “pushes the ISOQOL envelope” in providing new and different ways to look at quality of life.
Chair: Tom Willgoss, PhD, Roche Products Ltd., Welwyn Garden City, United Kingdom
Friday, 26 October | 9:00 am – 10:30 am
Digital data capture is now commonplace in everyday life – from public and patients recording health data using apps and digital tracking devices to consumer data from our online purchases. Key questions are whether and how these data can be brought together to improve health and the implications of data sharing for personal privacy and citizenship. In this plenary, we explore the opportunities and challenges that big data brings.
Chair: Claire Snyder, PhD, Johns Hopkins School of Medicine, Baltimore, MD, United States
Saturday, 27 October | 11:00 am – 12:30 pm
This past two years has seen a trend toward recognizing that a given HRQoL questionnaire that measures a common and reasonably well-defined concept can be regarded as valid, and even “fit for purpose” if it has been tested and proven valid in many settings and diseases, but not necessarily the proposed new disease. In this plenary, we consider what the use of PROs in the digital age means for the concept of validity and how we apply PROs in drug development and trials.
Chair: Madeleine King, PhD, University of Sydney, Sydney, Australia