Marquis of Pombal Square

13th Annual Conference of the
International Society for Quality of Life Research
October 10 - 14, 2006
Corinthia Alfa Hotel, Lisbon Portugal

HRQOL Research: Making an Impact in the Real World

Are Patient Reported Outcomes Ready for Prime Time?
The ISOQOL Workshop on PROs and the FDA Draft Guidance for Industry
October 10, 2006
Lisbon, Portugal

 

Workshops: October 11, 2006

Conference Abstracts

How to Cite Abstracts

• Workshops
• Preliminary Conference Schedule
• October 10 Satellite Meeting Schedule
• Hotel Accommodations
• Transportation
• Scholarship Information
• Poster Specifications (NEW)
• Conference Flyer
• Conference Organizing Committee
• ISOQOL Leadership
• Exhibitor Prospectus
• Online Registration (Closed)
• Onsite Registration
• Cancellation Policy

Monday, October 9
ISOQOL Board Meeting

Tuesday, October 10
8:30am - 5:30pm
Satellite Meeting: "Are Patient Reported Outcomes Ready for Prime Time? The ISOQOL Workshop on PROs and the FDA Draft Guidance for Industry"

Wednesday, October 11
9:30am - 4:30pm
Full Day Workshop:Introduction to Quality of Life Assessment (in Portuguese)

9:30am - 12:30pm
Workshops

1:30pm - 4.30pm
Workshops

6:00pm - 7:00pm
Opening Reception

Thursday, October 12
8:00am - 9:00am
SIG Meetings

8:00am - 12:30pm
Poster Session I on Display

9:00am - 10:30am
Plenary 1

9:00 - Presidential Welcome - Peter Fayers, PhD
9:15 - Opening - Minister for Health of Lisbon
9:30 - Key note Speaker: Gordon Guyatt, MD
Co-chairs: Andrew Bottomley, PhD and Henning Flechtner, MD, PhD

10:30am - 11:15am
Break and Meet the Authors Poster Session

11:15am - 12:45pm
Concurrent Sessions

• Symposium: “The Value of Patient Reported Outcomes in Clinical Practice”
• Orals
  • Elderly 1
  • Caregivers 1
  • IRT 1
  • Endocrinology

12:50pm - 2:00pm
Lunch Panel Session: "What the Editors Say!"
David McNamee (Lancet) and Ron Hays and Neil Aaronson (QLR)

2:00pm - 3:30pm
Concurrent Sessions

• Symposium: “Can we use patient reported outcomes to compare the quality of care achieved by different healthcare providers?”
• Orals:
  • Children I
  • Minimally Important Differences
  • Oncology I
  • Methodology I
    

2:00am - 6:15pm
Poster Session II on Display

3:30pm - 4:00pm
Break and Meet the Authors Poster Session

4:00pm - 5:30pm
Concurrent Sessions

• Symposium: “Quality of life in public health policy”
• Orals:
  • Mental Health
  • Respiratory
  • GI
  • Psychometrics

5:30pm - 6:15pm
Meet the Authors Poster Session

6:30pm - 7:30pm
Mentor/Mentee Session

Friday, October 13

8:00am - 9:00am
SIG Meetings

8:00am - 12:30pm
Poster Session III on Display

9:00am - 10:30am
Plenary 2 “QOL and the Policy Makers” (TBD)

9:00 "Using Patient-Reported Outcomes to Evaluate Medical Products: The FDA Draft Guidance" - Donald Patrick, PhD
9:45 Mira Pavlovic, EMEA
Chair: Dennis Revicki, PhD
Discussants: Jeff Sloan, PhD and Bill Lenderking, PhD

10:30am - 11:15am
Break and Meet the Authors Poster Session

11:15am - 12:45pm
Concurrent Sessions

• Symposium: “Bridging the Gaps in Understanding Symptom Burden and Quality of Life Impairment in Cancer Patients”
• Orals:
  • AIDS
  • Preferences I
  • Children II
  • Pain

12:45pm - 2:00pm
ISOQOL Business Lunch

2:00pm - 3:30pm
Concurrent Sessions

• Symposium: “Integrating values and preferences in clinical practice guidelines: how can we make it happen?”
• Orals:
  • Oncology II
  • Cardiovascular
  • Caregivers II
  • Methodology II

2:00pm - 6:15pm
Poster Session IV on Display

3:30pm - 4:00pm
Break and Meet the Authors Poster Session

4:00pm - 5:30pm
Concurrent Sessions

• Symposium: “Enhancing the Quality of Cancer Care Through Research, Practice, and Policy”
• Orals:
  • Rheumatology
  • Qualitative
  • Urology I
  • IRT II

5:30pm - 6:15pm
Meet the Authors Poster Session

6:00pm - 7:00pm
SIG Meetings

Saturday, October 14

8:00am - 9:00am
SIG Meetings

8:00am - 12:30pm
Poster Session V on Display

9:00am - 10:30am
Plenary Session 3

9:00 President's Award Talk - David Osoba, MD
9:20 "Quality of Life in Children - Still Behind the Adult Field?" - Ulrike Ravens-Sieberer, PhD
9:40 "Quality of life in Dementia: What Does the Future Hold?" - Madeleine King, PhD
Co-chairs: Francisco Luis Pimentel, MD, PhD, and Pedro Ferreira, PhD

10:30am - 11:15am
Break and Meet the Authors Posters Session

11:15am - 12:45pm
Concurrent Sessions

• Symposia:
  • “Patient-Reported Outcomes: Update on the Mayo/FDA Joint Meeting Publications”
  • “The Value of Health Related Quality of Life (HRQOL) Parameters in Predicting Clinical Outcomes in Cardiology and Oncology”
• Orals:
  • Neurology
  • Preferences II
  • Surgery

12:45pm - 2:00pm
Lunch on your own

2:00pm - 3:30pm
Concurrent Sessions

• Symposium: “The Patient Reported Outcomes Management Information System (Promis): A Cooperative Effort to Advance and Enable Clinical Research”
• Orals:
  • Urology/Kidney Diseases
  • Psychometrics II
  • IRT III
  • Cancer III

2:00am - 6:15pm
Poster Session VI on Display

3:30pm - 4:00pm
Break and Meet the Authors Posters Session

4:00pm - 5:30pm
Concurrent Sessions

• Symposia:
  • “Translation and Cultural Adaptation of PRO Questionnaires: Review of the activities of the ISOQOL Translation and Cultural Adaptation Special Interest Group (TCA SIG)”
  • “ The NEURO-QoL Project: Using Multiple Methods to Develop A HRQOL Measurement Platform to be Used in Clinical Research Across Neurological Conditions”
• Orals:
  • Cancer IV
  • Methodology III
  • Elderly II

5:30pm - 6:15pm
Meet the Authors Poster Session

7:30pm
Closing Dinner/Awards

Hotel Accommodations

ISOQOL's 13th annuall meeting will take place at the Corinthia Alfa Hotel, Lisbon Portugal. ISOQOL has arranged a special sleeping room rate of €135 single, €155 double. In the heart of Lisbon's modern financial district and just a few minutes from the historical centre of the city, the five star Corinthia Alfa Hotel has 517 rooms including suites, executive and classic rooms. The Hotel is within walking distance of major shopping malls and the romantic Chiado district. The imposing Corinthia Alfa is one of the largest hotels in the capital, offering a unique blend of town centre and holiday accommodation. The hotel services including two exquisite restaurants; one specialising in Portuguese cuisine, and the main restaurant offering International cuisine, 24hr room service and out door swimming pool. A health and fitness centre are amongst a few of the services available to unwind.

For hotel reservations at the Corinthia Alfa, please print the attached reservation form and fax to 00351 21 723 63 66.

Transportation

International airports in Portugal are: Lisboa (five miles (7km) north of Lisbon), Porto, Faro, Funchal (Madeira), Ponta Delgada (São Miguel, Açores), and Lajes (Ilha Terceira, Açores). The national airline is TAP–Air Portugal. The regional air company, SATA, flies connections to the Açores Islands. There are also air links between Funchal (Madeira) and Porto Santo. Portugalia (www.pga.pt) and Air Luxor also operate schedule flights to and from Portugal in Europe. Every day, international trains run between Paris and Lisbon (Sud Express); Lisbon-Madrid train Lusitânia, and Porto-Vigo.

For more information and requirements on traveling to Portugal, please click here.

Scholarship Information

ISOQOL is pleased to offer scholarships for the 2006 Annual Conference. We encourage attendees to submit their application for the following scholarships (click on the type of scholarship you are interested in to download the application):
1. Developing Countries - Scholarships up to $3000 US per person are awarded
2. New Investigators - Scholarships up to $1000 US per person are awarded

The deadline for submitting applications for Scholarships is May 12, 2006.

ISOQOL 2006 Conference Organizing Committee

Chair: Andrew Bottomley, PhD, Belgium
Co-Chair: Francisco Luis Pimentel, MD, PhD, Portugal
Co-Chair: Henning Flechtner, MD, PhD, Germany
Co-Chair: Pedro Ferreira, PhD, Portugal

ISOQOL Leadership

ISOQOL Executive Office
ISOQOL is managed by Degnon Associates
Laura Degnon, CAE - Executive Director
George K. Degnon, CAE - Executive Consultant
6728 Old McLean Village Drive
McLean, Virginia 22101-3906 USA
Phone: 703-556-9222
Fax: 703-556-8729
Email: info@isoqol.org
www.isoqol.org

updated 8/1/06